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  1. Done! Added a personal message...I was raised on...

    Done! Added a personal message...I was raised on Long Island, so this hits home to me.
  2. Did you try the Gabapentin and the Lyrica...

    Did you try the Gabapentin and the Lyrica together, at the same time? Also, how often did you take the meds? You have to play around with the timing. I take 3600 mg Gaba/day, broken into 4 dosages...
  3. For what it's worth, I have no doubt that you...

    For what it's worth, I have no doubt that you continue to believe what you said! I believe what you said also. With your intelligence, knowledge, training, and practical experience, you are in a...
  4. Thread: Gabapentin?

    by KYLady
    Replies
    17
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    10,261

    Gabapentin is great! It can be quite effective at...

    Gabapentin is great! It can be quite effective at reducing neuropathic pain. It works by calming the nerve signals so that the brain doesn't react as strongly to a damaged signal from the spinal cord...
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    Sticky: Sigh.....true. I guess I'll rachet down my...

    Sigh.....true. I guess I'll rachet down my excitement. But not my hope!! :)

    Actually, it looks like the University of Rochester Mediacl Center (Rochester, NY) has been focused on research of...
  6. Replies
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    619,175

    Sticky: This is very exciting to me because it says that...

    This is very exciting to me because it says that significant sensory nerve regeration occurred as well as motor nerve repair! The article seems vague, though, (maybe intentionally) about the source...
  7. Replies
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    I don't have TM, but I had (have?) ADEM (Acute...

    I don't have TM, but I had (have?) ADEM (Acute Disesminated Encephalomyelitis). I always think of TM as horizontal atraumatic spinal cord damage, and ADEM as vertical atraumatic spinal cord damage....
  8. Replies
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    6,066

    Cowgirl, I'm so glad to hear that you have gotten...

    Cowgirl, I'm so glad to hear that you have gotten help and are feeling better. One thing to be aware of is that some people's bodies can begin to "tolerate" Gabapentin so that the dosage isn't as...
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    I am maxed out on Gabbapentin at 3600 mg/day...

    I am maxed out on Gabbapentin at 3600 mg/day (1200 mg 4X) and when my chronic CNS pain increased, my Dr added Lyrica at 150 mg 2X per day. She had me ramp up to this dosage of Lyrica.

    I tolerate...
  10. Replies
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    1,312,495

    Sticky: Thank you, Grammy, for your informative and...

    Thank you, Grammy, for your informative and well-researched posts. When I see a post from you I always pay attention because I know I'll learn something! :)
  11. Replies
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    I have been on Gabapentin for 3 years for...

    I have been on Gabapentin for 3 years for neuropathic pain and am maxed out at 3600 mg/day. Earlier this year, my Dr added Lyrica. I have experienced some weight gain since I have taken these meds....
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    I always feel that I don't really count, because...

    I always feel that I don't really count, because my injury was so unusual. My spinal cord damage is vertical, not horizontal. The damage was to portions of my cord where sensory nerves transmit...
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    Kyle, I don't have a tramatic SCI, but I had a...

    Kyle, I don't have a tramatic SCI, but I had a virus migrate into my spinal cord & brain stem several years ago. My body's defenses attacked the virus and my own spinal cord tissue as well. Until I...
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    Thank you for this comment. It's one of my...

    Thank you for this comment. It's one of my greatest fears sometimes since I feel so dependent on painkillers. I hate that these pills have such importance in my life! Ive noticed that if I manage my...
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    At age 61, I had a minor cold..only lasting 3...

    At age 61, I had a minor cold..only lasting 3 days. This was followed by a slight numbness in my left hand and wrist, which over a few days spread up my arm and into my left chest and back area. This...
  16. Thank you, manouli. This is fantastic! I believe...

    Thank you, manouli. This is fantastic! I believe that every stem cell trial will yield information that will benefit another stem cell trial. Although this process is agonizingly slow due to medical...
  17. Thread: Update on Geron

    by KYLady
    Replies
    59
    Views
    14,671

    bbm Bless this guy for perservering in spite...

    bbm

    Bless this guy for perservering in spite of the setback! Where the heck is Bill Gates when we need him??!
  18. Sticky: Thank you for the clear explanation. It shows how...

    Thank you for the clear explanation. It shows how well thought out trials and constant tweaking based on the results is the right way to move forward. Good scientific minds, relentless hard work,...
  19. Thread: Update on Geron

    by KYLady
    Replies
    59
    Views
    14,671

    True. Intelligent, knowledgable people wouldn't....

    True. Intelligent, knowledgable people wouldn't. But unfortunately the end of the Geron trial has played beautifully into this group's hype. People who don't know much about stem cells could easily...
  20. Thread: Pain management

    by KYLady
    Replies
    2
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    1,757

    Pain Management

    Hi EddieB! Your wife, and you, have my heartfelt sympathy. I also have severe neuropathic pain and have an ongoing struggle with medications. My injury was nontraumatic and due to a virus that got...
  21. Thread: Update on Geron

    by KYLady
    Replies
    59
    Views
    14,671

    Don't feel like a fool. NOBODY saw this one...

    Don't feel like a fool. NOBODY saw this one coming!

    P.S. While it may seem discouraging now, I have hopes that it will end up being a blip in the road. Companies are competetive.
  22. Sticky: Placebo Testing Possible for Stem Cell Therapies

    Dr Young,

    Is it possible, or does it make sense, to involve placebo testing as part of Stem Cell Clinical trials? If so, at what stage trial would this take place and how would it be done? If...
  23. Thread: Help...

    by KYLady
    Replies
    14
    Views
    3,294

    With Carpel Tunnel, the Medial nerve is being...

    With Carpel Tunnel, the Medial nerve is being pinched when it goes through the passageway on the inside of the wrist. Keeping the wrists straight helps to allow the maximum amount of space in this...
  24. Sticky: Byproducts of Stem Cell Therapies

    Good afternoon, Dr Young. Although improved therapies for injury-related neuropathic pain are not the thrust of current trials, I would hope that attention is being specifically paid to pain.
    ...
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    I have been on Neurontin for a year and a half...

    I have been on Neurontin for a year and a half and have been on the max dosage of 3600 mg/day for the last 6 months. I have been fortunate to have had minimal side effects, only sleepiness, minor...
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