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Type: Posts; User: miafiglio

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    Has Anyone Tried Tommie Copper

    Has anyone tried any of the Tommie Copper products for pain? I would like to buy them for my son to see if they help. Would it be safe or should I be concerned about the copper and the hardware in...
  2. Clinical Trial Process Primer

    The above titled article appeared in the Miami Project to Cure Paralysis' June 2008 Newsletter. Here is an excerpt, which sounds hopeful that they are moving toward a trial in the U.S.

    "The Miami...
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    Bulk head seat is a must!

    The airline staff will put you into a straight back, very narrow wheel chair, and push you onto the plane, down the aisle to your seat, and help you transfer over - or lift you over if transferring...
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    Syrinx

    My son has a syrinx. He began to experience problems in his good (unaffected) hand 2 1/2 years after his injury. He thought he was overusing it, and did not go to his doctor until he began dropping...
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    Steph: I cannot answer your question, but I...

    Steph:

    I cannot answer your question, but I did want to share with you something that someone shared with me. My son's right arm/hand is always in pain and sensitive to touch as you described,...
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    Thank you. The blood was dark, and more red than...

    Thank you. The blood was dark, and more red than brown. He had some small clots. We will watch and see what it looks like tomorrow.
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    Blood in urine

    My son (23) developed a bloot clot in his leg after surgery this summer. He has been on Coumadin, and today he found blood in his urine. He called his primary, who said he may have a bladder...
  8. Surgery can include decompression

    My son just had surgery this summer to decompress his spine due to a syrinx. They removed quite a bit of bone, and supported his spine with rods on each side. His doctor said he also removed a...
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    It is a month since you posted your baby's brush...

    It is a month since you posted your baby's brush suggestions, and I am just now reading it, but will get one for my son to try. Thank you for the suggestion. I will post again later to let you know...
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    Universal Home Designs - Thing of the Future?

    It's one of those things that you don't think about when you and everyone you know are healthy, but when your world turns upside down by health problems, in my case SCI (my son), you start to "see"...
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    Thanks for the laugh Shaun!

    Just reading through the posts, and too tired to give a serious reply (worked 12 hours today), but have to say that I got a good laugh from Shaun's reply in April. I needed a laugh.
  12. Head/Neck Support Attachment For Manual Wheel Chair?

    We have a van to transport our son in; he is a C6-7 quad. He uses the IGlide which is a power assist manual wheel chair, and when we take him out in the van, he stays in his chair and we lock it...
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    Thanks lynnifer

    That was helpful. Although my son's surgeon never used this term, he told us that he removed quite a bit of scar tissue during surgery, so I am wondering if that was due to tethering. I will ask...
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    What is tethering?

    As I was reading various posts regarding syrinx information, I kept reading about tethering. I am not sure what this is. Can someone please explain?

    My interest is due to my 23 year old son who...
  15. Thread: Las Vegas

    by miafiglio
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    Razz

    Go to the first mesage in this thread for shower chair info.
  16. Thread: Las Vegas

    by miafiglio
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    Las Vegas

    My son, 23, has been a C-6 quad for the past three years. Vacation planning has not been easy, but I can say that our trip to Las Vegas last month was worth it.

    We stayed at Caesar's, and the...
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