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  1. Replies
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    Thanks so much everyone for all the advice. We...

    Thanks so much everyone for all the advice. We haven't had the family meeting because for the last couple of days she has been in and out of the hospital for pain so we haven't had the opportunity...
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    The pain issue may now be a cyst on her ovaries...

    The pain issue may now be a cyst on her ovaries that they found so we have to have that checked out. Also she has a blood clot and they think the pain is coming from that, but of course her general...
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    Her family lives 6 hours away and they know how...

    Her family lives 6 hours away and they know how she is because they told us that is why they don't come back as often because she runs them ragged as well. My brother is not good with the computer...
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    adi chicago - I believe her pain is not as bad as...

    adi chicago - I believe her pain is not as bad as yours because again she was always a drama queen about pain before she got hurt. If my brother got hurt working their horses - then she got hurt and...
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    adi chicago - alot of her "fits" unfortunately...

    adi chicago - alot of her "fits" unfortunately are attention getters. morphine she is allergic to - we just found that out.
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    betheny - I like you - you make me feel better...

    betheny - I like you - you make me feel better about all this and that we are not going crazy and are mean!
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    betheny - I really wish she could meet you. I...

    betheny - I really wish she could meet you. I believe she would connect with you really quickly.

    The blood clot was in her thigh and she has had 2 within the last 2 months. Fortunately for her...
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    Thanks quad79 - we did raise the kitchen table so...

    Thanks quad79 - we did raise the kitchen table so she could fit, but most of the times the things we eat she can't eat with her utensils and we don't have sit down meals so we are always either...
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    adi-chicago - forgive me for my stupid,...

    adi-chicago - forgive me for my stupid, insensitive comment. That is why I like talking with everyone here - you correct me and I know to watch my mouth. I guess I'm just repeating what her doctors...
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    Thank GOD no.

    Thank GOD no.
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    We definitely make sure that we cath her ontime...

    We definitely make sure that we cath her ontime and we even try to give her her meds on time, but then she tells us I don't feel like taking them now and then when her pain sets in I try to explain...
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    Betheny - thanks so much for your comments. I do...

    Betheny - thanks so much for your comments. I do feel like sometimes we are being mean and not understanding. That's why I asked and that is why this site is a godsend not only for the injured, but...
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    Rbrauer - thanks for your comments. I do know...

    Rbrauer - thanks for your comments. I do know that when she is in real pain I do see her cry. She is on Lyrica and has been since the injury she takes 6 a day throughout the day. She is the type...
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    What to do!!!!????

    Our family member has been hurt almost 10 months now C6 and we don't understand her pain or what she is going through, but when she first came out of rehab she was really about trying to get better...
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    I to would be interested in hearing how it works...

    I to would be interested in hearing how it works out for you.
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    That is what I was wondering. It seems like the...

    That is what I was wondering. It seems like the week before her menstrual cycle she goes into this hot cold issue. She is 31 and the doctors have suggested a pill to stop her period so that this may...
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    Big Toe moved......

    Everyone - good news 'T' moved her big toe on her left foot (this is the foot that has all the spasms). She said that she tries to move all the toes, but the big toe is the only one that responds. It...
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    Zillazangel - I to have trouble transfering "T"...

    Zillazangel - I to have trouble transfering "T" into the car because I have a very weak left arm so getting her out with the transfer board is easy, but unfortunately getting her back in I need help...
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    Their rates used to be $65 per hour, but they are...

    Their rates used to be $65 per hour, but they are either going up or have gone up. They have gotten new equipment and they are getting another trainer. T's sessions are paid for by a fund that was...
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    okay we gave it a shot, but it didn't work. We...

    okay we gave it a shot, but it didn't work. We tried just the Digestive Advantage,two colaces and the ducolax suppository - removing the 3 sennokot and the Glycolox drink and unfortunately without...
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    Why will her health be better in the long run. ...

    Why will her health be better in the long run. We don't mind doing the every 4 hours and she does cut her water intake after 10:00pm so we still would only cath her once in the middle of the night...
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    Sc-Nurse - in reference to the Mitrofanoff - I...

    Sc-Nurse - in reference to the Mitrofanoff - I just went and read what it was. Kessler didn't recommend that since they feel that she may get bladder control back. Also they suggested that the...
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    We are trying to convince her about the mattress,...

    We are trying to convince her about the mattress, but she has done okay on this mattress for quite some time. It could be because she rode horses all her life and her skin is quite tough. I know...
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    That is definitely something that we will try and...

    That is definitely something that we will try and do. If her forearm would behave it would be easier, but since she doesn't have much control of that and which way it decides to go when using it - it...
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    I just love everyone on this site you guys are...

    I just love everyone on this site you guys are just so wonderful in all the help that you give. I'll print this out and share with her tonight. T is my brothers fiance and I love her like my...
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