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  1. Replies
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    Sticky: Like with most low level injuries, I have a great...

    Like with most low level injuries, I have a great understanding and appreciation that I am fortunate to have full use of my upper body but many of us have BBS issues and we things like atrophy we...
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    Sticky: Thank you!

    Thank you!
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    Sticky: I assume that LMN injuries are still not involved...

    I assume that LMN injuries are still not involved in it? As I understand it once you get to T9 injuries go more UMM or LMN. My injury is at T9/10 and while I had atrophy and didn?t respond to what...
  4. How is this different from what The Miami Project...

    How is this different from what The Miami Project has finally attempted to do for chronics after 30 years of existence and fundraising galas?
  5. Settle down. I’ve heard it’s only another 5 years.

    Settle down. I’ve heard it’s only another 5 years.
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    Thats what I am wondering. Even for existing...

    Thats what I am wondering. Even for existing technology used in an off label manner like the epidural implant they say it will take proof of effectiveness in hundreds of people before it?s availanle....
  7. Just disguise a fundraiser for SCI people as one...

    Just disguise a fundraiser for SCI people as one for kittens or puppies with SCI and there will be enough funds for everyone!
  8. I am a low level injury so I have full use of...

    I am a low level injury so I have full use of everything above my waist. I try to not complain Bc I know a lot of higher injuries would give anything to be what I am. I can’t lie that I get crazy...
  9. I got out of the hospital in 2009 and started...

    I got out of the hospital in 2009 and started using CareCure to learn and keep up with research. Even then I felt like it wouldn’t be too long till there was something that helped us. I remember...
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    Thanks for the post. I actually own the RISE and...

    Thanks for the post. I actually own the RISE and have used it for years to reverse muscle atrophy and convert fatty tissue back into healthy muscle tissue. I still use it but have been using RTI...
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    What are your feelings on higher parameters? RTI...

    What are your feelings on higher parameters? RTI got fda approval for 3000 pulse width and I understand Myolyn doesn’t believe in them. I do not respond to traditional US approved estim but do get a...
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    I think it is that if you get health insurance...

    I think it is that if you get health insurance from your employer and they pay for some or all of it, that doesn’t count against your income restrictions for SGA or SSDI.
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    I should have clarified that i was speaking about...

    I should have clarified that i was speaking about health insurance. Thanks!
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    Employer Insurance and SSDI income limits

    How does employer insurance factor into the wage limits for SSDI? Does that count as income? If employer lazy part of all of your insurance, does that count against your earning potential? How would...
  15. Which I guess is another reason, I have heard we...

    Which I guess is another reason, I have heard we are a long ways away from it getting to where it needs to get for everyone to possibly benefit from it. Hearing data on HUNDREDS needed, which is hard...
  16. Figured it was funding but thought they would at...

    Figured it was funding but thought they would at least start if that was the case. So who knows.
  17. I guess the trial protocol had to be fda...

    I guess the trial protocol had to be fda approved? Louisville has done at least 11, so it’s not like the implant wasn’t already approved in a research capacity. The Big Idea was supposed to start...
  18. Have heard that for this to get to the point to...

    Have heard that for this to get to the point to help people outside of being a part of the research that it will require data on HUNDREDS. They have done 11 in 8 years. So while I am sure this will...
  19. Have heard that for this to get to the point to...

    Have heard that for this to get to the point to help people outside of being a part of the research that it will require data on HUNDREDS. They have done 11 in 8 years. So while I am sure this will...
  20. It’s purpose is to allow people to dress up and...

    It’s purpose is to allow people to dress up and have dinners or galas with celebs and say look at us, we are so nice for helping
  21. They had me come down to Miami to be evaluated...

    They had me come down to Miami to be evaluated for the trial over 2 years ago. The MRI showed that my injury site was too large.

    This was annoying Bc there wasn't any restriction like that for...
  22. The only thing I could find was an article about...

    The only thing I could find was an article about them completing phase 1 for acute

    https://m.medicalxpress.com/news/2017-03-university-miami-successfully-sci-clinical.html
  23. Yes, implant had someone stand up in 2009 and was...

    Yes, implant had someone stand up in 2009 and was existing tech from the 1980s. It's almost the end of 2017 and still can't get to help people. Has the backing of CDRF but you look at the big idea...
  24. Funny I actually just emailed them and asked them...

    Funny I actually just emailed them and asked them where it was with the chronic trial. Just read an article saying $450 million raised and an upcoming 32nd Sports Gala...as we all know ZERO chronic...
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    Sticky: You mentioned LMN trials coming. Is that animal...

    You mentioned LMN trials coming. Is that animal or in humans?
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