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Type: Posts; User: TINAMARIE

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  1. Replies
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    Thanks everyone, and so sorry it has taken me so...

    Thanks everyone, and so sorry it has taken me so long to get back to this. I've had a crazy week. We did get her in contact with PVA and they are going to "pull some strings" to get her in to be seen...
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    4,921

    Need Urgent Help for Friend possible SCI

    I need advice for a friend in Reno, Nevada. Background info, she's a 20 something female Veteran with PTSD and a leg injury. Leg will be amputated later this year, but for now she is in a wheelchair...
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    3,750

    No, we aren't doing any mobility work yet, not...

    No, we aren't doing any mobility work yet, not until after he turns 2 yrs old. Even going up and down curbs, it's just light fingertip touch, just enough to steady me, no weight on him at all. I'm...
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    Service Dog, anyone?

    Do any of you have a service dog? I'd love to hear about it...what kind, how old, program trained or owner trained, what tasks it does for you, how long you've had it, how has your SD changed your...
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    5,017

    Huh, learn something new every day! I've always...

    Huh, learn something new every day! I've always compared myself to a reptile or amphibian (in regards to temperature) since my SCI, but never knew what the term for it was!

    Last summer when the...
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    18,701

    Neurontin and Pregnancy?

    I have a non-SCI friend whose doctor wants to put her on Neurontin, but she is currently trying to get pregnant. The neurologist told her that it's a class C drug and that it's safe to take while...
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    4,066

    Luckily my dad has offered to pay for the pump...

    Luckily my dad has offered to pay for the pump refill and I was able to find a PM&R doctor to fit me in (as a new patient and within a week, I'm amazed) next week! I was really really stressing about...
  8. Replies
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    432,875

    Sticky: If you are looking for the cost of a baclofen...

    If you are looking for the cost of a baclofen pump refill, mine was $2288.00 NOT including the doctor's fees. I have a copy of a bill from University of Michigan right here in front of me and it...
  9. Replies
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    9,203

    I have days that I just can't warm up! In fact,...

    I have days that I just can't warm up! In fact, this past Sunday was one of them! Even though every one else was wearing short sleeves, I was in long sleeves and a coat and was still freezing. I had...
  10. Replies
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    4,066

    What to do when Baclofen Pump runs out?

    I've had a Baclofen Pump for over 5 years now, but due to circumstances I no longer have insurance and my pump is due for a refill on 12/17. There is NO WAY I can afford to pay for it out of pocket...
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    5,487

    I had an ablation on October 20th, 2011 because I...

    I had an ablation on October 20th, 2011 because I have my period every 3 weeks and have for the last 3 years. I had a period in November, but it was very light compared to what it normally is and...
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    I know this is an older post, but since there...

    I know this is an older post, but since there aren't many replies, thought I'd add mine. I was not in a relationship when I got my pump, so I have no personal info on how long to wait, but as long as...
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    2,146

    I have a huge burn on my side from falling asleep...

    I have a huge burn on my side from falling asleep on a heating pad. I awoke the next morning with an ache in my side and when I looked to see why it was hurting it had already blistered and popped....
  14. Replies
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    1,092

    Thanks, KLD, that is useful, but my cousin is...

    Thanks, KLD, that is useful, but my cousin is having the WORST luck with doctors so she was hoping to get recommendations from people who have used them and know they are a good doctor. I'm trying to...
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    9,923

    I have the same problem and have recently stopped...

    I have the same problem and have recently stopped working completely because of it. My doctor's great idea was to request an accommodation that would allow me to go to the restroom any time needed...
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    Need Physiatrist in Louisiana

    My cousin in Baton Rouge is looking for a GOOD physiatrist (PM&R) in or near the Baton Rouge/New Orleans area She's also wondering if any of you have ever used Dr. Voorhies, Neurosurgeon in Metarie,...
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    Just curious as to why more people don't use Urex...

    Just curious as to why more people don't use Urex or another drug like it. Have there been problems with use or maybe just a preference not to take another medication? I have great results with...
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    Thanks for the links. I have been on both of...

    Thanks for the links. I have been on both of those sites quite a bit this week and have sent them both to my union reps so that they are fully informed of my rights and better able to help me.
    ...
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    4,622

    No ulterior motive that I know of...I work for a...

    No ulterior motive that I know of...I work for a local city government, which to me makes the fact that they are discriminating even worse! I think they just don't like having to bend to someone...
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    4,622

    Oh they monitor everything I do to find anything...

    Oh they monitor everything I do to find anything they can to harrass me about! This bathroom/break thing is just one of the MILLION things they use to try to get me to quit my job, but I REFUSE! I am...
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    4,622

    Discrimination in the workplace?

    I need to find out for sure if this problem would legally be considered discrimination so that I may have my union file a grievance against my employer. Here's the deal...

    I have a letter from my...
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    2
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    1,835

    SCI and Sensory Brushing?

    Not sure where to post this, so please move it if this isn't the right forum.

    My son has Sensory Integration Disorder and we just met with an occupational therapist to learn how to do sensory...
  23. Replies
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    1,615

    I called my Dr this morning and he sent me to the...

    I called my Dr this morning and he sent me to the ER to have a Doppler to check for DVT's as I have a history of them. The ER dr had them check my arteries as well as my veins and everything came...
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    Thanks for the replies, everyone. I will call my...

    Thanks for the replies, everyone. I will call my dr today. I do get a little swelling in my lower leg, but its hard to tell bc that leg is so thin from lack of muscle. The only way I can tell is when...
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    Poor Circulation

    Ok, I've read several posts on here about the same thing and I guess I just need personal reassurance that this is normal and nothing to worry about. For years I've had problems with the circulation...
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