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  1. I've sent you a message on this. I can introduce...

    I've sent you a message on this. I can introduce you to someone who would be able to help and has all the materials you will need.
  2. Thanks Jim, knowing what is done for the rehab...

    Thanks Jim, knowing what is done for the rehab component will be really useful for practising at rehab beforehand.
    Or at least knowing its not possible if it is the kunming walking program like...
  3. Please rant all you like. I think its...

    Please rant all you like.

    I think its completely valid to ask for some details on what you will have to spend 6 months of your life doing. For every clinical trial there is a protocol that will be...
  4. The stem cells is well known and documented in...

    The stem cells is well known and documented in the trial record on clinicaltrials.gov, but the main part, the thing that takes 6 months of your life is just listed as "Locomotor training for up to 6...
  5. It goes against the scientific communities...

    It goes against the scientific communities process of only revealing information in papers months/years after it happened so they can showcase their findings over their peers.

    And the people who...
  6. Good point Jim, if you were specific about what...

    Good point Jim, if you were specific about what the upcoming trial in the US involved then people would be able to be specific.
  7. Hi Jim, Any idea of when more details of the...

    Hi Jim,

    Any idea of when more details of the protocol to be used for the walking in the trials will be available?
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    Unfortunately the reason for the delay with NRT...

    Unfortunately the reason for the delay with NRT was mainly money.
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    The closest to market is probably NRT which just...

    The closest to market is probably NRT which just merged with GTX. Development had slowed down due to lack of funds over the last two years, but it is now funded to build the device for the pivotal...
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    NRT & GTX Merger Completed

    The companies probably best known as Reggie Edgerton's Transcutaneous Stimulation company NRT, and Gregoire Courtine's Epidural Stimulation company GTX have merged.

    Lets hope this gets the...
  11. I think it's called apathy. The vast majority of...

    I think it's called apathy. The vast majority of people with an SCI don't do anything when it comes to finding a cure.
  12. The link to watch it again is here:...

    The link to watch it again is here:
    https://u2fp.z2systems.com/np/clients/u2fp/eventRegistration.jsp?event=66&
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    Thanks Grammy, so it's not going to give any...

    Thanks Grammy, so it's not going to give any useful day to day returns on its own -it might be useful with something else?
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    Thanks Grammy, From a practical point of view...

    Thanks Grammy,

    From a practical point of view what would the purpose of this drug be?
  15. There was a lot, he talked about thinking ISP...

    There was a lot, he talked about thinking ISP could actually be useful for chronic injuries, mentioned a trial in Europe where they had used massive doses and got better results etc.
    But when...
  16. When they say the general terms improved it...

    When they say the general terms improved it doesn't really mean anything. Its the actual functions of those that is important.

    Like bladder improved for example. Did that mean you could hold more,...
  17. I'm not sure that the manufacturers are promoting...

    I'm not sure that the manufacturers are promoting them as some kind of cure. To me they are just a different mobility device - like a wheelchair.

    If there was money going to exoskeletons that...
  18. I asked them to ask David Darrow when he said...

    I asked them to ask David Darrow when he said "Sexual Function" did it include "Orgasm". I wonder if the person reading the questions was too embarrassed to ask.

    So I asked again, but no joy.
    ...
  19. Thanks Sparky, much appreciated. It's been too...

    Thanks Sparky, much appreciated. It's been too long that the SCI Community have been missing good tools like other communities do.
  20. Thats a good example to compare the difference...

    Thats a good example to compare the difference between clinicaltrials.gov and scitrials.org. The info comes from the same place, but much easier to find and read:
    The scitrials.org page for your...
  21. Launching Today - SciTrials.org - SCI Clinical Trial Finder

    Clinical trials are an essential part of the path to bring treatments to the Spinal Cord Injury community. These trials are a source of innovation, new therapies, and procedures that people with...
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    Thanks Grammy, that was my fear. Reading between...

    Thanks Grammy, that was my fear. Reading between the lines it sounds like acute too - 6 patients and they are prepping 10 centres to deliver it.
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    Anyone know anything about RGMa and MT-3921?

    There is a multi-site trial kicking off for MT-3921 around the US (phase 1 safety) and when I looked I found

    MT-3921 is a novel investigational drug developed jointly with Osaka University that...
  24. Also about the new chief scientific officer (CSO)...

    Also about the new chief scientific officer (CSO) - https://www.prnewswire.com/news-releases/christopher--dana-reeve-foundation-appoints-ethan-perlstein-phd-as-chief-scientific-officer-300919807.html
  25. Reeve Foundation to invest in paralysis-treatment companies

    https://www.statnews.com/2019/09/17/reeve-foundation-to-invest-in-paralysis-treatment-companies-as-more-nonprofits-act-like-vcs/

    Nonprofits seeking to advance medical research have long operated...
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