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  1. Actually, not on all sides. Sides and foot, not...

    Actually, not on all sides. Sides and foot, not the head of the bed. So are you going to file a DOJ complaint against this hotel? Best to do it now before the current administration passes HR620...
  2. Here is a good resource for the issues around...

    Here is a good resource for the issues around transient lodging bed accessibility. It includes the information that California requires at least 7" clearance under the bed (for use of a lift) through...
  3. The Access Board: https://www.access-board.gov/ ...

    The Access Board: https://www.access-board.gov/ You are certainly free to contact them and complain. All their regulations must be posted for public comment as well. Have you ever given public...
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    You do realize that this thread is 9 years old,...

    You do realize that this thread is 9 years old, right?

    (KLD)
  5. Not everyone with a SCI has a spastic (reflexive,...

    Not everyone with a SCI has a spastic (reflexive, upper motor neuron) bladder. Many with lower injuries or cord infarction have flaccid (atonic, areflexive, lower motor neuron) bladders. ABs have...
  6. Did they do a plain Xray, or did you have a CT or...

    Did they do a plain Xray, or did you have a CT or MRI of you back? You may have ruptured discs, which cannot be seen on plain Xray. I would recommend you see a good orthopedic surgeon who has...
  7. What is D stats? Have you considered using a...

    What is D stats?

    Have you considered using a reclining shower chair to help with blood pressure issues?

    Obviously a binder in the shower prevents washing the trunk area with soap and water,...
  8. You need to find out what his PdetMax number is...

    You need to find out what his PdetMax number is on his urodynamics. In adults it should be less than 40 cm. H20. Not sure there is a standard in babies, but that standard was discovered in research...
  9. Moved to the proper forum for surveys. (KLD)

    Moved to the proper forum for surveys.

    (KLD)
  10. Well, first of all, you do know that there is no...

    Well, first of all, you do know that there is no agency or policy body called the ADA, right? The ADA is a law, with regulations developed under the law by the Access Board. The Access Board does...
  11. Thread: myelomalacia

    by SCI-Nurse
    Replies
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    212

    Moving this to the Care forum. The above means...

    Moving this to the Care forum.

    The above means that you have myelomalacia (thinning and atrophy of the cord tissue) that extends from C7 to T7, primarily of the dorsal (toward the back of the...
  12. Yes, you need a repeat of your urodynamics study....

    Yes, you need a repeat of your urodynamics study. You should request a copy of your former tests and have them sent to the urologist you are going to see. Would be important to be able to compare...
  13. A neurologic urologist is one who specializes in...

    A neurologic urologist is one who specializes in or has specialty training in management of neurogenic bladder. Not all urologists have a strong foundation in this area unless they have had such...
  14. I don't know about Minn., but in CA, if using...

    I don't know about Minn., but in CA, if using IHSS to pay for your attendant care, this is illegal, and can get you both a fine and booted out of the IHSS program all together. You can provide extras...
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    Did he include information about potentially...

    Did he include information about potentially FATAL episodes of AD that occur when your catheter gets clogged in the appeal justification letter?

    (KLD)
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    If you already have a feel for what brand of...

    If you already have a feel for what brand of wheelchair you will be seeking, you can contact the local vendor for that chair. They often have contacts with RESNA certified therapists who can do your...
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    While Medicare does say it only pays for 2...

    While Medicare does say it only pays for 2 indwelling catheters a month, this can be appealed with a written justification from your physician. Many people have appealed this and gotten approval.
    ...
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    Never heard of this company, and it is not listed...

    Never heard of this company, and it is not listed on AbleData either. If they sold out to another company (common in the lift business) there would be some record of this on the internet if it...
  19. Is this urologist a specialist in neurologic...

    Is this urologist a specialist in neurologic urology? Has he done urodynamics on your son? Ultrasounds of the urinary tract can detect hydronephrosis, but not reflux of urine that has not yet...
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    Alan, have you discussed Renacidin instillations...

    Alan, have you discussed Renacidin instillations with your urologist as a way to help control the build up of sediment?

    (KLD)
  21. Baclofen is for striated muscle spasticity and...

    Baclofen is for striated muscle spasticity and spasms. Anticholenergics are for smooth muscle spasticity (like bladder spasms). I am surprised that you had your urodynamics in January. Most...
  22. Reflex voiding is rarely recommended now days,...

    Reflex voiding is rarely recommended now days, since many men who use this are doing so with high bladder pressures which can cause kidney damage long term. Many men who use this method eventually...
  23. When did you have urodynamics done? How long have...

    When did you have urodynamics done? How long have you been on those meds? Your bladder can change a lot in the first 1-2 years after injury. Bladder spasm can occur at any volume of urine. Have you...
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    That doesn't work for me, nor does putting the...

    That doesn't work for me, nor does putting the phone number alone in the "to" section for Mail on my Mac.

    (KLD)
  25. Thread: Benadryl

    by SCI-Nurse
    Replies
    2
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    589

    Suggest you see a dermatologist, not just your...

    Suggest you see a dermatologist, not just your GP.

    Diphenhydramine (generic of Benadryl) is an antihistamine best used for short term management of allergic reactions such as hives, and is...
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