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  1. Thread: hospital stay

    by TM Girl
    Replies
    28
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    3,362

    Cass. I had colonoscopy last year, not pleasant...

    Cass. I had colonoscopy last year, not pleasant it will be fine and you will soon be home, when I had mine done and was in and out of the hospital in three hours!
    Sending you positive thoughts.
  2. Replies
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    Ket, Don’t post often but know your pain is...

    Ket,
    Don’t post often but know your pain is truly awful. So just wanted to say so sorry you are going through this...............not much else to say really, just offering a little understanding...
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    2,037

    Dear ket, I have read your posts and know that...

    Dear ket,
    I have read your posts and know that you have tried lots of different medications including ketamine infusion. Have you also tried lithocaine infusion. I have been offered both of these. I...
  4. I completely understand that, when the internal...

    I completely understand that, when the internal "vibrations" chime in along with the other pain I find it impossible to stay still and have to move even if that is only lying down and rocking from...
  5. I apologise, I did not know that your were being...

    I apologise, I did not know that your were being sarcastic. It is difficult in text, easier in conversation. I should know - one needs a doctorate/P.h.d in irony and sarcasm to "get" some of my...
  6. I know both these things, I do read posts and...

    I know both these things, I do read posts and consider contents of individual posts before responding. I thought this was a safe place to share experiences and give mutual support, that is what and...
  7. Hi KyleP2112, Sorry you are having such a...

    Hi KyleP2112,

    Sorry you are having such a rough time. No one should (or could) be told to just get used to neuro pain. I guess you have tried various combinations of pain meds but keep on...
  8. I don’t understand them either but they...

    I don’t understand them either but they certainly don’t understand what central nerve pain is like. How can you get used to a crazy pain which comes in many different manifestations and in a...
  9. Replies
    1,054
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    319,906

    Smokymtnmemories I will give the fleece blanket a...

    Smokymtnmemories I will give the fleece blanket a go, thanks for the tip.


    Here is the real irony about my lack of sleep at night; I have dreadful fatigue as one of my ongoing symptoms, in...
  10. Replies
    1,054
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    319,906

    Smokymtnmemories you got that right! I...

    Smokymtnmemories you got that right!

    I rant to myself these days but find it gives me a headache (- no honestly it does!) But places like this that either let me rant or enable me to rant...
  11. Replies
    1,054
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    319,906

    Dear Alan, I don’t post here often (never...

    Dear Alan,
    I don’t post here often (never feel I have much to contribute is the truth of it) but do read posts. I know you have a bloody miserable time with your pain. It sounds a bit like mine...
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    Only just seen this thread. Hope it is...

    Only just seen this thread.

    Hope it is successful, it is great organisation. I am a member, as well as being a member of TM UK.

    I have TM, hit me in 2007.
  13. Replies
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    1,794

    The patches are good from constant medication in...

    The patches are good from constant medication in the system but I so completely understand your concern about changing medication. I don't think Drs really understand the emotional impact of a change...
  14. Replies
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    75,668

    I take oxycontin and oxynorm (quite high doses),...

    I take oxycontin and oxynorm (quite high doses), I have taken “holidays” from oxy to other opioids from time to time (to reduce possibility of tolerance from long term use of oxy). I have always...
  15. Replies
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    5,394

    Could be Hip Bursitis, this can be painful but...

    Could be Hip Bursitis, this can be painful but treatable with proper PT exercises.
  16. Replies
    16
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    4,205

    Hi Don and wrongdog, THANK YOU SO MUCH for the...

    Hi Don and wrongdog,
    THANK YOU SO MUCH for the great tips and advice, this is what makes CC such an amazing source of help and comfort. I would never had got such helpful tips and info anywhere...
  17. Replies
    16
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    4,205

    Thanks Don, I was interested that you mention...

    Thanks Don, I was interested that you mention they helped with hills as my house is surrounded by hills to negotiate to get anywhere. I would be interested to know what "tweaks" you made, do the...
  18. Replies
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    Thanks Chas, very kind of you to help me out. ...

    Thanks Chas, very kind of you to help me out.
    Cheers!
  19. Replies
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    4,205

    Alber e motion wheels

    Hi all,
    My hands and neck are causing me problems so I need power assist wheels for my Kuschall chair, they are very expensive. Anyone any experiences of these they can share about how useful they...
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    Get help.You need it, but stop posting here.

    Get help.You need it, but stop posting here.
  21. Replies
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    69,483

    Transverse Myelitis T12 lesion. Luckily I had a...

    Transverse Myelitis T12 lesion. Luckily I had a good neurologist who diagnosed it quickly. It has left me with constant neuropathic pain from waist down and bladder incontinence, dreadful fatigue and...
  22. I meant to say it is good that I am not alone in...

    I meant to say it is good that I am not alone in getting this sensation, sorry you all have this freaky scary thing happen!
    Lu
  23. Thank goodness there are lots of other people who...

    Thank goodness there are lots of other people who get sleep paralysis, it freaks me out. My husband knows to wake me if he hears me trying to moan, it usually happens to me if a fall asleep in the...
  24. Replies
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    3,662

    A good pain clinic is a must, learning as much as...

    A good pain clinic is a must, learning as much as you cam about the different types of medications for nerve pain, and being patient and trying out different combinations of meds (that needs patience...
  25. Replies
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    3,244

    I don't see how it could help CNS pain which has...

    I don't see how it could help CNS pain which has no "mechanical" aspects like poor circulation or muscle pain but rather is pain caused by the brain and spinal cord nerves being scrambled up like...
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