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Type: Posts; User: soundguy

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    Learning to self cath

    Have heard from 2 neuro's and a uro that I need to self cath because I seem to always have a residule of 200cc. This has been ongoing now for 3 1/2 yrs. Have never had a UTI in my life. Recently had...
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    Hi Sue, As a matter of fact. I saw a new Cardio...

    Hi Sue, As a matter of fact. I saw a new Cardio today. Learned more from her in 35min. than I did from old Cardio in 4 yrs. It was her opinion that a lot of different meds at higher levels could have...
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    An adverse reaction to Baclofen?

    Hello to all. I am being asked by new neuro to ramp up my baclofen in the following manner.

    Morning noon night
    wk1:10mg 10mg 20mg
    wk2: 20mg 10mg 20mg...
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    When Do we give to much trust?

    Hi to everyone here. I'm a new dude to all the forum exchange that happens here. I think it's wonderful. Here's my reason for asking such a title question. Sep.'05 Diagnosed with TM at T7. Was...
  5. FrozenGirl I am empathetic to your plight. I...

    FrozenGirl I am empathetic to your plight. I constantly battle through red tape and with the suit and ties. Also have Perthese disease. Degenerative bone disease of the femur head. So one leg is...
  6. learned about my B12 issue from neurologist. I...

    learned about my B12 issue from neurologist. I also tried many creams and things for the skin. These only moderately helped until I started B12. Let us know how it goes.
  7. Hey Mel, I have tried all three ways of getting...

    Hey Mel,
    I have tried all three ways of getting B-12 into my system(shot,pill,nose spray). The later is what I use. Started it 9 months ago. It's Nascobal 500mcg 1x week. For me this is how it went....
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    Sticky: Just had my formal SS hearing. It took 2 1/2yr....

    Just had my formal SS hearing. It took 2 1/2yr. to get the hearing after filing for the formal hearing. It's a very long ordeal. But the hearing was about 10 min long. All that wait to see a judge...
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    Being the FNG here to this line of discussion. I...

    Being the FNG here to this line of discussion. I feel I have a unique perspective on this subject. I made my living in the music biz. I've traveled the world. Smoked everything from junk to Gold....
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    Lynnifer thanks for your response. It's good to...

    Lynnifer thanks for your response. It's good to finally find somewhere to interact about this disease. Fortunate for you that you don't know the trap of street drugs. Here are a few things I can say...
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    Street drugs and TM/MS

    I worked in the music biz for 26yrs. before TM. So of course I was exposed to just about everything. I at the end was using cocaine pretty heavily. Have known many colleges who have used coke and now...
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    Anytime you feel a red flag in the pit of your...

    Anytime you feel a red flag in the pit of your stomach, don't ignore it! I have several rare diseases. And over the years have been told things that are way off the mark. Do your research as well as...
  13. One of the best treatments I've had is B-12...

    One of the best treatments I've had is B-12 replacement. Have that level looked at if you haven't already. I wish you the best in your journey!
  14. This is the most amazing news of possible help...

    This is the most amazing news of possible help that I've heard in three years of having TM. Please keep us posted on any and all findings!
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    There is always hope!

    Shana
    On Oct. 28,2005 I had my TM attack. I went directly to O.S.U. hospital for ten days. All the poking and prodding, MRI and LP. They shipped me directly to a nursing home. When eval'ed by the PT...
  16. Living with TM

    Hi Frozengirl,
    I have had TM now for three years. My level is T7. So everything below the waist is out of whack. I have leg pain and intense tingling. When I do 20 min. of walking legs feel like...
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