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Type: Posts; User: annev308

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  1. Replies
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    I had Botox in my gastroc and soleus too recently...

    I had Botox in my gastroc and soleus too recently to be eligible for another round in my anterior tib (?) or whatever is plantar flexing with such enthusiasm. It’s maddening.
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    Local spasticity - how to reduce?

    I need some ideas on managing/reducing very localized tone/spasticity. I have an incomplete injury at T3 with a history of syrinx and tethering, and some of sensory weirdness is up around T1.

    ...
  3. If he doesn’t need to be inpatient for care,...

    If he doesn’t need to be inpatient for care, Neuroworx in SLC is really excellent.
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    I would take the whole uti situation to your...

    I would take the whole uti situation to your urologist. If they’re not knowledgeable about the standard of care for SCI UTIs and other neurogenic urology issues and you basically trust them, get a...
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    That’s over double the cost for that brand and...

    That’s over double the cost for that brand and pressure on amazon in the US. Synthetics are all over the map, price wise - you can get a pair of white nylon compression stocks at a superstore or...
  6. Make sure you tell Craig *everything* you want...

    Make sure you tell Craig *everything* you want looked at so that it gets scheduled. They’ll reorganize on the fly based on the medical history etc, but if you know when you schedule that you...
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    If the urologist is SCI or neurogenic bladder...

    If the urologist is SCI or neurogenic bladder naive, it’s extremely possible. In my experience, it’s probable. I do a 160 mile RT to see a knowledgeable urologist on the advice of my PCP who is part...
  8. We had a family friend injured in ‘81 and she...

    We had a family friend injured in ‘81 and she went everywhere - she just went and we all coped with whatever when we were there. There was a whole lot of improvisation and frustration and laughter.
  9. Craig in Denver offers Intensive Outpatient...

    Craig in Denver offers Intensive Outpatient Evaluations - NP, PMR MD, urology, PT, OT, wheelchair clinic all do assessments and offer guidance/suggestions on going forward. I suspect most of the...
  10. Do you sleep on your left side? Prior to my...

    Do you sleep on your left side? Prior to my injury, I formed stones on both sides but mostly on the left and my urologist told me stones tend to form on the side you sleep on (there’s increased...
  11. Medicare has covered repairs/maintenance/cushions...

    Medicare has covered repairs/maintenance/cushions for my original chair which was purchased by private insurance while
    I was in acute rehab immediately post-injury.
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    Traveling in the rural southwest (where I live),...

    Traveling in the rural southwest (where I live), it’s been my experience that smallish, not necessarily chain hotels and motels will find ways to make it work, especially when I am really clear about...
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    I don’t believe hospitals are (legally) allowed...

    I don’t believe hospitals are (legally) allowed to administer or allow/facilitate/collude with the administration of expired meds, whether prescription or OTC, but also they won’t keep them, because...
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    Magic bullet is a brand name. The magic bullet...

    Magic bullet is a brand name. The magic bullet brand is bisacodyl in polypropylene glycol. The packaging is a little white box with a white sticker with orange print on it, and the suppositories...
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    Agency rates $22-$35 for PCAs/CNAs. Private pay...

    Agency rates $22-$35 for PCAs/CNAs. Private pay $12-$25 for PCA/CNA. I don’t know what HCBS pays agencies, but PCAs/CNAs working through agencies on HCBS waivers report being paid minimum wage.
  16. There’s some research out there re: vibration,...

    There’s some research out there re: vibration, but it’s mostly oscillating plates. Shepherd has a clinical trial -...
  17. If you have access to any kind of vibration plate...

    If you have access to any kind of vibration plate - even the not-fancy side to side kind - it helps a lot with improving circulation and reducing swelling. Also, FES of the lower legs - calves and...
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    Up around Fort Collins/Loveland/Greeley you can...

    Up around Fort Collins/Loveland/Greeley you can try GoodHealthWill - they often have lightly used/refurbished/repaired full electric beds for relatively low cost ($75-100). Statewide, some of the...
  19. My carpal tunnel has mostly been attributed to...

    My carpal tunnel has mostly been attributed to tendinitis. I never found wrist braces helpful. What’s worked best for me is rocktape (ime, a stickier longer lasting kinesio tape alternate brand, both...
  20. Thread: CBD

    by annev308
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    10,775

    Is the CBD from hemp or from a high CBD/low THC...

    Is the CBD from hemp or from a high CBD/low THC strain of MMJ? It may make a difference.
  21. Thread: CBD

    by annev308
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    10,775

    There’s academic research showing 22 mg oral or...

    There’s academic research showing 22 mg oral or 10 mg smoked CBD has no impact on motor or cognitive function. Research from 2012 and 2017 looking at 600 mg of oral CBD showed neither sedation nor...
  22. It’s worth reaching out to Dr Falci and his team....

    It’s worth reaching out to Dr Falci and his team. He’s a neurosurgeon, does a lot of work with SCI folks, collaborates with orthopedic surgeons as necessary.
  23. Thread: CBD

    by annev308
    Replies
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    Yeah, this - the standardization. Or at least...

    Yeah, this - the standardization. Or at least the provision of enough information that folks can standardize their own usage successfully. The dispensary I go to does gas chromatography on batches...
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    Something called a theratherm - it has a...

    Something called a theratherm - it has a thermostat and a timer, which I find helpful.
  25. Thread: CBD

    by annev308
    Replies
    35
    Views
    10,775

    I find CBD from medical cannabis (Harle-Tsu or...

    I find CBD from medical cannabis (Harle-Tsu or Ringo’s Gift processed as for making RSO) to be pretty effective for spasms and pain in relatively low doses - .8-2 mg in 3 ml coconut oil.
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