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  1. Thread: Help

    by healing
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    Help

    I was just contacted by my ex's mother pleading for help. So, I'm approaching the group, again, for guidance.....
    It's been over 5 months. He is in a six person home, mostly geared toward brain...
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    Thank you for the words of encouragement....

    Thank you for the words of encouragement. Although it's hard seeing him like this, I've got it so easy. I can't imagine what he must be feeling. I wish I could do more, even though he put me through...
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    The visit went well. Our son handled it pretty...

    The visit went well. Our son handled it pretty well. I had him visit a good amount during the trip, within reason. He is 9 and could only handle so much. I spent almost every day at Spaulding, trying...
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    The center director returned my email inquiry...

    The center director returned my email inquiry saying that the also do SCI rehab. I'm not so convinced. It sounds like this is fairly new to them.
    Keith is technically a C4, not sure whether...
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    3 Months later, off the vent, where to go next? Help!

    It's been some time now. So happy to say the vent, trach, and G tube are gone. He worked hard to wean from it. We finally had a visit and it went well. I was glad to be able to help and tried to...
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    My wording is not yours to criticize. You have no...

    My wording is not yours to criticize. You have no right to lash out at me regarding my decision. You know next to nothing about our situation, before or after the accident. There are many factors...
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    First, let me begin by assuring you all, I...

    First, let me begin by assuring you all, I appreciate your input. Our situation is different than one where the child actually lives with/sees his father. We are 3000 miles away and phone calls came...
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    The family says the hospital is turning him every...

    The family says the hospital is turning him every 2 hours. Not sure if he is on the airloss mattress. He was when at the prior hospital, in ICU.
    My son is 9. He doesn't know, yet. My son will be...
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    I think moving him is dependent on the weaning....

    I think moving him is dependent on the weaning. That is the only therapy he's getting right now. I guess he was not cooperating with the weaning today and saying his stomach hurt and he couldn't do...
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    I'm still waiting to hear if they've done the...

    I'm still waiting to hear if they've done the ASIA again. The family still hasn't gotten to meet Dr O'Connor and he arrived at Spaulding 11 days ago. That seems strange to me. I would insist.
    His...
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    Update

    This week he was able to have his first drink and food. They started him slowly, with a donut. He told me his goal is pizza but, he has work to do before being allowed that. He wants to get in the...
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    Thank you- mckeownp. I had been suggesting they...

    Thank you- mckeownp. I had been suggesting they try to get him into Boston Medical Center. My sister-in-law said she's looking into it. I have also forwarded her Steve WIlliams' name and email...
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    I'm assuming the "tube" is something that was...

    I'm assuming the "tube" is something that was stuck in his rear to catch the poop. I've given different family members the website info and urged them to visit. They're so busy trying to juggle...
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    I read the info in Wise' link again and...

    I read the info in Wise' link again and understand better. The example sounds similar to our situation. It seems that Lahey ICU tested him at C4. Apparently, Spaulding hasn't tested him, yet. They...
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    Thanks "capecodsci". It's ironic you'd mention...

    Thanks "capecodsci". It's ironic you'd mention the situation at Spaulding. Apparently, they don't use anal tubes(?) there. He soiled the bed and was left laying in it. They are sympathetic to his...
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    Rehab Choice Help

    Keith is not having a good experience at Spaulding and they are talking about moving him. I guess the nurses aides don't speak English and left him sitting, overnight, in poop. I can' find the rehab...
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    I don 't understand why they're calling him C7...

    I don 't understand why they're calling him C7 Quad. His injury was to the c4 and c5 vertebrae. He can only feel his shoulders and can move his head. At the first hospital, the day he was injured, he...
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    Free Bird...thank you for the encouragement. He...

    Free Bird...thank you for the encouragement. He is very scared right now. His fear is that he won't get use of his arms back. I think correspondence with you would really help him once he is capable....
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    Thank you, tgoodwin and mckeownp. He was on the...

    Thank you, tgoodwin and mckeownp. He was on the job when this happened and it's a work comp case. I want to be sure he gets the best rehab available. It's just so hard to know whether the care he's...
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    His immediate family is rotating shifts to be...

    His immediate family is rotating shifts to be there for him, but live 1 hour away. I am trying to help, gathering info, as we(his son and I) live across the country. It's easier for me to be...
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    Trying to understand C 7 Quad

    My son's dad had a terrible fall on 5/14. He's only 38 years old. Broken vertebrae at c4 and c5 crushed into his spinal cord. It's not severed. Now, he's been moved to Spaulding, only has feeling in...
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