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Type: Posts; User: jmt823

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    need help son has multiple bacteria in lungs

    I am in need of information. My son who is a C2 quad had to have bladder surgery to remove 16 bladder stones last July. After his surgery, he later tested positive for MRSA. We thought the...
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    My son, C2, uses a sip/puff and he hasn't tried...

    My son, C2, uses a sip/puff and he hasn't tried anything like that. He is getting the new version of Dragon Naturally Speaking Preferred 9. I thought it was supposed to have the ability to do that....
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    jmt823 - Amber is out-patient M, Tu and Thu in...

    jmt823 - Amber is out-patient M, Tu and Thu in the afternoon at the Fairmount location (a couple blocks away from their main location). If she doesn't come out her funk soon, I will ask her dr to...
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    Dear Heidi, Sounds like Amber and you are both...

    Dear Heidi,

    Sounds like Amber and you are both working your butts off. My son was injured Mar 06, C2 vent dependent. He had times where he sounded just like your sister and I imagine if we were...
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    Dear Knucklehead, Just my thoughts... my 17...

    Dear Knucklehead,

    Just my thoughts... my 17 yr. old son raced motocross with his brother and father. Family sport... March 2006 he crashed and broke c1-c2 with a spinal cord injury. He is a...
  6. Ami... thank you for sharing, especially from...

    Ami... thank you for sharing, especially from those of us who are relatively new to this. My 18 yr. old son was injured Mar 06, C2 vent dependent. Like you, I am a full time caregiver. I am posting...
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    My son has a supra-pubic and I change it on an...

    My son has a supra-pubic and I change it on an average of every 10 days due to bladder crystals which are normal. Your urologist should train you and your family, the change is extremely easy,...
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    [quote=SCI-Nurse]The potential for Baclofen (and...

    [quote=SCI-Nurse]The potential for Baclofen (and other medications) inhibiting the recovery and any return of function is the basis along with the walking in a harness, exercise etc...For incompletes...
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    Orangejello- He is doing very well with the...

    Orangejello-
    He is doing very well with the pacer and yes he can be off the vent 24/7. Right now, he is probably at 24/3. Physically, his diaphragm is strong enough and capable of being on the...
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    I am just learning all this stuff but, oral...

    I am just learning all this stuff but, oral baclofen has to go through the bloodstream and organs first and by the time it reached the spinal cord, where it is needed, not enough is left. The take...
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    [quote=SCI-Nurse]You might see if he is a...

    [quote=SCI-Nurse]You might see if he is a candidate for the neurorcovery network program for walking. I know it has proven very helpful with ASIA D and some ASIA C. These are the facilities you can...
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    [quote=ChuckFoss]I recently spoke with Dr. John...

    [quote=ChuckFoss]I recently spoke with Dr. John McDonald (Kennedy-Kreiger) and he strongly suggested I avoid Baclofen.
    Is your son still on a vent? I was, I'm a C2-C3. but now use phrenic nerve...
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    Cheesecake; You are right about Dr. McDonald and...

    Cheesecake; You are right about Dr. McDonald and oral baclofen. They immediately weaned Ben off when we arrived their last summer. Now tone and spasticity is preventing him from being able to see...
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    I am the mother and caregiver for my 18 yrs old...

    I am the mother and caregiver for my 18 yrs old son who is a C2 quad on a vent since March 2006. I understand how hard it can be to be the full time person but, I wish you would reconsider going to...
  15. Hello. I have been reading about Dustin and I am...

    Hello. I have been reading about Dustin and I am pretty new to this site. My son is a C2 on a vent. He was injured a little over a year ago and he is a senior this year also. We live in...
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    Hey Norm. I am pretty new to this site and my son...

    Hey Norm. I am pretty new to this site and my son is a C2 on a vent. He is having some hard times too and it has only been a year. I can only imagine how you feel but, I can also say that, after 25...
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    My son did his first intensive rehab at Kennedy...

    My son did his first intensive rehab at Kennedy Krieger in Baltimore. It is a fantastic place and he received 6 hours of therapy a day.He was inpatient. The building is older and not much to look...
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    Oops, sorry, entered to quick. They also have a...

    Oops, sorry, entered to quick. They also have a very good outpatient program that generally gives you at least 3 hours a day, with the option of doing work on your own outside of therapy time, if...
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    My son recently did inpatient and outpatient at...

    My son recently did inpatient and outpatient at Kennedy Krieger Institute in Baltimore Maryland with Dr. John McDonald who treated Christopher Reeves and is the inventor of the FES Bike through...
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    ... however from what I read here and in the Care...

    ... however from what I read here and in the Care forum not even many high level quads sleep on an actual alternating pressure mattress "all" the time .. j



    My son's level is a C2 post injury 1...
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    His physiatrist in Baltimore is the one that has...

    His physiatrist in Baltimore is the one that has suggested we try the pump. He is taking Dantrolene, Zanaflex and Sinemet. He has had several doses of Botox. All of which has not really helped at...
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    18 Year Old Son C2 Vent Dependent

    We are new to posting on this site. My son was injured March 2006 in a motocross accident. We are now home after spending 3 months at Shepherd and 3 months at Kennedy Krieger Institute. He is now...
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    Mary, I am also new to this site and my son...

    Mary,

    I am also new to this site and my son was injured March 2006 and is a C2 incomplete , vent dependent. Through everything just remember one thing, your brother is newly injured and there is...
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