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  1. Replies
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    If you still have dark red bloody urine in the...

    If you still have dark red bloody urine in the morning, you will need to call the urologist who did your cystoscopy or go to the ER. Are you sure they did not do any biopsy?

    You won't of course...
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    Do you mean your temperature is lower than your...

    Do you mean your temperature is lower than your normal? How much blood? Is your urine like white Zinfindal, or like Merlot? Are there clots in addition to fresh blood? Is the blood bright right or...
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    Cam, if your bladder has decompensated enough, it...

    Cam, if your bladder has decompensated enough, it means that it has lost its tone and cannot squeeze urine out. This cannot be corrected by a sphincterotomy. Have you had urodynamics studies showing...
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    Not me. (KLD)

    Not me.

    (KLD)
  5. http://sci.rutgers.edu/forum/showthread.php?55419-...

    http://sci.rutgers.edu/forum/showthread.php?55419-People-can-say-the-stupidest-stuff-somtimes&highlight=stupid+wheelchair
    ...
  6. Replies
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    http://sci.rutgers.edu/forum/showthread.php?133414...

    http://sci.rutgers.edu/forum/showthread.php?133414-Microcyn-Bladder-Treatment-(An-Open-Letter-to-Dr-Young)

    (KLD)
  7. Replies
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    Sticky: Welcome Larryandka, it would be helpful if you...

    Welcome Larryandka, it would be helpful if you could add your location (country, region, state, etc.) to your profile in addition to the information you have there already on you level of injury,...
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    There is no evidence for any benefit for...

    There is no evidence for any benefit for cranberry juice or capsules in UTI prevention in people with SCI.

    Cranberry probably won't hurt you (unless you have a tendency to develop calcium...
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    Muscous is produced by the bladder wall in...

    Muscous is produced by the bladder wall in response to irritation (like infection or the presence of stones or sediment).'

    You need to have urodynamics done every 2-3 years. You should also have...
  10. Yes, because most people with SCI have chronic...

    Yes, because most people with SCI have chronic colonization of bacteria in their urine all the time. Nitrates are a natural bi-product of metabolism for the most common bacteria that cause either...
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    If you are still emptying your bladder simply...

    If you are still emptying your bladder simply with reflex voiding, it is very likely that you are not completely emptying your bladder ever. This allows sediment and mucous to build up, and may lead...
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    20 mg. of baclofen daily is a very low dose. You...

    20 mg. of baclofen daily is a very low dose. You can safely take up to 80 mg. daily, and many people take more (up to 120 mg. daily). If you can see a physiatrist who is expert in SCI medicine, they...
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    New or suddenly increased spasticity can be, like...

    New or suddenly increased spasticity can be, like autonomic dysreflexia, a response to pain someplace in the body, and not necessarily specific to the area where the spasticity is occuring. AD may...
  14. It would be best to get one fit and prescribed...

    It would be best to get one fit and prescribed for you from a seating specialist (OT or PT) but until then, a few to check out:

    http://www.ergo21.com/product/ergo21-lumbar-cushion/
    ...
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    Then that is the fault of the individual...

    Then that is the fault of the individual researchers, not of this NIH site.

    (KLD)
  16. Eggcrate foam is usually a poor quality low...

    Eggcrate foam is usually a poor quality low density foam that compacts readily, thus not providing much pressure relief. A custom back would be much better, usually made from high density foam that...
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    How much fluid intake is he doing daily? Has...

    How much fluid intake is he doing daily?

    Has he been evaluated for possible diabetes insipidus (DI), which is caused by some type of problem with the pituitary gland? This can be a tumor and may...
  18. Replies
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    What were you expecting from this site? It is...

    What were you expecting from this site? It is merely a clearing house/listing of clinical trials taking place in the USA and internationally. It is housed in the National Institutes of Health. They...
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    What surgical procedure did you have? Certainly...

    What surgical procedure did you have? Certainly not a clamshell cystoplasty or augmentation, which is a major procedure and often requires 5-10 days of acute care hospitalization, and leaves a pretty...
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    Welcome to CareCure and thank you for sharing...

    Welcome to CareCure and thank you for sharing your story. I am moving this to the Life Forum as it looks like it belongs there more, although the Members Only forum would be a little more private if...
  21. Check out this accessible food truck in Canada: ...

    Check out this accessible food truck in Canada:

    http://globalnews.ca/news/2023403/chef-breaks-barriers-with-custom-wheelchair-accessible-food-truck/
    ...
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    An additional note to KLD's advice above... It...

    An additional note to KLD's advice above...
    It is recommended to use water based bisacodyl suppository or a mini enema (eg Enemeez) for a more consistent result and less chance of mucus residue.
    ...
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    Wondering if it would be easier to find an...

    Wondering if it would be easier to find an accessible motorhome to rent in England, and take it on the ferry (or Chunnel train) to France. A quick Google search showed a number of rental options in...
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    I found this is one on-linel, but it is the...

    I found this is one on-linel, but it is the Raz-Designs JAZ-AP, not the SP:

    https://offerup.com/item/detail/280922636/

    One here, but it is in Canada, and not discounted much:
    ...
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    We often recommend putting the suppository in...

    We often recommend putting the suppository in while still in bed, then immediately transfer to the commode chair and roll over the toilet. You can also do this with a bedside commode and a bucket...
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