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Type: Posts; User: mike b

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  1. Replies
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    I get one every 5 years to keep an eye on my 33...

    I get one every 5 years to keep an eye on my 33 year old spinal fusion, and changes in my spine in general.
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    11,805

    I've had my SP for 4 years, and swim all summer...

    I've had my SP for 4 years, and swim all summer with it. I use Tagaderm and sandwich them on either side of the stoma sight and to the skin. When I swim in the ocean, I do the same, but place more...
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    1,874

    A few years ago I has a balloon not deflate, and...

    A few years ago I has a balloon not deflate, and that was not a fun time having that removed from my stoma. Since then my urologist inflates the balloon while the cath is still in the package to test...
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    1,355

    My urologist wanted me to start the testing for...

    My urologist wanted me to start the testing for it, but when I was told about the marginal short term success rate, I passed on it. This was a couple years ago, so I haven't heard much about it...
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    You say the nurse sees what looks like peeling...

    You say the nurse sees what looks like peeling skin in your urine. There could be a lot of build up on the catheter, causing it to get stuck inside. Green stuff coming from your stoma sounds like an...
  6. I too was afraid 3 years ago when I went through...

    I too was afraid 3 years ago when I went through a similar ordeal. Long story short, I ended up going to a Supra Pubic catheter and have learned quickly how to live, work and play with it. It's not...
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    1,562

    My urologist performed my hernia surgery with a...

    My urologist performed my hernia surgery with a mesh. I'm happy with the results 1 and a half years later.
  8. I would definitely find another urologist. If you...

    I would definitely find another urologist. If you can't cath well and are voiding with lots of bladder pressure, you can back urine up into your kidneys. You may need to get an in dwelling Foley...
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    I get a cystoscopy every 2 years. SP for almost 3...

    I get a cystoscopy every 2 years. SP for almost 3 years.
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    I had hernia surgery just over a year ago...

    I had hernia surgery just over a year ago performed by my urologist. I was home by noon that day, and was in discomfort for a couple days, but felt increasingly better every day after. Expect about 6...
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    4,536

    I swear by cranberry capsules and vitamin C. Made...

    I swear by cranberry capsules and vitamin C. Made a huge difference with bladder comfort and has helped keep the uti's at bay.
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    4,536

    Are you drinking enough? Do you think you could...

    Are you drinking enough? Do you think you could be dehydrated causing odor to the urine?
  13. I too drink a lot of water since going to a SP,...

    I too drink a lot of water since going to a SP, but was making a lot of urine, so I cut back a bit but still drink more than most. I still don't get the UTI's very often so cutting back has been...
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    When emptying and cleaning my night bag every...

    When emptying and cleaning my night bag every morning, sometimes I have 300 ml, and other times as much as 700 ml. I always wonder if that is normal, as my uro doc says it depends on what I ate and...
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    The mesh makes the repair stronger, very common,...

    The mesh makes the repair stronger, very common, however, not every surgery is full proof. The doctor can make a good decision if surgery is warranted. Keep your chin up.
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    I had hernia surgery 15 months ago, and no...

    I had hernia surgery 15 months ago, and no issues. Don't let it go too long because it can pinch off your bowel and that can be an issue.
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    16,845

    I too don't have SCI, although I do have a spinal...

    I too don't have SCI, although I do have a spinal fusion. I also have a bladder sphincter issue. Three urologists, my neurologist, and my orthopedic doctor have not been able to figure out the cause....
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    It does sound like mucous. I've had a SP cath...

    It does sound like mucous. I've had a SP cath change one time, and a big mucous blob came right out of my stoma. I got a urine test and no UTI, but populated.
  19. Thread: Suprapubic tube

    by mike b
    Replies
    37
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    14,335

    smashms, voiding from pressure is absolutely...

    smashms, voiding from pressure is absolutely dangerous. I'm sorry you had to find out the hard way. And to CKF, I know you have everyone's well being in mind, and I respect your opinion.
  20. Thread: Suprapubic tube

    by mike b
    Replies
    37
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    14,335

    I certainly agree that clamping is not a good...

    I certainly agree that clamping is not a good idea for some people, like with SCI. However for myself, aside from using a night bag at bedtime, I use a catheter plug. Now before I receive negative...
  21. It's common to start out with a 16fr, and if...

    It's common to start out with a 16fr, and if there are any flow problems, then it can be increased to an 18, or even to a twenty. I guess it depends on the performance of the SP to the patient. My...
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    Sticky: I use 500 mg vitamin C and 2400 mg cranberry...

    I use 500 mg vitamin C and 2400 mg cranberry capsule 2x a day, as well as drinking plenty of water and some orange juice per day to help manage my bladder with good results. I recently had my...
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    I was supposed to get a Harrington rod when I had...

    I was supposed to get a Harrington rod when I had my scoliosis operation but just have a fusion. A girl I went to high school with and still know has a Harrington rod for the same operation, and she...
  24. I have had neurogenic bladder for years and have...

    I have had neurogenic bladder for years and have a thickened bladder also, and up to this point that's all it is. Every two years now I get a cystocopy and a cat scan, and so far all has been ok ( if...
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    I hang my bag on the side of the bed, but because...

    I hang my bag on the side of the bed, but because I toss and turn during the night, sometimes I wake up and the bag is on the floor. I should get smart and listen to some of you all and have a large...
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