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Type: Posts; User: ejl10

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  1. Replies
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    Sure, that makes sense. But even if they're not...

    Sure, that makes sense. But even if they're not real crunches, I'd love to know what people are doing. I'm clearly not doing enough right now!
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    I'm curious... I keep hearing about people doing...

    I'm curious... I keep hearing about people doing crunches. How does that work? I used to do crunches prior to my accident, but can't do them anymore. Maybe I'm just doing the wrong.
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    498

    1. I use a statlock device to hold the tube in...

    1. I use a statlock device to hold the tube in place at the junction. The main benefit is that it helps prevent the tube from accidentally getting pulled out if it's caught on something. And yes, it...
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    Of course. I'm not expecting anything from this...

    Of course. I'm not expecting anything from this Phase 1 safety study, but I want to do my part pushing the science forward.
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    687

    I have wrists but no hand function. They passed...

    I have wrists but no hand function. They passed me through the initial video screening and I'm heading down to Philly next month for my in-person. We'll see...
  6. Thread: Power Chair

    by ejl10
    Replies
    4
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    733

    Here in Boston, most of the local quads went...

    Here in Boston, most of the local quads went through Spaulding Rehab and the therapists there have been advocating for the Permobil F5 Corpus at least the last couple years. Reason being primarily...
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    Thanks so much for the quick reply. Glad to hear...

    Thanks so much for the quick reply. Glad to hear I'm on the right track at least. Fortunately, my PCA knows how to properly install both an SP and an indwelling catheter.
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    Suprapubic tube pulled out... Now what?

    So... an unfortunate little thing just happened! As usual, my balls felt like I was sitting on them, so I decided to reach under and try to pull them out. In a moment of sheer stupidity, I must have...
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    Great advice throughout here, thank you all.

    Great advice throughout here, thank you all.
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    Thanks for the tip. Clearly I'd prefer to see a...

    Thanks for the tip. Clearly I'd prefer to see a doctor, but it's a bit of an arduous process to make that happen and I was hoping I could do something in the meantime to help. Still new to this world...
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    Bleeding from digital stimulation

    I have a caretaker help with my bowel program by performing digital stimulation and disimpaction. This morning she told me that i was bleeding significantly after she performed dig stim, and I have...
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    I've used the Deroyal tube holder before. It...

    I've used the Deroyal tube holder before. It doesn't last as long as the Bard, but it's cheap and uses Velcro that won't come undone when you roll on it. The Bard pops open all the time if you have a...
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    I've had one of these for the last ten months or...

    I've had one of these for the last ten months or so. I don't use it all that much, but when I do it seems to have some kind of effect. Nothing outrageous, it certainly isn't life changing, but...
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    Great to hear - best possible outcome!

    Great to hear - best possible outcome!
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    314

    Perfect context. Where on the disc do you store...

    Perfect context. Where on the disc do you store your MP3s? I'm wondering if it might be a permissions issue (e.g. the location is now effectively hidden in a secure user account). Any trouble seeing...
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    It would be helpful to know what operating system...

    It would be helpful to know what operating system and playback software you were using on the prior computer, as well as how you imported the mp3s into that software and if possible how the hard disk...
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    We got cameras for several rooms in the house...

    We got cameras for several rooms in the house when I first returned from the hospital. We didn't know what to expect with caregivers, and wanted to be on the safe side. Turns out we haven't had any...
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    Too much bowel management?

    I've spent the last year or so since discharging from post-SCI rehab toying with medications and supplements trying to get my bowel program under control. Good news is that I'm now getting a good...
  19. Oh wow, this is terrific. Thank you so much for...

    Oh wow, this is terrific. Thank you so much for the insight! I've been holding off on these until I feel like I really understand what's needed, but as I get closer to feeling comfortable I'll...
  20. Thank you. I have a Udrink and find it really...

    Thank you. I have a Udrink and find it really handy as something I can bring out to restaurants and bars and never worry about whether or not I'll be able to drink something. We stitched a D-ring...
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    How is it for transfers? Looks like it might be a...

    How is it for transfers? Looks like it might be a little unstable to push on. Of course, Roho isn't brilliant in that aspect either.
  22. June 2018 - I had to fly to Mayo late spring so I...

    June 2018 - I had to fly to Mayo late spring so I could start <1 year out.
  23. Not sure about 7 years. My understanding is this...

    Not sure about 7 years. My understanding is this is a 96 week trial. I had some extensive discussions with the team earlier this year in hopes of becoming number 10 on the trial, but unfortunately...
  24. Thread: Video Input

    by ejl10
    Replies
    6
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    746

    Difficult to say since the photo comes up a...

    Difficult to say since the photo comes up a little blurry on my phone, but that looks more like a USB port than HDMI. If you have USB and HDMI cables to test, try plugging them in and see if they...
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    Saw this online yesterday; looks like a great...

    Saw this online yesterday; looks like a great idea.
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