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  1. Send me an email. mattbigos @ earthlink.net

    Send me an email. mattbigos @ earthlink.net
  2. I agree with you on some of this. Having been on...

    I agree with you on some of this. Having been on and tried most any med out there, I think 4-ap should be a go to before most of the others. The rest you listed are much worse and do little in my...
  3. Thanks! I have. It's been a VERY long road....

    Thanks! I have. It's been a VERY long road. I've explored pretty much every road out there. I am still chasing what most would call a "cure", for me nothing is enough. Which I've often called a...
  4. https://www.ncbi.nlm.nih.gov/pubmed/27861125 ...

    https://www.ncbi.nlm.nih.gov/pubmed/27861125

    Came across that a week or two ago. I've been taking 4-ap for about two years now. I have a high level of function, full time walking, semi...
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    ? for Wise, RE: RGN-352

    Wise, curios if anyone has done any research with RGN-352 and stem cells injected into the cord? Similar to using lithium to help the cells, I would think it would help them grow as well. Or is there...
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    Depending on your level and severity of injury,...

    Depending on your level and severity of injury, it can be very helpful. I was an incomplete injury at T4. I took part in a clinical trial that last 4 months, it started about 9 months post injury. ...
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    I was not injected at my injury level. It was...

    I was not injected at my injury level. It was much lower, L5-S1. That was a guess by Neurpod. He has seen my MRI films and seen the damage to my cord.

    I am done with posting anything on this...
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    "Should people go and pay for a therapy that...

    "Should people go and pay for a therapy that works only in 1 out of 20 patients or even 1 out of 5 people?"

    Those odds are fine with me. They are better then anything else on the market at this...
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    Thats fine. You go ahead and sit around in your...

    Thats fine. You go ahead and sit around in your chair and wait for a cure to come along. Don't worry about trying anything, it will just happen all on its own.
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    Really? Thats all you've got? Huh. Well, I...

    Really? Thats all you've got? Huh. Well, I guess all the other doctors are doing so great with clinical trials. Who's doing anything different right now? Or, am I supposed to believe that because...
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    My trip to X-Cell.......

    So, I am coming up on 12 weeks post surgery.

    A few of you might know my story, most probably don't. I am 7 years post injury. Originally T-4 complete injury, thats what the great folks at...
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    How long did it take for you to get in? I sent...

    How long did it take for you to get in? I sent all my paperwork over a little over a week ago and am interested in how long it took from the time they sent your paperwork over till you got a...
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    Wise, Remyelination with acorda?

    http://www.acorda.com/pipeline_remyelination.asp

    Any more info on this out there?
  14. Thread: Ampyra?

    by matt414
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    Well, just an update. I have pretty minimal...

    Well, just an update. I have pretty minimal insurance. And I am pretty sure they wont cover this. But, I did call the ampyra call line today. They said that they wont help with cost if you don't...
  15. Thread: Ampyra?

    by matt414
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    Ampyra?

    So with seeing that 4-ap is now ampyra and now FDA approved and ready for market in the near future. I started looking into cost. From what I can find, its looking like $1,000 US a month. I tried...
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    Thanks for the kind words. I still post on...

    Thanks for the kind words. I still post on occasion, try to limit my time on the computer though.

    www.mattbigos.com has some more info on it about me, as well as a copy of the article.
  17. Thread: Hp-184?

    by matt414
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    Hp-184?

    Whats the latest on HP-184? I've been away from the research side of things for a year or two now. Haven't been able to find anything on it. Can a doctor give a script for it now like 4-ap? Or...
  18. Couple questions for you guys on here. What...

    Couple questions for you guys on here. What about HGH? Or RGF-1? HGH would possibly be able to some nerve regrowth. And RGF-1 is basically the chemical that your body uses for new tissue growth...
  19. Thread: Another 4-ap?

    by matt414
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    I was taking 25mg a day. 5mg each time. What...

    I was taking 25mg a day. 5mg each time. What dosage is the time release that your taking?
  20. Thread: Another 4-ap?

    by matt414
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    Another 4-ap?

    I did some looking, but can't find the answer for sure. I took 4-ap a few years ago and had good results with it. Taking a pill 5x's a day just go to be too much for me. I struggle to take a pill...
  21. Thread: Help Pick.....

    by matt414
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    Help Pick.....

    Okay real quick background. T4 Incomplete, 44 months post. I've reoverd about 85% or so, some say more. Anyhow, I am currently running, not how I want. But I run. My big prolbem is my gait is...
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    I tighten up. Usually, what happens, is my right...

    I tighten up. Usually, what happens, is my right leg gets tight. Mostly I think its the front side of my shin. And I can't pick my toes up. But, I started doing some plyo work, and spending time...
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    I've seen that video before and its amazing. How...

    I've seen that video before and its amazing. How long was she there for to regain that kind of movement? My big thing is not strength, but rather it seems to be a nerve issue with the muscle. I am...
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    Gait training centers????

    Okay, so I've already done a loco-motor training program. I walk great. My walking speed is around 3.8 mph. I want more. I can run now, up to about 8.5 mph. But, my gait is pretty funky when I...
  25. Thread: Steroids

    by matt414
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    I'll probably be on it for about 3 more months. ...

    I'll probably be on it for about 3 more months. Then take about a 2-3 month break. I wouldn't try test. I would go with something lighter. Maybe, winostrol (sp?), TEST scares me. I work as a...
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