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Type: Posts; User: Tanglewood

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  1. Replies
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    do you guys know if a skin level revision is a...

    do you guys know if a skin level revision is a big operation?
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    Unfortunately, when the channel narrows, even a...

    Unfortunately, when the channel narrows, even a 12 doesn't fit. I have to go down to a 10, and emptying with a 10 is a massive pain in the arse because it takes so long.
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    My surgeon works in a specialist hospital and has...

    My surgeon works in a specialist hospital and has a lot of experience with mitrofanoffs. The channel doesn't leak. It just narrows at the opening. The operation is a skin-level revision. I don't...
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    Anyone?

    Anyone?
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    Mitrofanoff Stoma Revision

    Hi all. I've had a mitrofanoff stoma for about a year. Unfortunately, the channel narrows at the opening and needs a surface revision. I wear an ACE Stopper to keep the channel open and if I take...
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    Actually, I have one further question. Does...

    Actually, I have one further question. Does repairing the port opening require a surgery under general anaesthetic or can it be done under a local? And is it a large operation? Many thanks.
    ...
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    Thanks. I'll get in touch with him tomorrow.

    Thanks. I'll get in touch with him tomorrow.
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    My Mitrofanoff keeps shrinking!

    Ever since I had a mitrofanoff channel put in a couple of months ago, I've had the same problem. The channel shrinks until (a) the opening looks considerably smaller and (b) it becomes difficult to...
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    Mitrofanoff care - ACE Stoppers

    Hi all,

    I've recently gotten a mitrofanoff channel and I'm having a little problem with it. It seems to me that the channel always wants to close up. For instance, I taped a catheter in for a...
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    Mitrofanoff discharge

    I've just come out of hospital and I've had a Mitrofanoff (no augmentation). I've 2 catheters (one SPC and one mitro) and I've noticed quite large amounts of discharge from the SPC site. It's a...
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    Thanks. In your opinion, would you class a...

    Thanks. In your opinion, would you class a mitrofanoff without bladder augmentation as intermediate or major surgery?
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    That's good to hear guys. Thanks. Did you guys...

    That's good to hear guys. Thanks. Did you guys have the bladder augmentation as well, or just the mitrofanoff channel?
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    Getting mitrofanoff. Scared!

    Hi all. I don't have an SCI but I have a longstanding bladder problem which means I need to get a mitrofanoff and I think this is the best resource I've found for mitrofanoff patients so I hope you...
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    Due for a mitrofanoff, a bit nervous!

    Hi all,

    I'm due to have a Mitrofanoff in a little while and I'm just wondering what I can expect to experience after the operation. I'm not scheduled to have any kind of bladder reconstruction or...
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