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  1. Replies
    6
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    1,218

    Dear Jim, It would be nice if you could listen...

    Dear Jim,

    It would be nice if you could listen to the speakers from abroad. Is this possible?
  2. Replies
    20
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    3,769

    I'll think about it.

    I'll think about it.
  3. Congratulations for this achievement!!

    Congratulations for this achievement!!
  4. Replies
    20
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    3,769

    Why are you selling it? What's its new price?

    Why are you selling it? What's its new price?
  5. Replies
    4
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    1,119

    It has been a long time that I posted a message...

    It has been a long time that I posted a message on this form, but I regularly follow the news here...
    I also experience unilateral AD symptoms without elevated BP. It is difficult to explain it to...
  6. fine-needle aspiration and autonomic dysreflexia

    Hello all,
    As a person with a spinal cord injury (c2), I now have an ovarian cyst which is going to be removed by transabdominal (fine-needle) aspiration of the cyst fluid. Could the procedure...
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    3
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    929

    Diagnosing syringomyelia

    Hi,

    How can syringomyelia be diagnosed without taking a MRI-scan?

    (Searching for a cause of my autnomic dysreflexia...I don't have change in movement, sensation or pain. I only have inceased AD...
  8. Replies
    19
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    11,314

    Hi delbarto, I have a c1-c2 SCI and I also had...

    Hi delbarto,

    I have a c1-c2 SCI and I also had one kidney removed a couple of years ago. It didn't make a difference in my life. However, history repeated itself and I lost a second kidney. I'm 5...
  9. Replies
    5
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    2,637

    The ROM or moving my legs makes the AD better....

    The ROM or moving my legs makes the AD better. The AD systoms includes elevated blood pressure, sweating, itching and a kind of tingling feeling on parts of my face and head. The high blood pressure...
  10. Replies
    5
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    2,637

    Autonomic Dysreflexia

    Hi all,

    I have a C1-C2 SCI, I had a bilateral nephrectomy and I am on dialysis now.
    For the last few weeks I experience episodes of mild autonomic dysreflexia, sometimes lasting for hours. We...
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    733

    AD question for nurse

    Hello,

    Is autonomic dysreflexia always accompanied with severe hypertension or can you have AD without the headache and without a significant rise in blood pressure but just the other symptoms. I...
  12. Replies
    2
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    855

    Yes, you are right, it was 230/140 instead of...

    Yes, you are right, it was 230/140 instead of 23/14

    You are also right that AD management was poor. Although it was discussed in advance we ended with the AD management plan: ‘Wait and see what...
  13. Replies
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    855

    again a question about AD

    Hi all,
    I had an attack of autonomic dysreflexia (BP 23/14) after a surgical procedure on Friday. Blood pressure has stabilized now but I still have the headache. Is this normal for autonomic...
  14. Replies
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    2,115

    I’m not a doctor so I can’t give you any...

    I’m not a doctor so I can’t give you any advice of what is going on but I’m a c1-c2 on dialysis, so I can tell you my experiences with dialysis. Feel free to ask if you need some information.
    ...
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    18,098

    What a strange way of weaning off the ventilator....

    What a strange way of weaning off the ventilator. Here in Belgium, you have to stay under the supervision of a respiratory therapist during the weaning process. It’s not about records here, it’s...
  16. Replies
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    43,740

    live with a c1-c2 injury

    Hi Orangejello,
    I have a c1-c2 SCI, breathing with a diaphragm pacemaker 24/24. I was on a vent before the implant of the phrenic nerve stimulator. It takes time to get used to a cuffless trach but...
  17. Thread: AD and Toprol-xl

    by RH_DH
    Replies
    2
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    2,188

    Beta-blockers and AD

    hi,
    I have tried several drugs to control high blood pressure (dialysis related) and none of them reduces the symptoms of autonomic dysreflexia. I now use a beta-blocker, (Emconcor...
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    Thanks for your answers ! Lizbv, I’m doing...

    Thanks for your answers !

    Lizbv, I’m doing Hemo (with a catheter), Peritoneal dialysis is not an option because of the phrenic nerve pacer. I was on a vent the first 6 months after my accident....
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    1,916

    Wise, I'm the one who should be honored to know...

    Wise,
    I'm the one who should be honored to know you and I am. I'm very respectful for you and your work, it gives hope for the future!
    rh
  20. Replies
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    1,916

    AD and transplant kidney

    Hi all,
    Because of a resistance for antibiotics, I had a bilateral nephrectomy and need dialysis. I’m on the waiting list for a kidney transplant at the moment. When searching for information, I...
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    4,736

    Indeed, if you can’t transfer, you can’t fly....

    Indeed, if you can’t transfer, you can’t fly. If you can transfer but you can’t sit in a ‘normal’ passenger seat you can use a stretcher but you’ll pay 6 to 9 times the ticket price,...
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    6,995

    Yes, I lost my kidneys. I had a kidney infection...

    Yes, I lost my kidneys. I had a kidney infection with a completely resistant pseudomonas. The infection became uncontrollable and the only thing they could do was removing the kidney. It happened to...
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    6,995

    Like Lynnifer said, it’s a tough strand to...

    Like Lynnifer said, it’s a tough strand to break with antibiotics and it becomes quickly resistant. Once the stone is infected with pseudomonas, you will have recurrent UTI’s, the stone will...
  24. Thread: urostomy surgery

    by RH_DH
    Replies
    12
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    2,204

    I had an urostomy because of recurrent UTI's and...

    I had an urostomy because of recurrent UTI's and a SP which had to be changed almost every day. It was a temporary solution for me, the UTI's stayed away for almost one year. However other urological...
  25. Thread: renal dialysis

    by RH_DH
    Replies
    4
    Views
    1,290

    kidny=kidney

    kidny=kidney
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