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Type: Posts; User: msummer99

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  1. Replies
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    I had the same thing after my mitrofanoff. It was...

    I had the same thing after my mitrofanoff. It was bad the first few months, off and on for the first few years post op. It does get better. The surgery is worth it- it makes life SO much easier!
  2. Get it taken care of ASAP before you get really...

    Get it taken care of ASAP before you get really sick.
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    54,389

    The worst thing anyone can say is a sentence with...

    The worst thing anyone can say is a sentence with the word 'inspirational' in it.

    I hate when people offer to help and then get all pissed when I say no thanks. Like when I'm disassembling my...
  4. Yep. Several of my female friends w/ SCI have...

    Yep. Several of my female friends w/ SCI have trolls on their friends list.
  5. Thread: Surgery....

    by msummer99
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    1,189

    From what I remember, the bowel prep was not fun,...

    From what I remember, the bowel prep was not fun, and I was in a lot of pain after surgery. I was also one of the few lucky people who had bowel issues for a years after the augmentation. I think I...
  6. Thread: Surgery....

    by msummer99
    Replies
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    1,189

    The surgery sucks and is not a fun recovery at...

    The surgery sucks and is not a fun recovery at all, but it is SO worth it. I had mine done when I was a teenager. Had the mitrofanoff for 7 years and it still works fine. Good luck!
  7. Never thought about the abilities expos like...

    Never thought about the abilities expos like that...damn. And I thought they were kinda neat with all the adapted equipment to check out *facepalm*

    Why do people have to be so fucking creepy and...
  8. Replies
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    Make sure to also stock up on hand warmers just...

    Make sure to also stock up on hand warmers just in case! Those things are life savers! You can find them pretty much anywhere, walgreens, walmart, fred meyer, etc. Good luck.
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    When I had my stones the pain would come and go...

    When I had my stones the pain would come and go in waves. So yes, that sounds like kidney stone pain.
  10. Thread: I'm Done

    by msummer99
    Replies
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    3,217

    That stinks. I was fitted for & picked out the...

    That stinks. I was fitted for & picked out the model for my new chair in the beginning of october, it arrived the day after christmas.
  11. Thread: Kidney stent

    by msummer99
    Replies
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    1,522

    Thanks all, I was admitted through the ER and am...

    Thanks all, I was admitted through the ER and am still in the hospital. @airart, you're having the same issues?
  12. Thread: Kidney stent

    by msummer99
    Replies
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    1,522

    ER it is, my doctor is having me go in. And no...

    ER it is, my doctor is having me go in. And no surgery to remove the stone tomorrow as cultures came back positive. =/
  13. Thread: Kidney stent

    by msummer99
    Replies
    6
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    1,522

    Yes to ABX, I'm on oral cipro 2x daily, was on IV...

    Yes to ABX, I'm on oral cipro 2x daily, was on IV cipro when I was in the hospital. Urine starts out clear-ish, but then turns red and looks like the color of cranberry juice.
  14. Thread: Kidney stent

    by msummer99
    Replies
    6
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    1,522

    Kidney stent

    I've been diagnosed with a 4mm stone in my L kidney, my urologist put a stent in on tuesday to help my kidney drain for a few days before stone removal (I have an infection, so no removal til that's...
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    I'm not entirely sure what a mitrof pouch is...is...

    I'm not entirely sure what a mitrof pouch is...is it the same thing as a mitrofanoff?

    As for the botox pain, I usually have bladder pain for a week or so after I get the injections in my bladder....
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    I was on 1200 3x/day for about 5 years and that...

    I was on 1200 3x/day for about 5 years and that stuff wrecked my teeth. I have fillings on every molar, have had 3 root canals. My teeth are really stained. I'm 25yrs and brush my teeth at least...
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    Magic bullet! Also make sure you're drinking lots...

    Magic bullet! Also make sure you're drinking lots of water and eating enough fiber.
  18. Thread: Push gloves

    by msummer99
    Replies
    0
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    554

    Push gloves

    I'm looking for a new pair of d-ring push gloves and can't find any that don't cost a fortune. I REALLY like the gloves for life gloves (my previous pair were very similar) but can't afford the $75....
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    Donating old equipment

    I just got a new wheelchair so I am now looking to donate the old one. Does anyone know of any organizations that will accept used equipment and refurbish it for someone in need? I'm in the Chicago...
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    My guess is that you're having increased...

    My guess is that you're having increased spasticity due to the pain from the injections. Botox usually takes 3-4 weeks or so to kick in. Have you called your doctor?
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    Before folding it.

    Before folding it.
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    913

    e-motion wheels help!

    I just got a new chair (tilite aero z) with e-motion wheels. I love it BUT have a really hard time getting the e-motion wheels off of the frame to collapse the chair and get it in my car. By really...
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    Even though I had stomach issues, the mitrofanoff...

    Even though I had stomach issues, the mitrofanoff was worth it. I can't speak the same for the augmentation, but I looooove my mitrofanoff.
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    Yes, I'm happy. I don't like the big old scar,...

    Yes, I'm happy. I don't like the big old scar, but it works just fine. Dr. Kielb didn't do my surgery because I was still seeing my pediatric urologist at the time. She hasn't done surgery on me yet,...
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    One word: horrible. I had pretty much...

    One word: horrible. I had pretty much uncontrollable diarrhea for two months, including accidents that I never had before. It continued for about 2 years post-op, but not as frequently.
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