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Type: Posts; User: kelpa123

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  1. Replies
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    We have been told that struvite stones are often...

    We have been told that struvite stones are often full of bacteria, which is why shattering them is not a good idea. Jim has had recurrent struvite stones. Had one kidney removed 40 years ago for a...
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    Ellyn - How frightening! I don't have any...

    Ellyn - How frightening! I don't have any particular advice. Your husband sound like mine, in that he'd consider it a success to talk them out of taking him to the hospital. Jim fell out of his...
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    I paid 4.29 a gallon yesterday in Minneapolis. ...

    I paid 4.29 a gallon yesterday in Minneapolis. Crazy!
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    Obie - It is so good to hear from you! I've been...

    Obie - It is so good to hear from you! I've been thinking about you and your family, with the suddenness of this loss. Those are good words of reminder for all of us! Know that we still hold you in...
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    You were the first one that reached out to...

    You were the first one that reached out to welcome me in the Caregivers Forum. Bill was in the midst of serious skin issues at the time and I immediately felt our stories had a connection.

    I'm...
  6. I echo what EUCrach85 said. I'm in school now...

    I echo what EUCrach85 said. I'm in school now for healthcare education and recently came across information on the "domains of learning". Some education is in the psychomotor domain which includes...
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    Merry Christmas, Obie! I enjoyed the videos you...

    Merry Christmas, Obie! I enjoyed the videos you shared!
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    We live in MN, so this can be a perpetual problem...

    We live in MN, so this can be a perpetual problem for about 9 months of the year. Jim sleeps with several layers of blanket on and a towel over his head. When he's up in his chair (at home) he will...
  9. A couple things to know about Medicare coverage...

    A couple things to know about Medicare coverage is that to qualify for home care you need to be "home bound". This means you are able to leave the home only for medical appointments or church. The...
  10. Very interesting! It will be a very costly...

    Very interesting! It will be a very costly decision but it would be a big help for many!
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    Been there done that! It's so great to have a...

    Been there done that! It's so great to have a place where others know the experience and can see the bright side, too!

    I struggled with insomnia for quite awhile until my nurse practitioner...
  12. Thread: Sleep habits

    by kelpa123
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    3,628

    Our evening routine is the quick one: - Jim does...

    Our evening routine is the quick one:
    - Jim does a SB transfer into bed.
    - I get him undressed and switch out the legbag for night drainage bag. (He has an ileal conduit).
    - Hook up his CPAP and...
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    Glad to hear he's improving! Sent some prayers as...

    Glad to hear he's improving! Sent some prayers as added insurance.
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    Accessible Space Incorporated (ASI) has supported...

    Accessible Space Incorporated (ASI) has supported independent living in Minnesota. I also know that they have accessible facilities in several other states but don't know about the arrangement for...
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    Jim was on low dose valium for about 15 years...

    Jim was on low dose valium for about 15 years after his accident ('70's and '80's). When he weaned off it he was like a different person. He had opinions on topics that I never realized! Valium...
  16. Lovely! I've been a wife/caregiver for 32 years....

    Lovely! I've been a wife/caregiver for 32 years. My husbands injury is at the same level. It IS and adventure!
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    GJ- The faucet hasn't been connected yet so...

    GJ- The faucet hasn't been connected yet so that's why the plastic tub is there. I love your ideas and am going to see if we can make the panel work without Jim's knees bumping into it.
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    Kitchen sink cut-out ideas

    We are just about finished with renovations to our kitchen. The cabinets are darker than before so the plumbing etc under the sink seems more noticeable. Thinking about making a curtain, but want...
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    My husbands diving accident was on July 12, 1969....

    My husbands diving accident was on July 12, 1969. I just asked him if he even thought about it yesterday, and he did not. Life goes on...
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    We get up at 5 am during the work-week, and it's...

    We get up at 5 am during the work-week, and it's a 2 hour routine to get both of us ready for work. Jim does a bowel program every morning followed by a shower. I need to do that BP but he showers...
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    Unless you are a very high quad, you should be...

    Unless you are a very high quad, you should be able to develop a plan for the type of problems that typically occur. My husband has a C5-6 SCI and even the few times he's been on bedrest, I've been...
  22. Thanks!

    Thanks - I'll take a look at it. The facility in question is a hospital, not a nursing home but there may still be some applications.
  23. Video recommendation re. patient experience

    In my home life I'm a spouse and caregiver for my husband with a SCI. In my work life I am a nurse educator for a four hospital health system. We have an LTACH (long term acute care hospital) and...
  24. I once asked my husband (C5-6 SCI) if the...

    I once asked my husband (C5-6 SCI) if the situation was reversed, would he be able to be my caregiver. He wasn't sure. Not everyone can do it because loving someone a lot is just not enough.
  25. hlh - you raise a good point about the impact on...

    hlh - you raise a good point about the impact on caregivers to have a threat of suicide to deal with. It feels manipulative to me, and I'd be very angry if my husband were to threaten this. My...
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