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  1. Replies
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    Hmm thanks everyone! I'll keep an eye on it, we...

    Hmm thanks everyone! I'll keep an eye on it, we just started doing walking overground and I just notice it when doing that.
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    Maybe, I just wasn't sure because I always...

    Maybe, I just wasn't sure because I always assumed the extensor at the knee is a spasm, and flexor at the elbow, but not flexing of the knee, and it's new.
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    Walking - Resisting extension

    I am use to my son having a knee extension that I break gently when I do steps with him. Recently, when I move his leg forward to step, he sometimes resists extending his knee. What could that be?
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    We did go to Holland Bloorview, but the support...

    We did go to Holland Bloorview, but the support we have with them for PT/OT is done now.

    I did reach out to our coordinator at SCI Ontario and waiting for response.

    I am sort of set on...
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    We thoughts about OHIP, but because the treatment...

    We thoughts about OHIP, but because the treatment is technically offered here (rehab) they won't cover it. It's more for surgeries and cancer treatment type situations that are not offered in...
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    Yes, we have gone there and are going again for...

    Yes, we have gone there and are going again for two weeks. They are fantastic but the problem is they only provide one therapist at a time, which makes it hard to do locomotive training, and they...
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    Sticky: That's so exciting! Do you use any devices to...

    That's so exciting! Do you use any devices to walk? Noah is still in full harness support, but this new movement is very exciting. Plus he is 2, not exactly an ideal age to ask him to try harder...
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    Funding for PT in Canada for 2.5 year old

    We currently do not have any PT support in Canada, nor does insurance cover it. We also do not have a place that specializes in SCI in kids.

    I want to take my son to Frazier Institute in...
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    My 2.5 year old is two year post Injury, in...

    My 2.5 year old is two year post Injury, in December we started seeing him move his legs in stepping motion on the treadmill, he takes a few steps then I do a few steps for him. This is totally new...
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    Sticky: There have been studies done, that with intense...

    There have been studies done, that with intense locomotive training the central pattern generator kicks in, which allows the person to walk, turn and stop, without a change in their lower extremities...
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    Aren't there a lot of credible research studies...

    Aren't there a lot of credible research studies involving stem cells recruiting right now? Would that not also be an option instead of all this sketchiness?
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    Yes. He had cancer in spinal cord at 5 months.

    Yes. He had cancer in spinal cord at 5 months.
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    okay but why this specific age, why not include...

    okay but why this specific age, why not include younger? I'm asking because my son is now 2.5 years.
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    Right, but it also states minimum age for the...

    Right, but it also states minimum age for the underage group, and I'm wondering why and if there will exceptions?
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    What about younger children. For a later program?...

    What about younger children. For a later program? Why is the cutoff at 7 years?
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    Recovery of stepping motion

    Anyone have information on how the stepping motion controlled by spinal cord looks like, or research and articles about it?

    ive been doing suspended treadmill walking with my son. I move his legs...
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    So, really, nothing helps.

    So, really, nothing helps.
  18. Reeve Big idea - FDA approved for clinical trials!

    Sign up if you can! Looks promising!

    http://reevebigidea.org/
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    the Transcutaneous Stimulation device, do you...

    the Transcutaneous Stimulation device, do you know what it does or how it works? Is there any data on it out yet?
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    we already do estim at home :) ive just been...

    we already do estim at home :)

    ive just been reading about the stimulation of the spinal cord through the skin in recent research studies and how it has produced voluntary movement. I'm wondering...
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    Thanks, the one without surgery, how is that...

    Thanks, the one without surgery, how is that different than the regular estim device?
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    Transcutaneous Stimulation

    I've seen posts about this for stimulating the spinal cord, without surgery, and it leading to some voluntary movements.

    how does this differ from e-stim?
    are there any devices for home use?
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    Sticky: Any updates on FDA approval for trial? Word is,...

    Any updates on FDA approval for trial? Word is, Wise is too optimistic about this happening...
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    Activities for young ones (Toronto, Ontario)

    Any suggestions for what I can get my two year old, in a wheelchair, involved with?

    i would appreciate direct links or names to specific things as google hasn't been helpful to find things in my...
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    Private insurance - canada

    I'm wondering if anyone knows best private insurance we can get that would cover cath equipment and other equipment for our son?

    my husband will be working foe a start up and the company does not...
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