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  1. thanks for the article

    thanks for the article
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    bollefen Glad to see you are still posting and...

    bollefen

    Glad to see you are still posting and also glad Grange started this particular thread. I continue to feel that there is no adequate treatement for fully elaborated central pain and that...
  3. Hello Ry Are you sure it is not dibucaine?

    Hello Ry

    Are you sure it is not dibucaine?
  4. This thread shows the deficiency in texts. It...

    This thread shows the deficiency in texts. It should not be necessary at this late date, with animal models galore, and capsaicin injections to inform doctors that central pain exists. The authors of...
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    Many thanks to David Berg, SCI, and the others...

    Many thanks to David Berg, SCI, and the others who suggested possible sources for silk shirts. Got a bit of sticker shock with Tommy Bahama, they wanted $150 dollars for one shirt. David's source was...
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    Freespin Once again, you are doing a very good...

    Freespin

    Once again, you are doing a very good job of description. All the steps you mention about clothing are very famliar to anyone with severe burning dysesthesia, which is the burning pain...
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    ket Decades for me. But after a while, time...

    ket

    Decades for me. But after a while, time mushes. That other life and that other identity almost does not exist. Pain too overpowering.
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    SCI That sounds very familiar. Silk is the...

    SCI

    That sounds very familiar. Silk is the thing. Bare is even better. Where did you find silk. I can only find it in the women's section. Dillards used to sell a line, but that has gone to cotton...
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    Bollefen I am so sorry you are going through...

    Bollefen

    I am so sorry you are going through this constantly. Painful to read. Hope you have some strength left.
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    Freespin Thank you so much for describing the...

    Freespin

    Thank you so much for describing the burning, AND the lightning (lancinating) pains. This is classic central pain. Those who cannot tolerate clothing are said to be suffering SEVERE...
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    freespin I am trying to post but may be...

    freespin

    I am trying to post but may be duplicative. Would you please describe what the touch of clothing is like for you. How about sheets and bedcovers?
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    rim Come on. Don't tell Eurach her pain is...

    rim

    Come on. Don't tell Eurach her pain is mental. We get that enough. Central pain is not mental at all. You can recreate the burning component by injecting capsaicin which acts at the same ion...
  13. I am sorry you have not had a good experience...

    I am sorry you have not had a good experience with certain neurologists. It is not all their fault as I hope the following may point out.

    Please permit me a comment on what would ensure better...
  14. It is also possible for a neurologist not to know...

    It is also possible for a neurologist not to know about Central Pain. Adams and Victor, the leading neurology text does not (last edition I read) mention Central Pain by name. Why should a...
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    Arndog See PM

    Arndog

    See PM
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    Alan Nothing to say that hasn't been said, but...

    Alan

    Nothing to say that hasn't been said, but WOW, 33 years?
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    Bollefen And in this corner, the new world...

    Bollefen

    And in this corner, the new world pain champion KET, who can be defeated only by himself. Sure hope things work out and that you are too weak to defeat yourself. :-)

    Thanks for the...
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    Bollefen I think of you often and appreciate...

    Bollefen

    I think of you often and appreciate your posts because you tell it like it is. Somehow that helps.

    Can you tell me more about the SuperMRIs at UCSF. What are they seeing? Do you have a...
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    ECUrach85 Nice to see your smile, but sad to...

    ECUrach85

    Nice to see your smile, but sad to hear of your pain.

    I feel differently from some here. I do not think you have a bad attitude.

    The fact that you hurt in the morning suggests...
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    Bollefen Oh man. I hate to hear of what is...

    Bollefen

    Oh man. I hate to hear of what is happening to you. I will try a little comment.

    I could be wrong, but I think extreme skill in spinal surgery is not all that common. Several people...
  21. Thread: Back pain

    by dejerine
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    Rybread, It almost sounds like the only thing...

    Rybread,

    It almost sounds like the only thing you have going for you is your brain, and that is a pretty good one. I always enjoy (focus on) your posts. I think you are about as positive in...
  22. Hello Corey By DBS do you mean deep brain...

    Hello Corey

    By DBS do you mean deep brain stimulation? The location of pain is in the post central gyrus or S1. The significance of pain is in parietal S2 elsewhere and the painfulness of pain is...
  23. Thread: Deviceomania

    by dejerine
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    Bollefen I don't want you to think anything...

    Bollefen

    I don't want you to think anything posted here is medical advice. It is not. Obviously I do not know the details of your condition and am not a professional and so cannot comment beyond...
  24. Thread: Deviceomania

    by dejerine
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    Jon, I am not familiar with full dose ketamine...

    Jon,

    I am not familiar with full dose ketamine infusion for central pain, but thank you for the note. Are you in possession of any references?

    I did have something similar done with other...
  25. Thread: Deviceomania

    by dejerine
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    Alan It makes me cringe to read of your...

    Alan

    It makes me cringe to read of your condition. I might note that Central Pain in me does in fact go up to the top of my head. Complete deprival of any area of the body whatsoever of normal...
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