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Type: Posts; User: annev308

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  1. Replies
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    I have an umbrella on my chair because (total 1st...

    I have an umbrella on my chair because (total 1st world problem/solution, I know) it makes it possible for me to read outside in the sun without glare.

    There is a weird little setup on my...
  2. I had multidrug resistant pseudomonas for 6...

    I had multidrug resistant pseudomonas for 6 years. I spent at least 14 months on IV antibiotics to “manage” the infection -no one ever encouraged me to think we might be rid of it. It was basically...
  3. Thread: stones

    by annev308
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    692

    I have a history of kidney stones and was told to...

    I have a history of kidney stones and was told to avoid black tea because it has high levels of oxalate, which contributes to the formation of one of the most common types of stones. Your urologist...
  4. Gentamicin/tobramycin instillation articles: ...

    Gentamicin/tobramycin instillation articles:

    This is Canadian Urological Assoc study re: gentamicin instillation - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5798439/

    Lit review of...
  5. I am now doing gentamicin bladder flushes. Local...

    I am now doing gentamicin bladder flushes. Local urology and infectious disease had never heard of such a thing - they were startled to be handed a stack of peer-reviewed research indicating they...
  6. I had three prolonged hospitalizations for full...

    I had three prolonged hospitalizations for full blown sepsis from multidrug resistant UTIs this spring and summer and spent close to 15 weeks on IV antibiotics at home. It was miserable and I am...
  7. If you use a catheter, you’re going to wind up...

    If you use a catheter, you’re going to wind up with bacteria living in your bladder. Those bacteria are probably responsible for the mucus/biofilm you see when you cath. Unless you are symptomatic -...
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    I take Renew Life Ultimate Flora and also drink...

    I take Renew Life Ultimate Flora and also drink kombucha and eat yogurt. When I’m on antibiotics I double or triple up on the antibiotics.
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    I thought the guidelines changed and now they can...

    I thought the guidelines changed and now they can do MRIs with some types of stimulators?

    it does sound like a syrinx or tethering (scar tissue) or possibly both, but you would imaging to know for...
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    I only buy unlocked phones and I’ve never had...

    I only buy unlocked phones and I’ve never had trouble setting up WiFi. Some vendors sell phones unlocked by default, some make you pay a fee to unlock and with some it depends on how you bought the...
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    Will your doctor call in labs prior to the...

    Will your doctor call in labs prior to the appointment? That way you could go and see the doctor once the labs are in.
  12. I had a tbi with my SCI and it was/is pretty...

    I had a tbi with my SCI and it was/is pretty grim. It’s worth finding a neuropsychologist (many focus on autism and adhd, so it can a challenge to find someone who works with adult TBI folks) for an...
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    I got it in the ICU after my initial injury. The...

    I got it in the ICU after my initial injury. The strain I had had the binary toxin, was resistant to flagyl and moderately susceptible to vanco, which is why I was on the vanco for so long. The...
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    I am so pleased it worked for you! That is...

    I am so pleased it worked for you! That is entirely the opposite of my experience, and this is one of those things where I greatly prefer to be the outlier.
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    Just as a heads up - if you reach out to the...

    Just as a heads up - if you reach out to the reeves foundation address for help with this whole ordering fiasco, they will send you a new order link which (surprise!) also will not work. I have...
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    PCR is Polymerase Chain Reaction - it shows tiny...

    PCR is Polymerase Chain Reaction - it shows tiny segments of DNA, and is one of the ways they test for c diff and determine what type it is. So my test results mean there is neither c diff toxin nor...
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    I spent 18 months on oral vanco for c diff. It...

    I spent 18 months on oral vanco for c diff. It started as a standard six week vanco taper and then every time something happened and I was off the vanco, the c diff recurred - thus the long long...
  18. Thread: Books?

    by annev308
    Replies
    5
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    587

    The library of Congress daisy sign up is really...

    The library of Congress daisy sign up is really easy - it’s a form and a physician sign off, someone did it for me when I was first hurt and couldn’t use my arms - just be aware it’s about 95%...
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    Basically, Google does not support this...

    Basically, Google does not support this promotion. They don’t know anything about it and there is absolutely no internal support or awareness of this. They have no idea what is going on. If your...
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    Mine was also canceled. I spent 2+ hours on the...

    Mine was also canceled. I spent 2+ hours on the phone with google support, where they say they have no record of the promotion. I wound up emailing the Reece foundation, where someone is trying to...
  21. Thread: Books?

    by annev308
    Replies
    5
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    587

    I am not aware of any app or service that would...

    I am not aware of any app or service that would either locate or give you a free ebook for purchased physical books so I can’t help with that and overall, the news is not great.

    Years ago, a...
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    Can your doctor not stipulate that you get a...

    Can your doctor not stipulate that you get a private room and a quiet environment? I’ve had 6 surgeries and 8 non-surgical hospitalizations since my original injury and I have never been put in a...
  23. I have. I found it to be uncomfortable because...

    I have. I found it to be uncomfortable because the 100% silicone catheters are much stiffer and pokier than the latex ones.
  24. I pay a handyman. He’s not fast but he’s super...

    I pay a handyman. He’s not fast but he’s super thorough and responsible. I have also put jobs up on the student job board at the local university and gotten a good response and folks who have done...
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    I was told 1000 mg. Also, you probably know this...

    I was told 1000 mg. Also, you probably know this already, but just in case - d-mannose only works on e coli and it is still possible to get an e coli UTI while taking d-mannose.
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