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    YES, my girls have a quality care team at Mass...

    YES, my girls have a quality care team at Mass General Hosp in Boston that includes urology, nephrology and infectious disease along with genetics, neurology, etc.. They are neurologically complex by...
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    Thank you for this PDF. It is helpful. My older...

    Thank you for this PDF. It is helpful. My older daughter has had a mix of organisms, but the younger one (issues slightly more advanced, so we're starting this with her) predominantly is infected by...
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    New to intravesical antibiotics

    Hello, I've joined your community in order to better understand health issues for my 2 young adult daughters. They have a rare, complex genetic condition called Pitt Hopkins syndrome. There were ~350...
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