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Type: Posts; User: robeec

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  1. Replies
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    26,152

    i'm c5 complete. i drive, work, and get out as...

    i'm c5 complete. i drive, work, and get out as much as money allows. i'm one pubic-hair away from being in your predicament--i'm also one hair away from being able to transfer (ain't gonna happen)....
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    5,341

    i had a baclofen-pump implanted in jan 2011. not...

    i had a baclofen-pump implanted in jan 2011. not having spasms after 29 of years back-arching and finger-fluttering spasms was surreal! about two weeks post i noticed a welt coming from the top of...
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    283,951

    killers, weezer, kean, franzferdinand

    killers, weezer, kean, franzferdinand
  4. Thread: need advice

    by robeec
    Replies
    16
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    3,680

    get dept of social services out to his residence...

    get dept of social services out to his residence for a home-assesment--medicaid will provide homecare for daily living: bathing, dressing, housekeeping, errands, etc. 24 YR OLDS SHOULD NOT BE IN NHS....
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    c5 quad--colostomy since '91. irrigate daily.

    c5 quad--colostomy since '91. irrigate daily.
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    if you decide to go this route, make sure you...

    if you decide to go this route, make sure you receive palliative care so you're not in pain.
  7. Thread: Anal Discharge

    by robeec
    Replies
    7
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    1,971

    "I've only had it happen uncontrollably (daily)...

    "I've only had it happen uncontrollably (daily) once over a two month period. I never determined what caused it. When I asked my doctor he said that it was actually a good thing and dismissed my...
  8. Thread: Anal Discharge

    by robeec
    Replies
    7
    Views
    1,971

    collectomy since '90. my doc put me on meslamine...

    collectomy since '90. my doc put me on meslamine enema. they're white and smaller than an enema but bigger than an ampule. when everything is okay w/my colon, the drug is totally absorbed--once in a...
  9. i'm sure you're home by now. if not, call me and...

    i'm sure you're home by now. if not, call me and i'll come bring you wherever you need to go. i wish i saw this sooner. i'm maybe 30miles away, lizzy.
    914 433 4458
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    4,194

    wow, that looks good! pulled pork goes great...

    wow, that looks good! pulled pork goes great w/pickled collard greens.
  11. Thread: bacolfen-pump

    by robeec
    Replies
    1
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    731

    bacolfen-pump

    i have an appointment to get a pump. anybody know what i should expect? like how many visits, and the procedure?
    thanks
  12. Replies
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    4,335

    if he wants to lose the bag totally, he'll need...

    if he wants to lose the bag totally, he'll need augmentation or maybe just botox. velcro is possible for access but a mitronoff may be more convenient. ...
  13. Thread: Quad coughing

    by robeec
    Replies
    8
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    4,060

    have someone push into your belly while you...

    have someone push into your belly while you cough (in synch).
  14. i have two but i have a fenced-in yard and...

    i have two but i have a fenced-in yard and doggy-door access for them. we do go on long walks and runs around the neighborhood. both my lab and my portuguese water dog are trained to poop out back....
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    5,405

    irrigation

    http://www.youtube.com/watch?v=g14kbuw1fU8
    check this bloke out
  16. Replies
    11
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    5,405

    i have a "collectomy" since '90; i'm c5c, 28yrs...

    i have a "collectomy" since '90; i'm c5c, 28yrs post. i also have a supra, and i thought the same re contamination. every once in awhile i would get a wicked odor wafting up. turned out it was...
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    colostomy is the best thing i ever did. my doc...

    colostomy is the best thing i ever did. my doc tried to talk me out getting the surgery; i found a willing doc who sent me to a surgeon. for years i didn't know about irrigation. i urge you to at...
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    i hate being alone!

    i hate being alone!
  19. Replies
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    hi zill--long time... my colonized infection,...

    hi zill--long time... my colonized infection, like chad's, returns as soon as i go off cipro or levaquin. my urine is fetid and a decomposing odor emanates from the stoma. my uro just put in for a...
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    mistakes and accidents happen in every...

    mistakes and accidents happen in every profession--otherwise, we'd call them 'on purposes'.
  21. Replies
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    7,802

    ditro stops my mild sweats when my bladder is...

    ditro stops my mild sweats when my bladder is fighting off my supra. sucks when you don't know the cause because you get carried away w/what may be the cause.
    good luck!
  22. Thread: depression

    by robeec
    Replies
    26
    Views
    5,483

    but you're a para...why not just focus on the...

    but you're a para...why not just focus on the stuff you can do--there's a lot you know? a big hurdle for many upper-quadriplegics is getting personal care; you have this covered by yourself. the rest...
  23. Thread: Elavil & Lyrica

    by robeec
    Replies
    11
    Views
    9,474

    i take 50mgs 2x a day for neuropathy. i used to...

    i take 50mgs 2x a day for neuropathy. i used to take 25mgs of elavil 2x a day but my doc doubled the dose after i went off neurontin (was giving me wicked heartburn). i'm just the opposite, and wake...
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    back in the early 80s, i had bad a.d. and i was...

    back in the early 80s, i had bad a.d. and i was fresh from rehab. uro-doc @ rehab said i needed a partial sphincterotomy (site unseen). i was in for almost a whole month of violent a.d. which...
  25. Thread: Swelling

    by robeec
    Replies
    15
    Views
    2,679

    lay off salt. check any processed foods you may...

    lay off salt. check any processed foods you may be eating for sodium. don't add salt; take as much salt out of your diet as possible. i know salty snacks taste good--i love 'em too--my fav is...
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