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  1. Replies
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    One of the hardest things to do is to just let go...

    One of the hardest things to do is to just let go of the pain. I find myself always tensing up what I feel is pain and by tensing up I'm actually making my pain worse . As far as the pain tunnel yes...
  2. Thread: neuro hell

    by Freespin 71
    Replies
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    54,698

    Yes I've tried tens units it made what I feel...

    Yes I've tried tens units it made what I feel worse and do try and keep myself as busy as I can be.
  3. Thread: neuro hell

    by Freespin 71
    Replies
    75
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    54,698

    I can't take this constant burning anymore.

    I can't take this constant burning anymore.
  4. Thread: neuro hell

    by Freespin 71
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    75
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    54,698

    There is no end to this neuropathic hell the...

    There is no end to this neuropathic hell the burning never stops , if you get relief with med consider yourself lucky , don't let Dr.'s bullshit you.
  5. I gotta say after reading thru these post they...

    I gotta say after reading thru these post they scare the hell out of me , one I'm not one who enjoys trial and error with Dr.s . Two I do know there are many risk associated with having a pain pump....
  6. Thread: neuro hell

    by Freespin 71
    Replies
    75
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    54,698

    Tired of this constant burning hell !! Don't...

    Tired of this constant burning hell !!
    Don't wanna get sucked into the med route if it worked so well then why are so many of us in pain..
    It's like asking how bad do you feel like screwing...
  7. Thread: neuro hell

    by Freespin 71
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    75
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    54,698

    I mean like extra frozen not just the normal cold...

    I mean like extra frozen not just the normal cold to the tough paralysis , lower back and around my hips , the rest I would say feels like cold to the touch paralysis , pins needles burning equally...
  8. Thread: neuro hell

    by Freespin 71
    Replies
    75
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    54,698

    From my injury on down I am frozen to the touch,...

    From my injury on down I am frozen to the touch, like a deep freeze , this deep freeze is a burning hell.
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    I have the worst time with jeans. I have the ring...

    I have the worst time with jeans. I have the ring of fire around my waist and jeans or anything that touches it makes it worse..
  10. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    Alan I have that problem as well when I train I...

    Alan I have that problem as well when I train I make the pain worse specially where I am broken at , I'm not fused so the more I move the more pain I cause but not working out I get even worse.
    Very...
  11. Thread: neuro hell

    by Freespin 71
    Replies
    75
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    54,698

    This saddened me because there is no end insight ...

    This saddened me because there is no end insight , seems like I jinxed myself since my last post I've done nothing but lay down with this neuropathic hell, legs , waist , back on fire , move the...
  12. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    I keep my med list to what puts me to sleep and...

    I keep my med list to what puts me to sleep and pay for workout each time some times more then others but I refuse too quit . I do understand there are verious degrees of people living with this...
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    Diazepam works for me as a night time med to put...

    Diazepam works for me as a night time med to put me out but if we have a weather front come thru then it may not work for me at all and I will be up tossing in turning in burning hell, Alot of nights...
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    That is how I am on these meds , I do take...

    That is how I am on these meds , I do take gabapentin but I really do not see any relief from it and often wonder why I both , though I do know if I try and get off of it there will be a ramp up in...
  15. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    I took some time away to see if I could work my...

    I took some time away to see if I could work my way thru this neuropathic hell I've also had some set backs unrelated to neuro hell .
    Living with severe neuropathic pain is very frustrating to say...
  16. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    I'm trying desperately not to take anymore meds ,...

    I'm trying desperately not to take anymore meds , they seem to have little effect in pain relief... im not having much of a life either tho.. unless that life is laying down.
  17. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    I can't take this anymore . Day after day after...

    I can't take this anymore . Day after day after day it's the same burning hell with no end in sight.
  18. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    Wake up in pain , take a pill , mutitle thru my...

    Wake up in pain , take a pill , mutitle thru my morning routine , take another pill , try and accomplish something , take a other pill , go lay down in pain , wait till it bed time , take another...
  19. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    Pain is consuming , every part of the day . I...

    Pain is consuming , every part of the day .
    I used to look for the things that trigger my pain , lately I've just come to the point that it's pointless to even try and figure what triggers it , I...
  20. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    Need help .. every time I try to do Physical...

    Need help .. every time I try to do Physical therapy all I do is cause more neuropathic pain.??
    I've tried just about all they usual meds and none traditional and I just feel as if my pain is...
  21. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    Same old neuropathic hell ... Dr.s think they...

    Same old neuropathic hell ... Dr.s think they know , will they know very little .
  22. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    I have not been on lately , I just don't know...

    I have not been on lately , I just don't know what to say anymore , I'm so tired of suffering & loosing out on life..
  23. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    Arndog.. Thank you , I was doing some research...

    Arndog.. Thank you , I was doing some research and had some very positive leads that pointed to ucsf ... it's reassuring to hear you repeat that.. I do what I can to follow up with that..
    I to...
  24. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    Img_20140...08259.jpg see if this uploads

    Img_20140...08259.jpg see if this uploads
  25. Thread: neuro hell

    by Freespin 71
    Replies
    75
    Views
    54,698

    What I've learned is if I add more physicians and...

    What I've learned is if I add more physicians and more decision making people in my spinal cord health the more politics , and associated problems I encounter...
    I hear and see people with pain...
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