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Type: Posts; User: Mitchitsu

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    I wasn't really asking anything. I was told by...

    I wasn't really asking anything.

    I was told by the people doing the study that if you participate in the early stages / lower doses, you would not be eligible for the higher doses in later phases...
  2. It really is incredible to watch. I am really...

    It really is incredible to watch.
    I am really looking forward to seeing the results of the people in the 6 x 6 x 6 without stem cells...

    Just very curious to see how much extreme amounts of...
  3. 'The one I am doing is at Stony Brook University...

    'The one I am doing is at Stony Brook University on Long Island NY. I've been waiting almost a year for it to start.'
  4. Sorry for any confusion. No I'm not a student. I...

    Sorry for any confusion. No I'm not a student. I am a 44 year-old old man hurt about 3 years ago in a diving accident :)

    It is a stimulation study done by a local University. 3 times per week for...
  5. The one I am doing is at Stony Brook University...

    The one I am doing is at Stony Brook University on Long Island NY. I've been waiting almost a year for it to start.

    I began to do one at a VA in new jersey but it was just too far for me to...
  6. Im about to begin a transcutaneous stimulator...

    Im about to begin a transcutaneous stimulator study.
    Currently being randomized between just stim or stim with locomotor training. If people are interested in progress / feedback I will be more than...
  7. If a person is "highly incomplete", I would...

    If a person is "highly incomplete", I would assume they can stand and take steps without an implanted device.
  8. It is 6 hours of this: ...

    It is 6 hours of this:

    https://youtu.be/_6E7hAaWH4A
  9. I really don't understand some of you. They are...

    I really don't understand some of you.
    They are being as 'specific' as they can be.

    It doesn't seem to be that complicated. For the first few weeks they are going to get people off their butts...
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    I might be wrong or might be talking about a...

    I might be wrong or might be talking about a different aspect of this, but I was told they are doing it in different phases. Starting at very small doses for safety and then ramping up to much larger...
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    Pennsylvania. It took them about a week to get...

    Pennsylvania. It took them about a week to get back to me but once we spoke the first time they were extremely responsive. Everyone I dealt with was very nice.
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    Sure. C4/5 inc. Although I have very good control...

    Sure. C4/5 inc. Although I have very good control on my left side. Pretty good finger dexterity. Not a ton of hand strength but I can make a pretty strong fist. Not so much I can't do on my left...
  13. Also keep in mind these people are doing a very...

    Also keep in mind these people are doing a very specific and very aggressive exercise program specifically tailored towards walking. Without hours and hours of walking for months, nobody is getting...
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    I recently tried getting into this trial thinking...

    I recently tried getting into this trial thinking I would be a very good candidate. Unfortunately I was told my hand / arm function was too good... that was a first :)
    Major bummer.
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    New video from Kessler

    Relatively interesting video... nothing too new but it shows their commitment towards research moving forward:

    https://youtu.be/9-PXt5Wm2ig
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    I am just about 2 weeks in and plan to use the...

    I am just about 2 weeks in and plan to use the meds for about 6 months. I will certainly note any changes as time goes by.

    Obviously it'll be anecdotal evidence. But that is all I have. I am lucky...
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    clemastine fumarate 1.34mg tablets 100 cnt per...

    clemastine fumarate 1.34mg tablets 100 cnt per box , Clamist. Buying them from a guy online. For all I know they could be sugar pills :) but there are tons of positive reviews from people who...
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    One last thing to add. The studies I read talked...

    One last thing to add. The studies I read talked about a dose of 8 mg. That is why I am taking 6 pills per day. They are only 1.3mg each. So I am right under 8.
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    I started October 1st so it's been a little over...

    I started October 1st so it's been a little over a week.
    The first couple of days it might have made me a little more tired then usual. But it was nothing significant. Now I don't notice it at all....
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    I didn't bother trying to get a script. I found...

    I didn't bother trying to get a script. I found it online from some shady seller. $50 for 100x 1.3mg pills.
    I'm going to take 6 a day. Obviously I will need to order it a bunch of times since it...
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    if you don't mind me asking, do you have an...

    if you don't mind me asking, do you have an incomplete injury or complete? Are you able to ambulate at all?

    Do you feel like the 4 AP helped you in any noticeable way?

    I'm asking because I'm in...
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    IMO, there's about the same information out there...

    IMO, there's about the same information out there about 4 - AP. Some preliminary work for SCI and then nothing. Just disappears. Not sure if that means it was ineffective or the work was never done....
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    https://multiplesclerosisnewstoday.com/multiple-sc...

    https://multiplesclerosisnewstoday.com/multiple-sclerosis-news/2014/07/09/antihistamine-repurposed-remyelination-phase-2-trial-ucsf/

    This is not new. It is about five years old and of course I...
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    I read that post and it definitely seems...

    I read that post and it definitely seems interesting but is it applicable at all for spinal cord injuries?
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    Training Rehabilitation facilities and VAs with...

    Training Rehabilitation facilities and VAs with that exercise curriculum showing positive results will be a giant step in the right direction.

    In my opinion, especially VAs. Who at least around...
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