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  1. Thread: Foot steering

    by jeffrx
    Replies
    2
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    1,200

    Foot steering

    I have central cord. My right arm is totally paralyzed and my left arm is only slightly better. I ave been driving with foot steering for almost 16 years now and wondering if anyone else here does...
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    Oh yeah...I think many of us can relate. I heard,...

    Oh yeah...I think many of us can relate. I heard, "You know it could have been so much worse. You could be in a wheelchair!" so many times that I started replying, "Wow! What a concept! I never...
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    I grew up on a farm and hunted almost every day...

    I grew up on a farm and hunted almost every day of deer season. Twelve years ago a botched surgery left me with central cord and I no longer have enough function to shoot. Some days I really miss it,...
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    Mine is a combination of anxiety (went on...

    Mine is a combination of anxiety (went on disability and got divorced and lost my sister ...all in the last 2 years) and a loss of muscle due to worsening health and lack of exercise. The problem is...
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    ....coldness in hands Yes ....weakness upper...

    ....coldness in hands Yes
    ....weakness upper body Yes
    ....tingling in hands and fingers Right side only (my worst side)
    ....stiff back and neck but not much pain Yes – occ. Severe pain...
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    Central Cord Syndrome

    Hello all! I have central cord syndrome due to surgery to correct 2 ruptured discs in my neck eleven years ago. It has been a wild ride - good days , bad days, and the occasional horrible days....
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    I started a Facebook page on CCS. Not much there...

    I started a Facebook page on CCS. Not much there yet....head on over there and add some content! Going to get my artsy daughter to do some cover photos and backgrounds. i am just trying to educate...
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    Very happy that warmer weather is finally here! ...

    Very happy that warmer weather is finally here! Overall my shoulders do much better when it's warm. Started working with a new OT who has been wonderful. I will take a good OT over a whole team of...
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    There is no better food than homemade tamales!

    There is no better food than homemade tamales!
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    132,561

    I frequently have issues with hot and cold. I...

    I frequently have issues with hot and cold. I sometimes will sweat excessively with even slight exertion. Also, when I get cold, it takes forever for me to warm up. Therapists and doctors don't put...
  11. Replies
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    Hey Deb, I don't remember the shoulder blade...

    Hey Deb,
    I don't remember the shoulder blade pain, but it has been 10 years since I wore a collar. Mine was a Philadelphia collar and I wore it for 3 months. One tip: get some moleskin with adhesive...
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    Good luck with your surgery. I still have...

    Good luck with your surgery. I still have nightmares about mine (that's how I became paralyzed). But mine was a one in a million complication and surely there has not been a million surgeries since...
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    Went to church with my daughters today....

    Went to church with my daughters today. Afterwards, we were going to eat at a small restaurant that serves the best hamburgers in Fairhope. I had been there before, but never used the bathroom. ...
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    Amanda, you are an inspiration to me. I am going...

    Amanda, you are an inspiration to me. I am going on 11 years now post injury and know how hard it has been for me, but can't imagine going through my entire life like you have. I have three teenagers...
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    http://www.physiotherapy-treatment.com/central-cor...

    http://www.physiotherapy-treatment.com/central-cord-syndrome.html
  16. Replies
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    Found a great article on Central Cord Syndrome. ...

    Found a great article on Central Cord Syndrome. I think the last paragraph sums things up nicely:

    The disability of these patients is often underestimated. Those who are ambulant may appear less...
  17. For 'upside down quad'/central cord: Shoulder Brace?

    Hello, I am an upside down quad/ central cord patient 10 years post injury. My shoulders are giving me excruciating pain due to subluxed shoulders. I have tried several braces but none work to...
  18. Replies
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    Trekker that's a sobering reminder of how, on one...

    Trekker that's a sobering reminder of how, on one level, we are lucky. When I was at rehab at Shepherd in Atlanta, I will never forget joining a group of SCI patients to play a game of Trivial...
  19. Replies
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    Cold weather is very hard. Double for me now...

    Cold weather is very hard. Double for me now since my wife and I are separated and I have limited dressing skills. The main thing to remember is to take care of your shoulders. Walking is...
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    [QUOTE=Revis;1495557]I'm curious about those of...

    [QUOTE=Revis;1495557]I'm curious about those of you who have had CCS for more than 2 years. Have you continued to gain more stamina, even after 2 years?

    Have had CCS for 10 years. Worked as...
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    I have central cord due to a hemorrhage after an...

    I have central cord due to a hemorrhage after an AC Fusion in 2002. My legs have fully recovered but I have no use of my right arm and only about 20% of my left hand. I remember when the doctor told...
  22. Thread: Central Cord

    by jeffrx
    Replies
    2
    Views
    1,118

    Central Cord

    Hello all, I am central cord due to an ACF in 2002. Had horrible neck pain (2 ruptured disks) and the ACF was going to fix all that. I woke up a c4 quad. After two more surgies and a few days my...
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    I have had central cord syndrome for 6 years. It...

    I have had central cord syndrome for 6 years. It was the result of a hematoma after surgery to fuse ruptured disks. I too regained full use of my legs after a few days. Would love to talk to others-...
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