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  1. Replies
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    Thank you for your service!

    Thank you to all our Veteran members of CC. From all the SCI-Nurses
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    Sticky: Bump. (KLD)

    Bump.

    (KLD)
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    So do you have a fixed scoliosis? Would bracing...

    So do you have a fixed scoliosis? Would bracing help?

    (KLD)
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    This is why you need to see the ostomy nurse to...

    This is why you need to see the ostomy nurse to get your stoma site marked with you sitting in your wheelchair...both naked and with your slacks on.

    (KLD)
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    Have you been evaluated by a physiatrist and/or...

    Have you been evaluated by a physiatrist and/or an orthopedic surgeon for these issues?

    (KLD)
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    Unlikely this is related to your SCI, as...

    Unlikely this is related to your SCI, as hypoinflation is a much more likely result of partial respiratory muscle paralysis. Did you have a history of smoking or exposure to chemicals that could...
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    This is not normal, and is actually a cardinal...

    This is not normal, and is actually a cardinal sign of an ascending syrinx (post-traumatic syringomyelia). You need to see your primary care physician and get referred to a good neurosurgeon who is...
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    Most insurances cover your ostomy supplies, and...

    Most insurances cover your ostomy supplies, and most follow the same guidelines as for Medicare coverage.
    https://www.medicare.gov/coverage/ostomy-supplies

    How many you need, and what they cost,...
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    A lot depends on where the colostomy will be done...

    A lot depends on where the colostomy will be done (descending, transverse, or ascending colon), and if the procedure will be done with traditional surgery or with a laparoscopic procedure. Recovery...
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    You can check out comparable prices for used...

    You can check out comparable prices for used adapted vans on eBay and at both Blvd.com and DisabledDealer.com

    (KLD)
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    Two things to discuss with your urologist: ...

    Two things to discuss with your urologist:

    Leakage through the urethra can be more common in woman after menopause, as the thinning of the mucosal lining of the vagina that occurs then can also...
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    Do you take an anticholenergic such as...

    Do you take an anticholenergic such as oxybutinin?

    The routine for self-treatment with nitrofuantoine as above would be appropriate for an AB person who has an occasional simple UTI. It is NOT...
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    Sorry you have this problem. Are you sure this is...

    Sorry you have this problem. Are you sure this is a fixed contracture? Have you see a good PT or physiatrist to see if this can still be stretched out?

    (KLD)
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    How was this diagnosed as a UTI? A positive...

    How was this diagnosed as a UTI? A positive culture (colonization) generally should not be treated.

    (KLD)
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    For an AB person, yet. In the absence of any...

    For an AB person, yet. In the absence of any signs or symptoms as above, even a colony count such as this would be considered colonization in someone with SCI/D.

    (KLD)
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    Symptoms : chills, flank pain, severe malaise....

    Symptoms : chills, flank pain, severe malaise.
    Signs: elevated WBC in the blood, fever, autonomic dysreflexia, urine leakage around catheters or unusual incontinence.

    (KLD)
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    You should still be screened for stones,...

    You should still be screened for stones, prostatitis, etc. Who is telling you to treat colonization? Urologist? GP? Infectious disease physician?

    (KLD)
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    My guess is they are no longer in business....

    My guess is they are no longer in business. Website has not been updated since 2015, and their FB page is all but blank.

    (KLD)
  19. This is not a "do-it-yourself" procedures. The...

    This is not a "do-it-yourself" procedures. The device is only available by prescription, and it requires an experienced and skilled surgeon to implant.

    (KLD)
  20. I would wager that the Christopher & Dana Reeve...

    I would wager that the Christopher & Dana Reeve Paralysis Foundation already has such information. Have you contacted them?

    (KLD)
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    Self treatment like this is most unwise. It is...

    Self treatment like this is most unwise. It is very likely to cause a resistant strain of bacteria, and treatment for a week is insufficient in those with SCI/D. Why do you have drug left over?...
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    Was this prescribed on the basis of a urine C&S...

    Was this prescribed on the basis of a urine C&S only, when you had not symptoms? If so, I would encourage you to contact the prescribing physician and discuss with them the option of not treating...
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    It would be most unusual for the cystoscope used...

    It would be most unusual for the cystoscope used for Botox bladder injections to stretch out the urethra, or to do anything to the external urinary sphincter.

    We you using a indwelling urethral...
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    I would agree with this to a degree. If the...

    I would agree with this to a degree. If the antibiotic does not work, then investigation of possible sources of sequestration of infection (such as stones, prostatitis, renal abscesses, or urinary...
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    I would agree with your physician about not using...

    I would agree with your physician about not using nitrofurantoin routinely. Not only can it help develop resistant strains, but it can cause serious side effects such as bone marrow suppression over...
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