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    Thanks Grammy, From a practical point of view...

    Thanks Grammy,

    From a practical point of view what would the purpose of this drug be?
  2. There was a lot, he talked about thinking ISP...

    There was a lot, he talked about thinking ISP could actually be useful for chronic injuries, mentioned a trial in Europe where they had used massive doses and got better results etc.
    But when...
  3. When they say the general terms improved it...

    When they say the general terms improved it doesn't really mean anything. Its the actual functions of those that is important.

    Like bladder improved for example. Did that mean you could hold more,...
  4. I'm not sure that the manufacturers are promoting...

    I'm not sure that the manufacturers are promoting them as some kind of cure. To me they are just a different mobility device - like a wheelchair.

    If there was money going to exoskeletons that...
  5. I asked them to ask David Darrow when he said...

    I asked them to ask David Darrow when he said "Sexual Function" did it include "Orgasm". I wonder if the person reading the questions was too embarrassed to ask.

    So I asked again, but no joy.
    ...
  6. Thanks Sparky, much appreciated. It's been too...

    Thanks Sparky, much appreciated. It's been too long that the SCI Community have been missing good tools like other communities do.
  7. Thats a good example to compare the difference...

    Thats a good example to compare the difference between clinicaltrials.gov and scitrials.org. The info comes from the same place, but much easier to find and read:
    The scitrials.org page for your...
  8. Launching Today - SciTrials.org - SCI Clinical Trial Finder

    Clinical trials are an essential part of the path to bring treatments to the Spinal Cord Injury community. These trials are a source of innovation, new therapies, and procedures that people with...
  9. Thanks Grammy, that was my fear. Reading between...

    Thanks Grammy, that was my fear. Reading between the lines it sounds like acute too - 6 patients and they are prepping 10 centres to deliver it.
  10. Anyone know anything about RGMa and MT-3921?

    There is a multi-site trial kicking off for MT-3921 around the US (phase 1 safety) and when I looked I found

    MT-3921 is a novel investigational drug developed jointly with Osaka University that...
  11. Also about the new chief scientific officer (CSO)...

    Also about the new chief scientific officer (CSO) - https://www.prnewswire.com/news-releases/christopher--dana-reeve-foundation-appoints-ethan-perlstein-phd-as-chief-scientific-officer-300919807.html
  12. Reeve Foundation to invest in paralysis-treatment companies

    https://www.statnews.com/2019/09/17/reeve-foundation-to-invest-in-paralysis-treatment-companies-as-more-nonprofits-act-like-vcs/

    Nonprofits seeking to advance medical research have long operated...
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    Maybe you need to create another forum for people...

    Maybe you need to create another forum for people who believe there will never be a cure :-)




    Thanks Jim, it would be good if it was published - not everyone is in the US.
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    Thanks Jim, all sounds great. Your thoughts on...

    Thanks Jim, all sounds great. Your thoughts on the arm doing the walking training alone before the cells is very interesting.

    Is the protocol that was approved for the walking training available...
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    I bet everyone has these feelings from time to...

    I bet everyone has these feelings from time to time, I know I do. But maybe they are best kept for your bedroom/family/friends rather than in a forum where everyone else is in the same situation and...
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    I think Jim was referring to the stem cells for...

    I think Jim was referring to the stem cells for compassionate use. Obviously you are correct rehab alone doesn't need compassionate use.
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    Isn't that was is proposed? After all the rehab...

    Isn't that was is proposed? After all the rehab people will have the ability to walk on their own to keep it up.

    Or have I missed something and you'll need constant rehab forever? If thats the...
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    The stem cells.

    The stem cells.
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    Is there a waiting list started for this? I...

    Is there a waiting list started for this? I imagine there will be a big queue of people wanting to do it.

    Maybe you should start taking deposits, I'd sign up.
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    Wouldn't that mean expecting the stem cells to do...

    Wouldn't that mean expecting the stem cells to do everything?
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    I'd like to think that if this proves to be...

    I'd like to think that if this proves to be successful then its going to be easy in comparison for people to experiment on alternative rehab strategies.
    The intervention is going to be the bit that...
  22. Thanks, thats an interesting point I'd not...

    Thanks, thats an interesting point I'd not thought about before.

    A lot of other trials let people who have had other treatments as long as the period after the first trial is sufficiently long...
  23. Can I ask why you are asking the question? Not...

    Can I ask why you are asking the question?
    Not meaning to infer anything, just want to understand the thinking behind why people would not want to apply for trials - or why you think they might not...
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    Sorry, it was a typo I meant proved.

    Sorry, it was a typo I meant proved.
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    I'd suggest you are complaining about the wrong...

    I'd suggest you are complaining about the wrong thing. The fact that this has only been approved on acute models, and never on chronic (someone please tell me I'm wrong), is the problem. We read the...
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