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Type: Posts; User: gjnl

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  1. It is one of the most difficult issues that any...

    It is one of the most difficult issues that any patient deals with...no matter what the medical issues. One person's great doc is another person's worst nightmare...
  2. How do you vet their background? Not trying to...

    How do you vet their background? Not trying to be pejorative...but what does "knowing their background" mean? How do we evaluate background vis a vie our own issues and needs?
  3. I can't advise on what you should do. Microcyn,...

    I can't advise on what you should do. Microcyn, MicrocynAH, Hydocleanse, Vetericyn, Puracyn, and Theracyn are all used experimentally and off label by some of us for the purpose of trying to prevent...
  4. Hydrocleanse is made by Sonoma Pharmaceuticals...

    Hydrocleanse is made by Sonoma Pharmaceuticals formerly known as Oculus Innovative Sciences headquartered in Petalum, Ca.. They are the owner of the trademark and patent for Microcycn/Microcyn...
  5. Here is a paragraph out of a study reported in...

    Here is a paragraph out of a study reported in the Journal of Spinal Cord Medicine: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1864800/Treatments for Chronic Pain in Persons With Spinal Cord...
  6. In our world of trying to find what works for...

    In our world of trying to find what works for anyone of us as an individual, you have to go with whatever rocks your boat. Best on you.
  7. Think you mean that MicrocynAH has .009%...

    Think you mean that MicrocynAH has .009% hypochlorous acid.

    MicrocynAH Wound and Skin Spray has .009% hypochlouous acid. MicrocynAH Pink Eye Spray has .009% hypochlorous acid and .001% Sodium...
  8. Thread: riding

    by gjnl
    Replies
    15
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    381

    Sorry, pictures posted now...was having trouble...

    Sorry, pictures posted now...was having trouble with sizing.
  9. Thread: riding

    by gjnl
    Replies
    15
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    381

    I don't cycle, but NL and I go for walks in our...

    I don't cycle, but NL and I go for walks in our neighborhood and the scenery is pretty lovely. Here are a couple pics from our walks in April, after our winter/spring rains. Beautiful in spring,...
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    Tap on the name "SCI Nurse" either from the...

    Tap on the name "SCI Nurse" either from the member list or a post.

    You will get the page identified in the image I have posted. On the left side of the page under "SCI Nurse," there is a list of...
  11. Can't say I know the % of hpochlorous acid in...

    Can't say I know the % of hpochlorous acid in MicrocynAH wound and skin spray. Lately, I have been using MicrocynAH Pink Eye formulation at full strength. Usually, I have had to dilute MicrocynAH...
  12. Thread: Disney Springs

    by gjnl
    Replies
    25
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    595

    How frequently do you find that convenient "end...

    How frequently do you find that convenient "end spot?" Not often in my experience.
  13. I'm seeing about 10 offers...

    I'm seeing about 10 offers (https://www.amazon.com/gp/offer-listing/B00425DZTM/ref=olp_twister_child?ie=UTF8&mv_size_name=2&mv_style_name=0) for 16 ounce Vetericyn Plus All Animal Wound and Skin...
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    Worth a try. Seems like 30cc to 60cc...

    Worth a try.

    Seems like 30cc to 60cc instilled into the bladder for at least 5 minutes. Some who intermittent cath leave it in the bladder until the next cath. Some of us can only tolerate...
  15. Thread: Disney Springs

    by gjnl
    Replies
    25
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    595

    Our local Whole Foods Market has the same deal. ...

    Our local Whole Foods Market has the same deal. There must be 8 electric car recharge parking spaces and only 3 handicapped spaces. What is up with that?!?!?!
  16. Thread: Ergo Seating

    by gjnl
    Replies
    2
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    158

    The rules of engagement with Medicare when...

    The rules of engagement with Medicare when ordering a new chair are quite specific. First, your doctor makes a referral to an occupational or physical therapist, who hopefully has an Assistive...
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    Personally, I keep looking forward to the new and...

    Personally, I keep looking forward to the new and improved Care Cure Community on vBulletin or another platform. Long promised... Not being fulfilled... and so who knows what the "rules/policies"...
  18. Thread: not plugged

    by gjnl
    Replies
    32
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    906

    Yes, I absolutely understand about the...

    Yes, I absolutely understand about the mitrofanoff procedure and how that may look like the next best option. That said, are you physically capable of cathing the Mitrofanoff several times a day?
    ...
  19. Thread: not plugged

    by gjnl
    Replies
    32
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    906

    The only other thing I can think of is the...

    The only other thing I can think of is the regularity of flushing the catheter. If I am reading what you do correctly, I have the impression that you flush the catheter only when you think the...
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    I've had colonoscopies done in a hospital...

    I've had colonoscopies done in a hospital endoscopy out patient setting and in a clinic with a full time anesthesiologist. It really all depends on what your gastroenterologist and his...
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    How do you know that what you source from a...

    How do you know that what you source from a compounding pharmacy is the Enemeez-like solution?

    What "rolliniv" is asking is how you get the solution you get into the bowel/vault or higher?
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    One of our members wrote this a few years back:...

    One of our members wrote this a few years back:
    ​My special trick for using enemeezhttp://sci.rutgers.edu/forum/showthread.php?149917-My-special-trick-for-using-enemeez&highlight=Mombo+enemeez
  23. Thread: not plugged

    by gjnl
    Replies
    32
    Views
    906

    Sometimes bladder stones are so small, just like...

    Sometimes bladder stones are so small, just like very fine grains of sand, that they can't be detected by scans, etc. What I am trying to suggest in simple terms is that you may have a so much fine...
  24. Thread: not plugged

    by gjnl
    Replies
    32
    Views
    906

    Here are a couple more questions and things to...

    Here are a couple more questions and things to think about.

    Are you leaking from around the stoma or from the urethra? Or both?

    What size Duette catheter are you using?

    When you leak, how...
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    Here are some guidelines and procedures from the...

    Here are some guidelines and procedures from the Wound Ostomy and Continence Nurses Society: ...
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