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Type: Posts; User: Genovoro

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    Suprapevic VS Beach/pool

    I wanted to know how do peolpe with spv caths manage to get in swimmin pools or beac, if possible?
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    Do Epileptic Neurologist also handle non...

    Do Epileptic Neurologist also handle non epileptic patients? I'm not epileptic. My seizures started due to my brain injury.
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    Puerto Rico

    Puerto Rico
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    Thank you so much everyone. I will try to get an...

    Thank you so much everyone. I will try to get an appt ASAP.
    I'm no longer in Jacksonville. I had to move to PR and have only been here a few months. I had a really good neurologist in Jax :(
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    Pain caused by stenosis or syrinx??

    I had a decompressed laminectomy in 2010 (or should I say was supposed to have) due to stenosis on my cervicals and syrinx. I had the surgery but had complications and lost all my movement again...
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    New published: Lightning Strikes Twice

    This is the true story of a cycle of tragedy and hope that befalls a young 17 year old man who suffered a diving accident which causes him to drown. Miraculously, he survives; however, facing all...
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    Seizures and dilantin levels

    I am a C5, C6 incomplete, male since 1975, and then again suffered a set back in 2010 leaving me in worst condition than I was before. I have been taking seizures medications since 2011 (Dilantin...
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    I don't take any antihistamines or med to control...

    I don't take any antihistamines or med to control my bladder. I do have diabets but is under control. I take metormin for that. I stop taking antidepressants about three years ago because it was...
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    Trouble swallowing and mouth very dry

    For as long as I remember, I have always had problems breathing through my nose. I had a Deviated Septum and had surgery to correct it about twelve years ago. I also have a history of anxiety and...
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    Ashley, just one more thing cause your story...

    Ashley, just one more thing cause your story sounds very similar to mines. Make sure your neuro surgeon has done this procedure several times and that he knows what to do if he encounters...
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    Nowhereman, I never thought about that. After I...

    Nowhereman, I never thought about that. After I read your thread I went and checked some old pics and it happened to me too. I had my injury at 17 years old, C5 C6, my hair never grew up as before,...
  12. Thank you so much you all. It really has been a...

    Thank you so much you all. It really has been a blessing getting to know more about all this.
  13. I use a 16 french

    I use a 16 french
  14. I flush every oher day, sometimes my caregiver...

    I flush every oher day, sometimes my caregiver don't have the time and I don't have the flexibility in my hands to do it myself. For How long have you had the Ileal Conduit? Has it ever got...
  15. I'm not sure I understand your reply. I do...

    I'm not sure I understand your reply. I do understand that Oxybutynin will help my bladder from continue shrinking, but how do I solve my problem about my cath getting clogged all the time, or do...
  16. Thread: Belly Bags

    by Genovoro
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    I also have a SPV cath and decided to try it but...

    I also have a SPV cath and decided to try it but it didn't work for me. Since the bellie bag sits above or about the same level gravity was making it dificult to flow. I would recommend you buy one...
  17. Problems with SPV. Questions about Ileovesiostomy

    I am a C5 C6 Incomplete since 1975 due to diving accident. I am 55 years old now. Lived a normal life from my wheelchair. Went to school, got a graduate degree, and worked for 35 years. On 2012 I...
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