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  1. Replies
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    The ITB pump is put in highest at the T3-4 level....

    The ITB pump is put in highest at the T3-4 level. Botox or Phenol would have to be used for upper extremity spasticity if needed. The ITB pump infusion does not affect spasticity in the upper...
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    Please complete your profile. Note that the...

    Please complete your profile.

    Note that the company's url you posted is in the UK (where I assume you are as well). The OP is in the USA, so this resource is not going to be useful. If you are...
  3. Are you wearing drawstring or elastic slacks, or...

    Are you wearing drawstring or elastic slacks, or do you have a fly?

    This device which works for some men who cath in their chair might be helpful. We used to put a piece of Velcro on the front...
  4. I will leave this up to the true experts. ckf

    I will leave this up to the true experts.
    ckf
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    Good suggestions above. ckf

    Good suggestions above.
    ckf
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    What does your physician say? Are you on a...

    What does your physician say? Are you on a ventilator? What is your respiratory status? All of this information, in conjunction with your spasticity is important in deciding whether or not you...
  7. I would totally agree with KLD on her...

    I would totally agree with KLD on her recommendations. NOn-dynamic, in this sense means that the cushion is not alternating the pressure. I would recomment that you increase the number of pressure...
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    If you can find out the cause of the fatigue,...

    If you can find out the cause of the fatigue, that is the preference. In order to do that, it may take some time. In the meantime, the suggestion of a 20-30 minute nap when you are generally more...
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    The pump is a good option if you can not figure...

    The pump is a good option if you can not figure out what is causing your spasms. It is still the preference to try to find the trigger and remove it.
    ckf
  10. I would not recommend it without having a...

    I would not recommend it without having a computerized interface seating evaluation done on a variety of cushions. We evaluated a number of these where I worked on a SCI unit, and found that none of...
  11. That function has not worked for some time....

    That function has not worked for some time. Sorry.

    (KLD)
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    Welcome, Sarah! Many people find it easiest to...

    Welcome, Sarah! Many people find it easiest to check the "New Posts" when coming to the site each time. This will show you any new posts since you last visited our site.

    Of course you may also...
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    I think that this has gotten a little off track. ...

    I think that this has gotten a little off track. I would suggest that we keep it in line and on track.
    ckf
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    So glad to hear that you are happy with your...

    So glad to hear that you are happy with your decision.

    ckf
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    Urology Studies to me includes all of the above...

    Urology Studies to me includes all of the above and urodynamics. Given that they are concerned about yours, I would say every year for you. For someone who is doing ok, every other year.

    We...
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    I have worked with patients with narcolepsy, have...

    I have worked with patients with narcolepsy, have you??? The person falls asleep in the middle of activities or even when talking, not just feels sleepy or tired.

    (KLD)
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    It might help to increase the medications, but...

    It might help to increase the medications, but only do so after speaking with your provider. Have you changed anything else?
    ckf
  18. Leakage can occur because the pressure is high -...

    Leakage can occur because the pressure is high - forcing the urethra open a little.

    ckf
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    None of these are voiding pressures. I would...

    None of these are voiding pressures. I would recommend a second opinion and consider other medications before I would go the botox route. Either way, I would recommend that you get annual urology...
  20. I think that the strap is acting like a abdominal...

    I think that the strap is acting like a abdominal binder or support. It should not cause any long term harm, just make sure that you check your skin.
    ckf
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    Very unlikely. His pattern does not fit that of...

    Very unlikely. His pattern does not fit that of narcolepsy.

    Also, when you hear hoof beats, don't assume zebras! It is much more likely to be horses!

    (KLD)
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    Yes, this is common in sleep apnea, which is also...

    Yes, this is common in sleep apnea, which is also more common on those with SCI. Best to get a sleep study done and be assessed for this. Untreated sleep apnea puts a lot of stress on your heart as...
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    You or your son have a spinal cord injury??? ...

    You or your son have a spinal cord injury??? These forums are not for general health or fitness information and discussion, but are for those who have a spinal cord injury or disease, their family...
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    I, too doubt that apnea will be an issue. ...

    I, too doubt that apnea will be an issue. However, I would discuss my concerns with the anesthesiologist. There was someone present throughout my cataract surgery, also.
    ckf
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    Diet, fluids, exercise and consistency in your...

    Diet, fluids, exercise and consistency in your program are all important. Also the medications that you take - and not just the bowel ones can impact your program. Good advice given above.
    ckf
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