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Type: Posts; User: NCLizD

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    ty Melanie & attention Dr's

    Thank you Melanie for your reply. I just returned from John Hopkins and the doc said that I had an attack of TM back in 2008 but no longer am dealing with that. The TM caused damage to the sensors...
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    thank you so much for all this info...i will look...

    thank you so much for all this info...i will look into all of it
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    to hlh

    Thank you so much for your input. I am on neurontin 1200 mgs per day. didn't like the lyrica...took the max of 3 nortriptyline and was having horrible "in color" dreams...lol..so went back down to...
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    update

    pain has moved into shoulders and in between shoulder blades...arms propped up...feet propped up and neck on heating pad. Missed work again today. Pain management on wednesday...what in the world...
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    reply to prpleharly08 & Wise

    Prpleharly08 - let me know how that discussion goes on your next visit and yes, I have thought about the disc problem I have since the last mri in 09 said it had minimally progressed since 08..that's...
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    for wise young

    Let me update you a little bit more...ankle was swollen again yesterday afternoon along with the calf a little bit. Today, pain is about a "9" with the bottom of my killing me. I also am...
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    to Laners

    syrinx is located T3 - T12 with max at T5 (largest is 3mm)...thanks for info!!
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    thanks

    thank you all for responding. I have now been put on 120 mg slow release morphine each day. I'm not liking this at all...but I have to admit, I feel a little relief. Thank you Doc for thinking...
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    re: message

    I will check this site out..thank you all very much. I am just trying to find out everything i can...
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    VaVaBoomer

    Hi, yes I've had an MRI of cervical region but not a myleogram(?)...what is that?? Here is a quickie of the cervical MRI in January 09...last one I had...oh, and the swelling only happens maybe twice...
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    reply

    I've had both tests...I've also had to check my sugar and blood pressure every day for a while but I guess it certainly wouldn't hurt to try it again. Thank you for your reply. Anything would help...
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    Multiple Diagnosis'

    Has anyone been diagnosed with Transverse Myelitis, Syringomyelia and tested positive for MS (O-bands showed up positive in spinal tap). Although I have all the symptoms for MS, have not been...
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    MS Wife...thanks so much for your reply. I have...

    MS Wife...thanks so much for your reply. I have not been diagnosed with MS...just a remote possibility I suppose...but the other two disorders are absolutely horrid. Thanks for your concern and...
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    Wise...you don't think that all these symptoms...

    Wise...you don't think that all these symptoms have anything to do with syringomyelia and transverse myelitis??? I thought that was what was causing all this....I'm just wondering if this pain ever...
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    New Member - a lil more info - Dr. Wise please

    My neuro has thrown his hands up ... will be going to Johns Hopkins in May and am going to pain management now. Dealing with syringomyelia, TM, tested positive for MS (o-bands) not dx with. In...
  16. Thread: New member

    by NCLizD
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    New member

    Hi, I am just joining this site. It is so nice to see that I am not alone. Was dx in August 08 with transverse myelitis, syringomyelia and tested positive for O bands associated with MS, although...
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