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  1. Replies
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    Just closing the loop on my issue...I hope. ...

    Just closing the loop on my issue...I hope.

    Finally managed to get a consult from infectious disease and they said 10 days is not sufficient for this bacteria in an SCI at only 1g/day. They agree...
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    Are my symptoms atypical for a complete? I have...

    Are my symptoms atypical for a complete? I have basically only 4 sensations/symptoms that come from the paralyzed portion of my body:
    1. Paresthesia / Nerve pain (I call it pain when it gets to...
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    I am hoping for more feedback on this. I...

    I am hoping for more feedback on this.

    I started 1g rocephin per day on Thursday at the ER and at home since (IV push). It's worth noting I was writhing in pain at the ER and they gave me the...
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    They're are electrical stimulation units for...

    They're are electrical stimulation units for denervation like the Den2x:
    https://www.google.com/amp/s/www.anatomicalconcepts.com/blog/2017/5/22/denervated-muscle-den2x%3Fformat%3Damp

    But that...
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    Denervation is most common in lower motor neuron...

    Denervation is most common in lower motor neuron injuries. Do you have flaccid (no spasms) paralysis?
  6. I meant leaks from participants, of course!

    I meant leaks from participants, of course!
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    Thank you KLD.

    Thank you KLD.
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    They’re the same drug. One is the generic. ...

    They’re the same drug. One is the generic.

    thanks. Need to understand the dosing
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    I need some help SCI Nurse. The ER put me on 1 g,...

    I need some help SCI Nurse. The ER put me on 1 g, 1x per day ceftriaxone IV. My urologist (who told me to find a new urologist because I complained he didn’t recognize AD) told the ER to use 2g, 2x...
  10. Are there any encouraging results from the...

    Are there any encouraging results from the current phase I study?
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    Cincinnati has only one board certified SCI doc...

    Cincinnati has only one board certified SCI doc and he’s VA only. I see a PMNR usually. My urologist is the department head at University of Cincinnati hospital but clearly not competent with SCI.
    ...
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    NL, I cannot tell you how much it means to me...

    NL, I cannot tell you how much it means to me that you stay and continue to help us.

    thank you so much.
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    Yes. I’ve had extreme nerve pain and spasticity...

    Yes. I’ve had extreme nerve pain and spasticity since Saturday and nightly soaked clothes and sheets from sweating then freezing while spazzing cycles. I’m normally 3-5 nerve pain but 6-8 since...
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    My second symptomatic UTI is this bug and doc...

    My second symptomatic UTI is this bug and doc says the culture says I'm going to need to go on IV antibiotics. They are sending a home Nurse to administer and train my wife.
    This was all over the...
  15. If he's in a facility but getting sores then, I'm...

    If he's in a facility but getting sores then, I'm sorry, the facility is not very good. He should be on an air-fluidized bed and they should be changing his position every 2 hours.
    Does he have any...
  16. Thread: Handicap Parking

    by Mize
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    I absolutely agree it's more dangerous to be...

    I absolutely agree it's more dangerous to be further away from the entrance, but the option for a ramp van is often double-parking far away or simply going home. So if I have to double-park at the...
  17. Thread: Handicap Parking

    by Mize
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    They need to put ramp van spots far away from...

    They need to put ramp van spots far away from entrances. That way abusers won’t want them. That plus fining doctors who give placards away for no good reason.
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    I used to use Handbrake for this and it had many...

    I used to use Handbrake for this and it had many options for compression and file format. I want to say it was something like .mkv is pretty standard if your capturing closed-captioning.
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    Perfect. Thank you KLD.

    Perfect. Thank you KLD.
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    Back to this...looking for ideas for kitchen...

    Back to this...looking for ideas for kitchen cupboards that are more accessible.

    Thanks.
  21. Thread: passing out

    by Mize
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    This could be from a combination of meds or...

    This could be from a combination of meds or dehydration. As SCIs, literally every drug they give us is contraindicated for every other drug they give us.

    Baclofen, gabapentin, lyrica, valium,...
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    Now I'm on day 10 since my last lyrica. My doc...

    Now I'm on day 10 since my last lyrica. My doc gave me some nortryptaline to help with the side-effects and I'm actually doing pretty ok now. Spasms are still much more frequent, pain is higher and...
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    You are right. My experience was that each...

    You are right. My experience was that each successive dose increase was effective for, at best, a few weeks before pain levels returned. The only reason I kept taking it was to avoid this mess I’m in...
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    Just adding my experience to this old thread....

    Just adding my experience to this old thread. After four years at 300 mg, 2x/day (600 mg total) I decided to start tapering a couple weeks before thanksgiving. As of today it’s been eight nine days...
  25. You're slipping! Just last week researchers at...

    You're slipping!
    Just last week researchers at USC published a study linking a 30% improvement in forelimb recovery after SCI by way of long-term gabapentin usage.
    That's right, mice given...
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