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  1. Replies
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    compounding common

    It is ironic that this question is raised at this particular time. I have received non-lioresal baclofen at the 4000 concentration for over eight years without incident until last February when I...
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    Enlarged Testicle normal?

    If this doesn't top the cake I don't know what does. I was scheduled to have the catheter of my ITB pump replaced on Friday but now my MD says we have to put it off because I have developed an...
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    Hi, Monica!! The best antispastic medication is...

    Hi, Monica!! The best antispastic medication is baclofen, if you can tolerate the side effects. It is delivered both orally and with an ITB pump depending on how much you need to control your...
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    I have had the ITB pump for nearly ten years and...

    I have had the ITB pump for nearly ten years and it does wonders for my spasticity. There are problems which you should be prepared for such as pump failure and balancing the dosage but if your MD...
  5. Thread: yes or no

    by TD
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    This would entirely depend on your food intake. ...

    This would entirely depend on your food intake. It you are eating well (2 to 3 times a day) it could be dangerous. Constipation can lead to impaction which is serious business. If you are worried...
  6. As I said in the previous post, I won't see the...

    As I said in the previous post, I won't see the urologist until fall but I have a stent which should alleviate any contracting problem that may occur.



    I have had an MRI and ultrasound which...
  7. Simple mode with only baclofen. My PMR doesn't...

    Simple mode with only baclofen. My PMR doesn't believe in complex dosing because it takes so long for me to feel the effects.



    Not that I have noticed. I do tend to get more spastic if I have...
  8. I had a bolus done when they did the dye study...

    I had a bolus done when they did the dye study and for about 30 minutes my spasms decreased dramatically. My MD can't/won't see the connection.



    I have not seen my urologist in 18 months or...
  9. SCI Nurse or Dr Wise please help with these uncontrollable Intractible Spasms

    I haven't been on here for quite a while due several factors which include two pump failures in the past 18 months!! You definitely do not want to go through a pump shutdown, the baclofen...
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    Okay, starfish, I will first admit that I am a...

    Okay, starfish, I will first admit that I am a guy but then we guys have the same problem: getting to the area to cath. My solution was to design my own pants with a false waistband and hidden...
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    Watch for baclofen withdrawal

    For those of you who possess a ITB pump I would like you to take heed of my latest experience. I am one of the longest possessors of the pump on this forum and have long advocated that if you are on...
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    Ruling out all other sources of irritation was...

    Ruling out all other sources of irritation was the first thing I did. I do not usually head to my PMR with this sort of thing without checking everything else.



    I realize 3 years is a short...
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    Wise/nurses help - Baclofen Pump Holiday?

    It's been a while since I have visited here but I have tried to keep up. I now have a situation that I am facing which, on the face of it, does not sound very inviting.

    I have had my pump since...
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    I am probably the "old man" of the pump since I...

    I am probably the "old man" of the pump since I have had it nearly 9 years now. I topped off on 160 mg of oral baclofen before my PMR suggested the pump and I have never regretted a day. A few...
  15. Thread: Fighting Bone Loss

    by TD
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    2,955

    I was on a drug called Actonel for a while but I...

    I was on a drug called Actonel for a while but I could not handle the side effects (headache, diarhhea).

    Stepping into the fray on standing helping maintain bone mass - I used a standing frame...
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    Hip Popping - revisited

    I have done ROM stretching for nine years now and have found that my hip joints pop/crack as well. This concerned me because I fractured my hips in the accident that caused my SCI. I found that...
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    I know about the increased spasms but I am also...

    I know about the increased spasms but I am also getting an increase of allodynia and klonus. Would these be part of the symptoms?

    "And so it begins."
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    SCI Nurses: Pump Malfunction?

    A doctor suspects my pump has begun to malfunction. What are the signs/symptoms I should watch for?

    "And so it begins."
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    We SCI are prone to 'riods and although it's nice...

    We SCI are prone to 'riods and although it's nice to take them out it should not be considered unless the bleeding is heavy, continues afterwards, happens with every BP, and you have conferred with a...
  20. Dr. Young - I have been having regular bowel...

    Dr. Young -
    I have been having regular bowel movements without diarrhea although I have had a problem with a pain in my left abdomen that no one seems to be able to pin down.

    There has been no...
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    It is funny that your dreams do not recognize our...

    It is funny that your dreams do not recognize our disability. My dreams have included me rolling around with wheels as feet, putting the moves on women without being able to get up to dance, and...
  22. Thread: angry at mom

    by TD
    Replies
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    You also never mentioned what types of drugs he...

    You also never mentioned what types of drugs he is on. I know that when I was on high doses of baclofen I was angry and paranoid to the point I accused my wife of trying to poison me. Thank God I...
  23. Dr. Young/SCI nurses - Increase in the burning, tingles (CNS pain)

    I have been able to manage my chronic SCI for nearly nine years now with the help of this forum and the neurontin and Ultram I take and I have a pump which has been a godsend in managing my severe...
  24. In the hopes that this does not violate our...

    In the hopes that this does not violate our agreement with this forum I, too, am making my offer.

    I, too, have no need for these 14FR catheters sitting in my home due to having a stent placed. ...
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    I have been SCI for nearly 9 years and have never...

    I have been SCI for nearly 9 years and have never had even skin breakdown let alone a pressure sore or ulcer. I attribute this to my roho cushion, pressure relief every 30 minutes to 45 minutes,...
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