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Type: Posts; User: dnvrdave

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    How do you adjust wheelie bars?

    Can you attach a pic of your wheelie bars? Maybe folks will be able to offer more help then.

    I have a similar question (and bump). The wheelie bars on my Storm Torque often get caught on the floor...
  2. Is it ok to use thin walled catheter tubing?

    I just bought a 50-foot roll of latex tubing to attach the catheter to the leg bag. This tubing (on the right in the pic) has a thinner wall because my nurses have a hard time connecting and...
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    "Lead weighted exhaustion" is a perfect...

    "Lead weighted exhaustion" is a perfect description of what I feel. And I too have noticed that eating a hamburger helps right away. I have driven through Burger King when the exhaustion suddenly hit...
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    Thanks for your comments. Sometimes I remember to...

    Thanks for your comments. Sometimes I remember to keep food with me, but I also tend to not eat it in anticipation of fatigue when I'm hot, because eating seems to make me feel even hotter...
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    Summer Exhaustion and Food

    Every summer (hot day) when I haven't eaten in a while, a strange feeling of exhaustion comes over me. It is almost debilitating, and can be scary. I find that drinking more water doesn't really...
  6. Does this happen only when you are in bed? What...

    Does this happen only when you are in bed? What is your sleeping position? Could it be aggravating your L4/5 discs? I started having weird, sudden left leg and foot spasms a few months ago. They...
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    I flirt with my nurses, who call themselves "Wife...

    I flirt with my nurses, who call themselves "Wife number 1, 2, and 3". That's fun. I've started playing bridge again since it's so easy online with BBO. I write Python scripts, mostly to study...
  8. I've had a SP cath for 30 years. I took Ditropan...

    I've had a SP cath for 30 years. I took Ditropan for the first 15 years. I always hated the dry mouth and constipation it caused. I took it anyway because I was told that without it my bladder would...
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    As you both said, a ramp needs a lot of space (my...

    As you both said, a ramp needs a lot of space (my home has underground condo parking, with very little space). My first two vans were full size and had swing out lifts. My next two are Toyota Sienna...
  10. Wow! That's a lot! Do you know what CPAP pressure...

    Wow! That's a lot! Do you know what CPAP pressure you are using? And what your AHI is now? My results go to a website every night, so it's easy to check.

    I used CPAP for 6 years with a pressure of...
  11. Thread: Gripping

    by dnvrdave
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    This thread is two years old, but I have the same...

    This thread is two years old, but I have the same question, as a C5/6 quad. I've tried table tennis (one paddle strapped to each hand) and tennis, but only a little, and now I am starting Pickleball....
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    I've always used Invacare (Storm Torque, Ranger...

    I've always used Invacare (Storm Torque, Ranger X, etc) and they are great, especially if you want the traditional rear wheel drive (with 4 wheels, not 6). What I've heard about their company is that...
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    What's your level of injury, Ouch? As a C5/6 I...

    What's your level of injury, Ouch? As a C5/6 I pushed a manual w/c for 15 years until I wore out my hands and shoulders. Switching to a power w/c in 2000 gave me a lot more independence and energy...
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    MPJ+ Joystick Speed Control Too Easy

    This Invacare joystick is nice, but the speed control knob (on the right) turns too easily. My hand always ends up pushing it to max. The supplier says there is no way to give it more friction, to...
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    Why is a smaller catheter better? I was given 24...

    Why is a smaller catheter better? I was given 24 FR (30 years ago) and I never considered that a smaller diameter would be better. I don't plan to change to smaller, but I just wonder what the...
  16. Thread: Long flights

    by dnvrdave
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    Good point! I've learned that asking ahead of...

    Good point! I've learned that asking ahead of time (on the phone or email) doesn't often work because they get scared, or don't understand that it's a simple request, or don't want to commit to...
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    I use Roho all the time (high profile) and I have...

    I use Roho all the time (high profile) and I have a custom Ride cushion too. I have the same problem you do transferring off the Ride cushion. So I pretty much use it only when driving between Denver...
  18. Thread: Long flights

    by dnvrdave
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    7,107

    I'm surprised that so many folks here use a Roho...

    I'm surprised that so many folks here use a Roho during flight. I normally use a Roho (high profile) at home, but it get's too full due to the reduced cabin pressure during flight (set to 8000 ft...
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    This is what I do: 1. Remove gauze dressing,...

    This is what I do:

    1. Remove gauze dressing, then shower. Water and soap are fine, they help to remove the gunk that is stuck to the catheter.
    2. Clean with hydrogen peroxide mixed with water...
  20. Where in NY? I lived at Lawrence Center in...

    Where in NY? I lived at Lawrence Center in Schenectady in 1986, and it was pretty great (but it was new then). I'm a quad and got all the help I needed from their CNAs. I saw no direct web site, but...
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    Same as what others said. I'll add that I start...

    Same as what others said. I'll add that I start to worry when it smells bad. There's more sediment when I eat dairy, and when the catheter (sp) it older (3+ weeks).
  22. Would you really use a suppository (bisacodyl) or...

    Would you really use a suppository (bisacodyl) or Enemeez with a colostomy? I would make sure you talk to your WOCN (ostomy nurse) or colorectal doctor.
  23. What do you mean by BM? If you have a colostomy,...

    What do you mean by BM? If you have a colostomy, aren't you incontinent, with most of the stool coming out of the main stoma mostly randomly (going into a bag), with more activity when you eat or...
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    I agree with all of that, CapnGimp. Sounds like...

    I agree with all of that, CapnGimp. Sounds like my case. I'm a lazy vegan, going back to meat and dairy at times, mostly out of convenience. I have 2 questions:

    1) It seems like sleeping position...
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    Thanks for starting this thread. I think the...

    Thanks for starting this thread. I think the discussion is important, but I also wonder whether it is in the right place. I seem to recall in the past that caregivers got upset because we were...
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