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Type: Posts; User: StarLord

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  1. Replies
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    I have a Permobil F5VS stander. Yes, you do get...

    I have a Permobil F5VS stander. Yes, you do get fully upright although not exactly straight up and down. I am a few degrees from vertical. It is weight bearing. I got the chair instead of a stander.
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    5,591

    It all comes down to how well the letter of...

    It all comes down to how well the letter of medical necessity is written. When I was considered for a spinal cord stimulator, the insurance company initially turned down the request. The pain...
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    107,814

    I have a F5VS with the optional Virtual Seating...

    I have a F5VS with the optional Virtual Seating Coach. It was an optional feature and did not come standard with the chair. It allows someone who can login to preset times for various positions,...
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    4,793

    I am more concerned about more significant...

    I am more concerned about more significant amounts of snow. Or the situation when snow plows push the snow from the street to the curb and create piles of snow at the intersections when crossing the...
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    4,793

    No, I did not. My concern was that, although they...

    No, I did not. My concern was that, although they might be useful in the snow, the ride would be routinely rougher than with normal tires and that might affect my spasms. I've already thrown myself...
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    4,793

    Using a power chair in the snow

    I reside in Minnesota and I have used a Tilite ZRa with e-motion wheels for about eight years. In that time I have had to negotiate sidewalks and streets with varying amounts of snow or ice. I have...
  7. My doctor also wants me to try an intrathecal...

    My doctor also wants me to try an intrathecal pain pump. Does anyone have any experience with them?
  8. I have a progressive neuro-muscular disease and a...

    I have a progressive neuro-muscular disease and a paralyzed diaphragm. I have a trach and I use a ventilator at night and sometimes during the day. I've had a trach and vent for about three years. A...
  9. I have neuropathic pain in my back and legs from...

    I have neuropathic pain in my back and legs from neuromuscular disease. I tried the Nevro spinal cord stimulator this past June. I did not work for me. Hopefully it will work for you.
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    6,696

    I just got a F5VS. The standing feature is great....

    I just got a F5VS. The standing feature is great. It is a front wheel chair so it takes some time to get used to maneuvering it. I was told that Medicare would not pay for it. My regular insurance...
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    3,909

    I use a Respironics Trilogy. To set the screen go...

    I use a Respironics Trilogy. To set the screen go to: Options -> Screensaver. I set mine to black. Unfortunately it doesn't go black immediately but takes a few minutes. Also, anytime an alarm goes...
  12. I use a Respironics Trilogy 100 with a trach. I...

    I use a Respironics Trilogy 100 with a trach. I have a paralyzed diaphragm. I use it as a ventilator at night and sometimes during the day. The vent is set as "Assist Control". If you expect to be...
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    I have a paralyzed diaphragm and use a vent with...

    I have a paralyzed diaphragm and use a vent with a trach. At first I tried a BiPAP machine with my trach (so I guess you can use a BiPAP with a trach) but it wasn't successful in my case. I now use a...
  14. I have had a SP catheter for five years and a...

    I have had a SP catheter for five years and a colostomy for 2 years and both, in my opinion, are well worth it. I no longer have accidents that were fairly common before, since I have no sensation in...
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    The times I have fallen in braces usually...

    The times I have fallen in braces usually involved crutches and a wet floor. Although I have fallen due to a weak trunk. I don't recall ever falling to the side. Usually it's face first or on my...
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    11,060

    I have EXACTLY the RGO shown in KLD's picture....

    I have EXACTLY the RGO shown in KLD's picture. I'm a T-5 complete and use them mostly for standing and exercise. They are hard to get into and it takes a fair amount of time getting used to them....
  17. Out of curiosity - did you try the standard...

    Out of curiosity - did you try the standard spinal cord stimulator or did you try the newer (Nevro) stimulator?
  18. About a year ago I had a trial of the standard...

    About a year ago I had a trial of the standard spinal cord stimulator for my neuro pain. It was not successful. Another doctor wants me to try the new one, probably sometime this summer. I'm not...
  19. I, too, would be happy to have a nerve block or...

    I, too, would be happy to have a nerve block or neurosurgical solution to my nerve pain. I'm allergic to opiods and I have tried gabapentin and lyrica without success. I even tried a spinal cord...
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    I’m a T-5 complete and I tried a spinal cord...

    I’m a T-5 complete and I tried a spinal cord stimulator for my neuropathic pain. It was largely unsuccessful.

    I was skeptical because I didn’t think that the stimulator would be able to cover my...
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    I tried using a valve and emptying my bladder...

    I tried using a valve and emptying my bladder that way as well. I liked the idea of maintaining bladder size, etc. The problem I had that made me stop was that, since I have no feeling in my bladder,...
  22. I'm a T-5 complete with neuropathic pain...

    I'm a T-5 complete with neuropathic pain (although I have a progressive neuro-muscular disease) and I had a spinal cord stimulator trial (now) last year. I have strong constant pain down my back...
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    Do you do a bolus feeding or a continuous one? It...

    Do you do a bolus feeding or a continuous one? It sounds like you do a continuous feeding. If you can you might try to flush the feeding tube before you use it. Do you use a formula or do you blend...
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    I have e-motion wheels and have gone up ramps...

    I have e-motion wheels and have gone up ramps fairly easily. I also have the remote control to adjust the various settings. One is set to around 40% for indoors and the other is around 80% for...
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    I have both, a Quantum Edge and a ZRa with the...

    I have both, a Quantum Edge and a ZRa with the e-Motion wheels. While the Quantum Edge is great with the tilt-back and all, it is kind of big and bulky. When I'm out and about on campus I use the ZRa...
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