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Type: Posts; User: Susan M

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  1. Replies
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    Rusty was one of a kind. He will be missed.

    Rusty was one of a kind. He will be missed.
  2. Thread: Jake died

    by Susan M
    Replies
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    24,720

    He knew it was her, but, he was on a mission to...

    He knew it was her, but, he was on a mission to account for everybody at the rally. Very much like his mother. He was 16, I think, or nearly so.
  3. Thread: Jake died

    by Susan M
    Replies
    146
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    24,720

    Bethany--warm, loving thoughts from Minnesota. ...

    Bethany--warm, loving thoughts from Minnesota. Jake was and always will be special. I can still picture him chasing down Hillary Clinton at our first rally telling her she needed to register.

    Sue
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    I was getting ready for my first day back at work...

    I was getting ready for my first day back at work post injury. I was really nervous to be among my coworkers again after 13 months. Turns out, as the horror unfolded, I was able to slip into my...
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    I keep trying to "like" posts---too much...

    I keep trying to "like" posts---too much technology on the brain, I think.
  6. Replies
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    I see. Now I understand your "Kool-Aid"...

    I see. Now I understand your "Kool-Aid" reference. Please know that although I have written about my visits to Dr. Davies lab, I have also visited and spoken with a number of researchers from all...
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    I am looking forward to seeing all of you again....

    I am looking forward to seeing all of you again. Donna has done an amazing job with the speaker line up. The activity in the research world continues to escalate.
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    I wish all of you could spend time with Dr....

    I wish all of you could spend time with Dr. Davies and visit his lab. He is generous with his time, knowledge, and information. Probably too generous as discussing unpublished information can...
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    Thank you, Leif.

    Thank you, Leif.
  10. Replies
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    633,551

    Definitely chronics.

    Definitely chronics.
  11. Replies
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    You are right...ha ha, I need to brush up on my...

    You are right...ha ha, I need to brush up on my italian and spanish. Rumor has it you'll be at W2W-looking forward to meeting you in person, not just by Skype.
  12. Replies
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    I completely understand. I have a c-4 injury...

    I completely understand. I have a c-4 injury myself, 11 years now and I'll soon turn 48. It flat out sucks and it's hard to be patient.
  13. Replies
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    Talk to him and decide for yourself, C.

    Talk to him and decide for yourself, C.
  14. Replies
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    633,551

    I guess I opened a can of worms. I'm sorry. ...

    I guess I opened a can of worms. I'm sorry. Impulsively reacted to the negative posts about Dr. Davies work that I think are unwarranted. His timeframes may be off, but, his progress continues. ...
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    Dr. Davies will be presenting in a break out...

    Dr. Davies will be presenting in a break out session on Monday, 10/17. His talk will not be blogged or recorded.

    I visited his lab in Denver last month--we didn't even talk about type 1...
  16. Replies
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    633,551

    You are absolutely correct.

    You are absolutely correct.
  17. He is. I had the pleasure of meeting him a few...

    He is. I had the pleasure of meeting him a few years ago. Great guy.
  18. Replies
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    Welcome, number1advocate. Do you know about this...

    Welcome, number1advocate. Do you know about this event in Phoenix, AZ in a few weeks?

    Working 2 Walk 2010: www.working2walk.org . We'd love to see you there. It's a great opportunity to meet...
  19. Working 2 Walk 2010-Phoenix, AZ-Coming Soon!!!

    Working 2 Walk Conference 2010 in Phoenix, AZ is right around the corner (www.working2walk.org). Hosted and organized by volunteer SCI/paralysis survivors, their families and friends for...
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    Great opportunity, Kate.

    Great opportunity, Kate.
  21. Replies
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    I'm really looking forward to meeting so many new...

    I'm really looking forward to meeting so many new people and reconnecting with a lot of others. A lot of fierce advocates out there.
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    AZ in November--yes! My reservations are made. ...

    AZ in November--yes! My reservations are made. I'm so excited and optomistic about things happening on the research front. W2W is a great conference to hear first hand and find out how we can all...
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    I'm C4, 9 years post. I use a regular mattress...

    I'm C4, 9 years post. I use a regular mattress and am never turned every 2-3 hours. In reality, it is just not practical to do so. I sleep on my side with a body pillow behind me. Pillows to...
  24. Thread: Rollx vans

    by Susan M
    Replies
    5
    Views
    4,301

    We have owned two Rollx vans. We have had pretty...

    We have owned two Rollx vans. We have had pretty good luck with them and we travel a lot--our current van was purchased new in March 2004 and we have nearly 105,000 miles on it.

    Their...
  25. Replies
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    Great energy, everyone. Here's a link to the...

    Great energy, everyone. Here's a link to the Fundraiser Toolkit recently produced by Unite 2 Fight Paralysis, it has something for everyone:

    http://unite2fightparalysis.org/fundraising_toolkit
    ...
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