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    Two recent advocacy projects...

    Over the past four and a half months I've been working relentlessly to finish writing my autobiography. My hope for the project is the raise awareness about SCIs, paralysis, quality of life & right...
  2. Wow..I've been working on writing an...

    Wow..I've been working on writing an autobiography. I've been trying to dig through all my old blogs, journal entries, newspaper interviews, exhibit info, etc., to create a timeline and put...
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    Ty :) Yes, I love Frida's work. I've been a fan...

    Ty :) Yes, I love Frida's work. I've been a fan of her work since well before my accident. I was first introduced to her work as an undergrad student (I have a B.A. in Fine Art- with K-12 teaching...
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    Sketchbook Project 2011

    New blog about an art project I entered to help raise awareness:
    http://lifeparalyzed.blogspot.com/2011/07/sketchbook-is-finally-digitized-online.html
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    Sticky: Poll: Peter wrote to me, and we've been corresponding....

    Peter wrote to me, and we've been corresponding. This is a touchy subject for me, because I think oftentimes depression is misdiagnosed (by medical doctors- not in the psychiatric field) and all too...
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    I know what you mean. Logically, I know I can't...

    I know what you mean. Logically, I know I can't afford to let the "little stuff" bug me...but frustrations build up over time. Plus, I just look around and it's like a million and one little...
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    Lol...everything had it's allotted time >.< I...

    Lol...everything had it's allotted time >.< I remember being stressed out over exams one year, and my dad glanced over to my chart and said, "ya know, you could always cut back on some Joey time" and...
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    Control Freak, With No Control

    My latest blog post: http://lifeparalyzed.blogspot.com/2011/07/control-freak-with-no-control.html

    It's about the frustrations of not being able to care for & maintain my things and my living space...
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    I hope you've managed to find some relief. I've...

    I hope you've managed to find some relief. I've been dealing with the same thing for like two years now :( I've been to the hospital several times & they can never give me a specific cause. I've had...
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    Vasulera for hemorrhoid management

    I recently went to a rectal surgeon, to have my hemorrhoids examined. She recommended I try a medical food tablet, called Vasulera (which comes in a kit with cream & wipes....
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    Just an FYI on a few things I followed up on &...

    Just an FYI on a few things I followed up on & some new suggestions I was given by a rectal specialist/surgeon...
    http://lifeparalyzed.blogspot.com/2011/07/yes-another-butt-related-blog.html
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    Maybe it was the lactalose I was thinking of....

    Maybe it was the lactalose I was thinking of. Either way, I much rather take pills than have to drink something.
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    Thanks again, to everyone for sharing. I know...

    Thanks again, to everyone for sharing. I know it's not an easy, or pleasant subject. I think I'm just gonna stick with what I've been doing for now. It's unpleasant, and tiresome, but it works.
    I...
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    Thanks so much for all the feedback! It just so...

    Thanks so much for all the feedback! It just so happens that I'm going through scheduling difficulties with my nurses. I'm going to be losing two of my regular nurses for the better portion of the...
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    Thanks for the feedback. I actually take 5...

    Thanks for the feedback. I actually take 5 senakot every night, plus 2 Colace (one in the morning & one in the evening. I eat pretty healthy too, lots of fruit, veggies & fiber. I have prunes nearly...
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    Questions regarding bowel program

    I've been having a lot of issues, regarding my bowel program and a few other things. Today I went to Kessler, to meet with my physiatrist, in hopes of getting some answers. She gave me a few things...
  17. Thread: BP Woes

    by tskushi26
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    BP Woes

    I just posted a new blog. It's about my BP woes & reasons why I absolutely don't want to get a colostomy. I've been reading through threads (in CC) about them all day. I'd love to get some feedback,...
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    I live in Freehold NJ. I think a SCI awareness...

    I live in Freehold NJ. I think a SCI awareness month is a great idea. The summer is the peak season of new SCIs. I think it'd be a wonderful way to remind the general public of summer safety tips, as...
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    A Gradual Awakening

    Here's my latest blog (book review on "A Gradual Awakening" by Stephen Levine):
    http://lifeparalyzed.blogspot.com/2011/05/gradual-awakening.html
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    Aww! Thanks guys! It helps feeling understood, if...

    Aww! Thanks guys! It helps feeling understood, if nothing else. I'm gonna keep sharing my pain, and hope more people take notice. Even if I never see a cure, if I can contribute, in my small way, it...
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    @chick Thanks. I did read that, in one of my...

    @chick
    Thanks. I did read that, in one of my searches. To be honest, it bummed me out. Most of the other data I found (or others have shared) is either old, or primarily about acute SCI patients. I...
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    Wrote a blog about my meeting with Fr. Doug: ...

    Wrote a blog about my meeting with Fr. Doug:
    http://lifeparalyzed.blogspot.com/2011/05/meeting-with-fr-doug.html
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    @ Wheelz- I meet with the priest tomorrow at 2pm....

    @ Wheelz- I meet with the priest tomorrow at 2pm. My aunt's best friend is a nun. She helped me arrange the meeting. My grandma suggested I get the anointing of the sick. I've never met this priest...
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    Yes. I've also done a lot of thinking, and...

    Yes. I've also done a lot of thinking, and researching about refusal of food/water. I've talked with several hospice, and palliative care experts, on the subject, and about my case, in particular....
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    Yes. I've found similar studies. They always...

    Yes. I've found similar studies. They always discuss "acute" injuries. Most stats that I've found, show that mortality rate, from UTI/sepsis, occur primarily within the first year, post injury. I...
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