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  1. Thread: ESBL

    by SCI-Nurse
    Replies
    1
    Views
    221

    Moved from a very old, not really related thread....

    Moved from a very old, not really related thread.

    Need much more information. What is your level of SCI? How do you manage your bladder? Have you had true ESBL UTIs, or only positive cultures...
  2. Thread: Citrobacter

    by SCI-Nurse
    Replies
    11
    Views
    14,745

    Where are you? No indication of what country you...

    Where are you? No indication of what country you are living in on your profile. Not clear why returning to the USA for care is not possible, or why you are bed-bound.

    It sounds like you have a...
  3. Replies
    30
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    4,867

    You need to talk to your primary care physician....

    You need to talk to your primary care physician. Gall bladder problems are very common in those with SCI, and can be diagnosed with a simple abdominal ultrasound generally.

    (KLD)
  4. Replies
    1
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    146

    You may have developed lactose intolerance, which...

    You may have developed lactose intolerance, which can cause gas and cramping type problems in those with this problem. This is more common in Hispanics, Asians, and African ethnic groups, but can...
  5. Sticky: Bump. (KLD)

    Bump.

    (KLD)
  6. Thread: Foley users

    by SCI-Nurse
    Replies
    2
    Views
    402

    I am not clear on your question. The pictures are...

    I am not clear on your question. The pictures are all of Dale catheter securement devices, which can be used in several ways. I don't see anything about connectors.

    (KLD)
  7. Replies
    35
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    7,127

    If cystoscopy causes AD for you, then anesthesia...

    If cystoscopy causes AD for you, then anesthesia (regional or general) would be appropriate. Your physician is obligated to explain, to your satisfaction, their plan for your procedure. Don't sign a...
  8. Replies
    2
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    241

    You should be fit for a proper cushion in a good...

    You should be fit for a proper cushion in a good seating clinic by a therapist (PT or OT) who is knowledgable about this. You could be describing a custom Ride cushion, but there are others that...
  9. Replies
    0
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    164

    Sticky: Tips for use of this forum

    Please use these tips for more efficient and safe use of this forum for posting messages about equipment/supplies wanted, for sale, free giveaway, or services for sale or wanted:

    What not to...
  10. Replies
    2
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    352

    Looks like a great way to make many subway...

    Looks like a great way to make many subway systems more accessible, since the elevators (if available) are so frequently out of service or never installed.

    (KLD)
  11. Replies
    1
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    211

    Welcome to CareCure! So sorry you had to find...

    Welcome to CareCure! So sorry you had to find us. Falls are the #1 cause of SCI in those over the age of 55, so you are joining a big club!

    Are you getting outpatient therapy still? Is your...
  12. Hanouna, I have removed your phone number. It is...

    Hanouna, I have removed your phone number. It is most unwise to post on a public internet forum information such as your personal phone number, address, or personal e-mail address. Please use the PM...
  13. Replies
    3
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    396

    You need to be seen for an evaluation by an...

    You need to be seen for an evaluation by an orthopedic surgeon or neurosurgeon who specializes in spinal surgery.

    Instrumentation and/or fusion can sometimes be used to treat scoliosis, but not...
  14. Thread: Tay Sachs

    by SCI-Nurse
    Replies
    3
    Views
    958

    If that were the case, the Tay-Sachs organization...

    If that were the case, the Tay-Sachs organization above would be all over it. Since that is not the case, I have to assume that it is a scam or illegitimate therapy, similar to those making similar...
  15. Replies
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    1,495

    Yes, I would too prefer to get it electronically,...

    Yes, I would too prefer to get it electronically, and it is cheaper for the Keck Center as well vs. the costs of mailing (and environmentally better as well).

    (KLD)
  16. Replies
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    1,298

    The OP has not been back to our site since 5/18....

    The OP has not been back to our site since 5/18. Both Jim and I have had PM discussions with this person, and have suspicions that this may be a troll. Sorry.

    (KLD)
  17. Thread: Tay Sachs

    by SCI-Nurse
    Replies
    3
    Views
    958

    Here is some information on both gene therapy and...

    Here is some information on both gene therapy and stem cell transplantation in Tay-Sachs:

    http://www.tay-sachs.org/research.php

    http://www.tsgtconsortium.com/

    You can also do a search with...
  18. Replies
    3
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    459

    Now made by Graham-Field (bought out Lumex). Did...

    Now made by Graham-Field (bought out Lumex). Did you look here?
    ...
  19. Replies
    28
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    3,586

    In my experience, rarely does Botox injection...

    In my experience, rarely does Botox injection result in prolonged bleeding (more than just during the procedure) if done properly. Rarely are more than 15-20 injection sites used.

    (KLD)
  20. Replies
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    262

    You can wear a Alpine or Urocare sport leg bag...

    You can wear a Alpine or Urocare sport leg bag with board shorts. When are you going to Cabo? It is VERY hot in the summer, so be sure you take a spray bottle for water, stay in the shade, and get...
  21. Replies
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    3,586

    Sorry, but you should not have another bladder...

    Sorry, but you should not have another bladder procedure with that much bleeding going on. If the bleeding does not clear up, or gets darker (goes from white Zinfandel to Merlot, or you see big...
  22. Did your physician say anything about you having...

    Did your physician say anything about you having hydronephrosis or other signs of urine reflux from the bladder up the ureters? This can occur due to high bladder pressures/tone and silent bladder...
  23. Thread: red spots

    by SCI-Nurse
    Replies
    5
    Views
    738

    Very unlikely to be pressure related. Most likely...

    Very unlikely to be pressure related. Most likely insect bites. Apply a small amount of hydrocortisone cream (available over the counter) and keep them clean. I assume you do not have sensation?
    ...
  24. Thread: red spots

    by SCI-Nurse
    Replies
    5
    Views
    738

    Likely insect bites. Are they right over your...

    Likely insect bites. Are they right over your ischiums or sacrum? If so, stay off them as something like this will make your skin much less resilient to pressure. Fleas, spiders, and mosquitos are...
  25. Replies
    4
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    660

    Hill holders should be pretty easy to find for...

    Hill holders should be pretty easy to find for any manual chair. We don't use them much as they can easily smash thumbs (and other fingers).

    Here are just a few sources:
    ...
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