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Type: Posts; User: Trout Bum

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    Well for the last 3 weeks I've felt stronger...

    Well for the last 3 weeks I've felt stronger since switching back to regular Cellcept (kidney transplant drug). However, in the last week I've begun to feel like crap again. Legs are stiffening, feet...
  2. Had a bladder augmentation in 1985. I was 11-12....

    Had a bladder augmentation in 1985. I was 11-12. I recommended using a fresh cath each time. Toss the dirt ones. I tried cleaning and reusing caused some of the worse infections in my life.
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    I have SB. Losing my ability to walk...

    I have SB. Losing my ability to walk...
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    Sue, thank you again for bringing Guillain Barre'...

    Sue, thank you again for bringing Guillain Barre' to much attention. I forgot to mention that I had a kidney transplant 9 years ago. Since GB is a auto-immune disease it may make sense. One of the...
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    Actually, going to tomorrow to see one of the...

    Actually, going to tomorrow to see one of the best in SLC. Hope he has some answers. Today I felt strong so I went on a walk with the dogs, however, on the return I was worn out and wish I would have...
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    Thanks for the response. What kind of...

    Thanks for the response.


    What kind of symptoms did you display before you lost all ability?
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    Are these beginning signs of paralysis?

    I'm wondering if I'm at the beginning stages of paralysis? I have Spina Bifida but have been able to walk since birth. However, in the last three months stiffness in the legs has increased, pins and...
  8. When did you have your bladder augmentation?

    Me 1985. At CHOP in Philly. I was 11. Worst pain I've ever been threw. Surgery back then took like 8 hours.
  9. I have had Pseudomonas in the past. One nasty...

    I have had Pseudomonas in the past. One nasty bug. Get treatment asap. Should be sensitive to cipro if I remember correctly. Have your doc cultural it properly Are you experiencing and pain? Chills?...
  10. Thank you Dr.Wise! Thank you for your...

    Thank you Dr.Wise!


    Thank you for your time!

    TB
  11. *Bump* ...

    *Bump*

    http://www.puritanboard.com/images/smilies/bueller.png
  12. Charcot Marie Tooth or Progressive Tethered Cord from Spina Bifida

    Hello All!

    I was born with spina bifida, been able to walk, I've had several operations including bladder augmentation back in 1985. For the last 10 years I've had severe muscle atrophy in my...
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