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Type: Posts; User: annev308

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  1. Replies
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    235,060

    Sticky: NuMotion Colorado is a disaster, both...

    NuMotion Colorado is a disaster, both organizationally and operationally. Not only are they really difficult to deal with and incredibly disorganized, once you get a chair from them no-one else will...
  2. I'm volunteering myself as the cautionary tale of...

    I'm volunteering myself as the cautionary tale of over treating with antibiotics. Like most folks with an SCI, I have a neurogenic bladder and now a SPC. My initial PCP and urologist were SCI &...
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    Renew life ultimate flora. I spent 17 months...

    Renew life ultimate flora.

    I spent 17 months on oral vanco bc of cdiff. I have had 9 courses of IV antibiotics and 6 of oral antibiotics since I started taking those and have not had a cdiff...
  4. Thread: Sad News

    by annev308
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    4,053

    I'm so sorry - my sincere condolences to you and...

    I'm so sorry - my sincere condolences to you and your family
  5. Replies
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    FWIW, I had a marked decrease in UTIs and...

    FWIW, I had a marked decrease in UTIs and sediment after having stones removed, and it was painless.
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    5,427

    I have a fusion cushion and the roho insert is...

    I have a fusion cushion and the roho insert is lopsided - one side deflates completely by the end of the day, and it's not a valve issue, nor is there a leak and I don't have an underlying postural...
  7. I don't use a spreadsheet but I do keep track of...

    I don't use a spreadsheet but I do keep track of diet/meds/supplements/exercise/energy level/bowel&bladder etc. I used to do it much more intensively and precisely but over time have been able to...
  8. Thread: Manuka honey?

    by annev308
    Replies
    10
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    1,738

    I use medihoney under duoderm and it is amazing. ...

    I use medihoney under duoderm and it is amazing. Other family members smear it on scratches, cuts, etc and are equally enthusiastic.
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    Timbuk2 will customize a bag with grommets or...

    Timbuk2 will customize a bag with grommets or whatever if you can find one of their bags that's the correct dimensions...
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    Primary is internal medicine, see specialists as...

    Primary is internal medicine, see specialists as needed. PM&R docs outside facilities seem to be focused on pain management. I use annual evaluations at rehab hospital for DME RXes.
  11. I think this is interesting - especially because...

    I think this is interesting - especially because there are a handful of clinical trials right now - https://clinicaltrials.gov/ct2/results?term=Spinal+cord+injury+hypoxia&recr=Open - looking at...
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    They determine the symptoms are from the UTI...

    They determine the symptoms are from the UTI because: 1. There is nothing else wrong (wound/flu/ingrown toenail/whatever) and 2. I only have bladder spasms when I have proper UTI and 3. I have a...
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    Because I'm colonized and always have high...

    Because I'm colonized and always have high counts, my urologist treats only when I get fully symptomatic, which for me means fever, dramatically increased spasticity, increase in nerve pain and...
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    I have had two post-traumatic detethering...

    I have had two post-traumatic detethering surgeries. In both cases I had 3 months of post-surgical restrictions - no rehab, only ADLs. I did not lose function or experience an increase in pain...
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    I regained a lot of function 6-10 months...

    I regained a lot of function 6-10 months post-injury. I lost almost everything I had gained and then some a year after that due to a weird secondary condition, had a couple of big neurosurgeries and...
  16. So my understanding is limited both regionally -...

    So my understanding is limited both regionally - I live in the US - and also by gaps in knowledge.

    In the US, catastrophic injury resulting in severe disability and dependence doesn't result in...
  17. Another cushion option to consider is the Jay...

    Another cushion option to consider is the Jay Fusion - rigid foam for stability in front and then under the sitz bones/ITs either a pouch of gel or a section of roho. I've got both the Roho Hybrid...
  18. In Colorado - affordable housing + home...

    In Colorado - affordable housing + home healthcare, v experienced with SCI population - http://www.gciinc.org/

    In Oregon - affordable housing + home healthcare, multiple locations, name stands for...
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    I hope things clear up for y'all soon. Can your...

    I hope things clear up for y'all soon. Can your doctor write orders specific to RT, or could the home health nurse maybe fill in that gap? Pneumonia is a long recovery. It's been a bad year for...
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    I'm sorry for the delay in response and also that...

    I'm sorry for the delay in response and also that I'm probably not answering all of your questions. Things have been a little busy.

    I had untethering twice - once because of the amount of...
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    6,683

    I have had surgery for post-traumatic...

    I have had surgery for post-traumatic tethering/arachnoid cysts/adhesive arachnoiditis (everyone seems to call it something different) that resulted in syrinxes twice. Both times I had lost function...
  22. Tizanidine decrease, Blood Pressure increase??

    Hey - as I get slowly (so slowly!) stronger, my spasticity has decreased and my overall functionality improved. I thought I'd try tapering down on the tizanidine, emailed doctor, she was encouraging,...
  23. Replies
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    I was fortunate enough to have both an excellent...

    I was fortunate enough to have both an excellent and SCI experienced PT (in my then-tiny town) and access to a fantastic neurofocused outpatient rehab where many of the PTs had both professional and...
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    I have been told by my doctor, my DME vendor and...

    I have been told by my doctor, my DME vendor and Medicare that status change (change in function) will get me a new chair, even at 2.5 years. I've also been told that Medicare will take care of a...
  25. Thread: warfin

    by annev308
    Replies
    28
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    5,058

    I have had eight or nine IVC filters, including...

    I have had eight or nine IVC filters, including the ones during my heparin fiasco - they stick them in before surgery and pull them about ten days later. I don't know if IVC filters are standard for...
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