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  1. Replies
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    Thankyou bonette, will definitely go ahead with...

    Thankyou bonette, will definitely go ahead with blood tests. Looked up diabetes and she does have all symptoms except high sugars but they are often low when bowels act up so are monitored...
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    Hair on spine

    Hi looking for some advice.
    I have notice a lot of darkening of skin and hair growth on my daughter's surgical scar in recent months.She is 11 and is starting puberty so maybe it is related to this...
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    My daughter is 11, is osteoporotic and a very...

    My daughter is 11, is osteoporotic and a very active and even though she stands daily she has has 2 fractures but both have causes. the first was ramming into the tables at school- right at her knee...
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    Gordy, So good to hear from you! Met a young boy...

    Gordy, So good to hear from you! Met a young boy from Dunfermline while in stoke mandeville this summer-much the same age and level of injury as Noirin and your wee man. they would have had a ball...
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    Thank you all so much for your interest in Noirin...

    Thank you all so much for your interest in Noirin and all your advice in relation to the scoliosis. i am happy to have Domosoyo in the same boat unfortunately for her but not for me!
    Your...
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    scoliosis-to have surgery or not? Help!

    Hi everyone, It's been a while since i've been on the forum but once again i am in need of advice.
    I posted about 2 years ago on the recommendation of vertebral body tethering as an option of...
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    Hi. I have a 9 yr old child with a spinal cord...

    Hi. I have a 9 yr old child with a spinal cord injury at T1 so less balance but wears a back brace to try to delay her spine growing wonky (scoliosis) but at T7 it shouldn't be as much a concern and...
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    So sorry for your loss. I really hope you allow...

    So sorry for your loss. I really hope you allow yourself to be 'mothered' as you have to all of us. To me, on reading your posts, you are one big hug and thats what I am sending you from Ireland....
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    scoliosis article

    Hi thought i would keep this post alive and wanted this article i wrote on scoliosis available to anyone else that it may help. It is quite subjective as it is our experience to date and the ball is...
  10. fakers

    today i was shopping and when we came out of the shopping centre a car pulled up into the disabled parking spot and while we got into our car the other people stayed in theirs-obviously waiting on us...
  11. Hi. THere is definitely another post here similar...

    Hi. THere is definitely another post here similar as i remember reading it and Dr. Youngs view on the genetics of it. Maybe it was even mine. From what i remember the more other genes involved the...
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    Hi was going to pm david but will keep this post...

    Hi was going to pm david but will keep this post alive incase anyone else can help. sorry to hear about mess up-hope not too serious or can be reversed. When noirin had her accident the 2 vertebrae...
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    Hi DAvid, Read your post out to my daughter- just...

    Hi DAvid, Read your post out to my daughter- just turned 9 (christmas eve also) and she wanted me to tell you that it will be ok-he will still be able to do loads of things like...
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    hi. we have solid wood throughout ground floor...

    hi. we have solid wood throughout ground floor and semisolid wood upstairs.. we had this before our daughters spinal injury and before getting a dog. have managed to get through the dog toilet...
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    Hi Blythe, My daughter Noirin was injured as a...

    Hi Blythe, My daughter Noirin was injured as a result of a car accident at 4 and half.my son was 2. She is now 8 and doing well.IT has been a steep learning curve. She is T1 complete so very similar...
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    Hi Gordy, Glad to finally see pic of your...

    Hi Gordy, Glad to finally see pic of your son-Noirin( age 8) has been oggling-not impressed with shoes though but if thats all she had to say-take it as compliment!
    HAve seen icon posts previously...
  17. THanks so much DR Wise for going to the effort of...

    THanks so much DR Wise for going to the effort of looking at recent data.It is comforting to get this information.
    I hope you don't mind but i wonder can you comment on the possible difficulties of...
  18. Hi Dr Young, Just noticed you are online at the...

    Hi Dr Young, Just noticed you are online at the minute so was hoping you may get a chance to comment on the updated info that Sean's mum has attached to the tethering procedure i asked you about for...
  19. Hi Inci, I am mum to a now 8 yr old injured in a...

    Hi Inci, I am mum to a now 8 yr old injured in a car accident age 4 and I can really empathize. My 2 yr old was also in the car at the time but got away with bruises while my daughter and I ended up...
  20. Tethering in scoliosis management post sci

    Dr. Wise, KLD or anyone else that has information on this procedure, I would love to hear your opinion. IT has been recommended for a friend's son here in shriners philadelphia and in time-my...
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    i love the new song payphone it is so cool and i...

    i love the new song payphone it is so cool and i love the song r.i.p by rita ora and call my name by cheryl and call me maybe from noirin :wave:
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    LOVE this thread. AS you can see Noirin- age 8...

    LOVE this thread. AS you can see Noirin- age 8 took it upon herself to reply to the 'what i can't do' thread as she couldn't understand why people couldn't do things because she does-(all be it...
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    i can do horse riding on my horse troy i am...

    i can do horse riding on my horse troy i am trotting on him and doing small jumps he is perfect for jumping and my dog buster is jealous of troy and i can do hip hop and swiming and go on swings...
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    but you can do all those things-:wazzup::wazzup:...

    but you can do all those things-:wazzup::wazzup: i do -dancing,horseback riding,going on swings but havnt tried motorbike yet (other than sitting on one) -(written by noirin-age 8 when she sneaked a...
  25. Congratualtions KLD-it,s nice to see your amazing...

    Congratualtions KLD-it,s nice to see your amazing mind of information and warm personality being appreciated by others ( not only us).
    Back in shriners in first week of July with my daughter and...
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