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  1. Thread: failed flaps

    by DLV
    Replies
    10
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    2,155

    Hi Tammy - My son had a sacral flap. He also had...

    Hi Tammy - My son had a sacral flap. He also had osteomyelitis and the doctor would not perform the flap surgery until the osteo was treated. The doctor told us that the rate of failure for flaps was...
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    I agree with the previous post. Call the TV...

    I agree with the previous post. Call the TV stations and newspaper. I see that you are in Maryland. There is a local case all over the news of a mother and father abusing their three little girls by...
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    3,376

    My son has to use both hands with a cathing tool...

    My son has to use both hands with a cathing tool to pull the catheter out. He opens the kit and takes out the sterile sheet and lays that on his lap. He then puts on the cathing tool. He has no...
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    My son is C6 and had a hard time figuring out how...

    My son is C6 and had a hard time figuring out how to self cath also. The "hooks" to keep his pants open were too hard for him and many of the self contained cathing kits were either too hard to open...
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    4,253

    My son is C5/C6 and wears jeans with a ring on...

    My son is C5/C6 and wears jeans with a ring on the zipper. Back when he was wearing sweat pants at rehab he tried the hook but he prefers jeans with the ring. He also uses a cathing tool and and the...
  6. I have found that the DME suppliers don't know as...

    I have found that the DME suppliers don't know as much as they think they do.

    My son had BCBS when he was injured. Later he qualified for Medicaid. I was told we could drop the BCBS and save the...
  7. Replies
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    6,211

    My son was hospitalized for 9 months (6 months at...

    My son was hospitalized for 9 months (6 months at KKI) before being released. The staff at KKI did a good job preparing us for his discharge. They made sure we had everything lined up that we would...
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    thanks for your reply!

    thanks for your reply!
  9. Replies
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    1,646

    Oxygen Saturation Monitor

    Can anyone recomend an oxygen saturation monitor?

    I have heard the brand name Pulsox, but know there are others on the market.

    This is for my father-in-law who has COPD. A search on the...
  10. Thread: Order a Tuxedo

    by DLV
    Replies
    10
    Views
    2,810

    Great idea Sci Nurse! Will definately look into...

    Great idea Sci Nurse! Will definately look into that type of tux.
  11. Thread: Order a Tuxedo

    by DLV
    Replies
    10
    Views
    2,810

    Thanks for the replys. rceshser - I agree...

    Thanks for the replys.

    rceshser - I agree they should know what to do - I get the feeling this is the first person in a chair they have dealt with.

    I guess we will just hope for the best..
  12. Replies
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    5,485

    We went through the same thing when my son was...

    We went through the same thing when my son was given a strong antibiotic. The probiotic yogurt really made a difference. Now, he will eat yogurt a couple of times a day while on an antibiotic and it...
  13. Thread: Order a Tuxedo

    by DLV
    Replies
    10
    Views
    2,810

    Order a Tuxedo

    My son is in a wedding and needs to order a tux. The local rental shop is not sure what size to order. He is very tall and has long arms. The problem is with ordering the jacket. If he get the...
  14. Thread: A failed flap,

    by DLV
    Replies
    21
    Views
    4,704

    Wow - I did follow your previous thread and I am...

    Wow - I did follow your previous thread and I am so so sorry that Justin's flap failed. My son had a flap and I know how devastated we would feel if it failed.

    I am almost certain my sons flap...
  15. Replies
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    16,267

    My son get SSI not SSDI because he was young and...

    My son get SSI not SSDI because he was young and had not worked enough quarters when he was injured to qualify for SSDI.

    He is 20 yrs old, lives in our house and we provide everything he needs....
  16. Thread: Boniva, Reclast

    by DLV
    Replies
    14
    Views
    8,897

    I was told that NASA was involved in the...

    I was told that NASA was involved in the development or funding or partial funding of this drug because NASA found the astronauts were developing osteoporosis after being in space for extended...
  17. Thread: Boniva, Reclast

    by DLV
    Replies
    14
    Views
    8,897

    My son had a dexascan and it reveiled he had...

    My son had a dexascan and it reveiled he had osteoporosis.

    He was treated with reclast by i.v. The doctor, Jay Shapiro, M.D., at KKI, told us the most recent study indicates the treatment last...
  18. Replies
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    3,642

    My son goes to therapy at KKI. Pt usually...

    My son goes to therapy at KKI. Pt usually consists of mat work, e-stem, FES bike and standing. Therapists are very good. Sessions are usually two/three hours at time.

    The overall atmosphere is...
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    I understand where you are at.... On the one...

    I understand where you are at....

    On the one year anniversary of my son's injury I could not look at him with out breaking down and crying. I tried to hide it from him and the rest of our family...
  20. Replies
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    7,238

    I agree with KevinPatrick. It is too soon after...

    I agree with KevinPatrick. It is too soon after the surgery to even think about sleeping on a regular matress unless he is going to sleep on his stomach. Can you bring his air matress from home? If...
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    13,079

    PeanutsLucy - The therapist had a hard time...

    PeanutsLucy - The therapist had a hard time getting one of my sons calves to respond to the e-stem when using an empi. They tried using a Swiss-stem and it worked. Sometimes just moving the...
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    1,992

    We have been very happy with 180 Medical,...

    We have been very happy with 180 Medical, 877-688-2729, www.180medical.com.

    The staff was very friendly and helpful. They sent us samples several times when my son was trying to decide which...
  23. Replies
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    7,238

    Joseph - It sounds like you are doing the right...

    Joseph - It sounds like you are doing the right thing. We were told to gently pull the skin to one side and hold it there for several seconds. We did not actually see the scar releasing. After a...
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    1,782

    My son also had flap surgery but his was sacral...

    My son also had flap surgery but his was sacral due to not being turned while in the hospital right after his injury. He has always had the "boney butt" too.

    Sorry, no advise on gaining weight in...
  25. Replies
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    7,238

    Joseph - This is where the gentle massaging comes...

    Joseph - This is where the gentle massaging comes in to play. I think you have to waite 6 - 8 weeks after surgery before you begin.

    The indention is because the skin is sticking to the what ever...
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