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    Just to update Sean is now 15. His spine is...

    Just to update Sean is now 15. His spine is still growing. He has just had a spinal fusion t2 - pelvis in Shriners Hospital in a Philadelphia. His curve was 95 degrees increasing by 20 degrees...
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    Poll: As a parent of a child with SCI. I have mixed...

    As a parent of a child with SCI. I have mixed feelings about this. Your parents were there and supported you through terrible times. They would have incurred finanical problems because of this. ...
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    The problem is there is no right answer when it...

    The problem is there is no right answer when it comes to the spine. Sean's spine is still very flexible. I would not worry that your son spine has stopped growing at 10. I was told children stop...
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    Hi Blythe Sorry that you and your son have...

    Hi Blythe

    Sorry that you and your son have found yourself in this position. Anyway My son was 4 when he was injured. He catherise himself and wears pads (Tenas) in his boxers. We have the...
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    Hi David Sorry that life has dealt you this...

    Hi David

    Sorry that life has dealt you this blow. I have sent you a PM. This site is a great source of information, support and hope. Learning about the effects of SCI on body and especially...
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    scoliosis in SCI kids - starting 2013 with hope

    We are just back from our 3rd trip to Shriner Hospital in Philly. last year Dr Betz had suggested VBT (Vertebral Body Tethering) as Sean's spinal curve was at 40 degrees and his only other option is...
  7. Just to follow up. My first issue was my son...

    Just to follow up. My first issue was my son purchased the Kinnect system and the game which came with it and at no time did the assitant ever mentioned while he took the child's money that he may...
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    We are now buying a FES from Cyclone. Sean is...

    We are now buying a FES from Cyclone. Sean is now 11 and had a 2 week trial on a FES bike in the summer which went very well. It is interesting on how things change in 2006 FES was not even been...
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    Hi Natalie Sorry you and your baby are...

    Hi Natalie

    Sorry you and your baby are facing this. There is alot of information / support here which will help as your child grows.

    Backup Trust UK offering a mentoring service and maybe...
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    SharonD I know it is very hard to keep fighting...

    SharonD I know it is very hard to keep fighting for your child and worrying that your child will have to live with the choices you make. Especially when you can't get all the information you need or...
  11. Vertebral Body Tethering fusionless option for scoliosis

    Dr Wise / SCI Nurse / Anyone who has knowledge of an Thoracosopic / Endoscopia approach

    I have attached the presentation they gave me about the VBT procedure. I can see if offers a number of...
  12. Non fusi√≥n v√*a tethering for scoliosis correction

    Dr Wise

    Thank you for your answer however this procedure is to correct the scoliosis by tethering the spine. Apparently this procedure has been tried in non SCI patients but not in SCI patients...
  13. successful regeneration of adult nerve axons

    I recevied this in an email today and wondered if this is a rehash of old news or new progress
    ...
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    What can we do, write to the company. Can Dr...

    What can we do, write to the company. Can Dr Silver give us some suggestions
  15. We are home

    Back from Shriners in Philly - we managed to miss the earthquake. We were very impressed with Shriners and would recommend any parents of kids with SCI to try it. You apply for treatment and once...
  16. Thanks everyone for the advice We are going...

    Thanks everyone for the advice

    We are going to see if we can address the lordosis in Sean's back and help him walk better in his RGO - here he is playing football
    ...
  17. Off to Shiners in Philadelphia - where good for kids

    Hi we are on our travels to the USA again this time for a week to Shiners in Philadelphia. We were hoping to make a holiday out of it for the kids so can anybody suggest places to bring the kids...
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    Where is your live blog - always a great read

    Where is your live blog - always a great read
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    Sticky: Congratulations on starting the trials and great...

    Congratulations on starting the trials and great to know that there is something in the pipeline for kids as well - it makes it easier to keep Sean and Noirin training if there could be something...
  20. XBOX Kinect - people in wheelchair don't exist

    http://www.amsvans.com/blog/1462-xbox-kinect-can-work-for-gamers-in-wheelchairs/

    Here is an article I found after I had a very upsetting time with the Xbox Kinect system.

    Sean was 9 this week...
  21. XBOX Kinect - does not like wheelchair users

    http://www.amsvans.com/blog/1462-xbox-kinect-can-work-for-gamers-in-wheelchairs/

    Here is an article I found after I had a very upsetting time with the Xbox Kinect system.

    Sean was 9 this week...
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    Look at my footsteps

    I thought people might enjoy this and gives me a chance to boast. Sean has started to walk into school with his RGO's. Being a boy of 8 and 7/8's - he heads straight for the mud - why use a nice...
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    Eileen Glad you enjoyed your trip and got...

    Eileen

    Glad you enjoyed your trip and got home safe. Discover Ireland owes you for the free publicity. Next time you will have to head up to Donegal. When we were driving through the Glenties...
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    Electrical Stimulation help to restore mobility

    http://www.irishtimes.com/newspaper/health/2009/0804/1224251958684.html
  25. Are wheelchairs allowed on a golf course

    I had a arguement with my husband (who loves golf) as he thinks a person in a wheelchair would not be allowed on the course because the wheels would wreck the greens. People in wheelchairs travel the...
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