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  1. Replies
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    Do you have guys have an issues with odor or loud...

    Do you have guys have an issues with odor or loud gas? How often per day you empty your bag? Thanks
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    I've tried going over a commode and it doesn't...

    I've tried going over a commode and it doesn't work. If I insert the suppository while in commode, it just pops out or for some reason I get bad results. I can't insert it then transfer naked, it...
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    First Thoughts on Getting a Colostomy

    I'm a c6/7 complete quad, 10 years post. Right now, I do bowel program 3x per week, on my side. It takes roughly 2 hours from start to finish. I must say, I have pretty good results. At worst, maybe...
  4. This is nice to see. But these guys had some or...

    This is nice to see. But these guys had some or all sensation in their legs. If they had no sensation they'd fall to the floor or be holding all their body weight with their arms. It would be great...
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    I take Vesicare 10mg a day. I've had urodynamics...

    I take Vesicare 10mg a day. I've had urodynamics done within the last year. He just said what I already knew, that I leak at 275-300 mL. He recommended botox but I hear its effects lessen over time....
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    Bladder routine question

    I'm a c6-7 complete quad, 8 years post. I drink about 70 oz (2070 mL) of fluid per day. 36 oz of water, 10 oz of coffee, 24 oz of soda. I wear a binder & ted hose.

    My bladder can only hold 300 mL...
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    Thanks everyone! I will try 1 magic bullet...

    Thanks everyone! I will try 1 magic bullet instead of 1 & 1/2.
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    Quads - How to transfer to commode chair

    I'm a c6/7 complete quad. For last 7 years, I've been doing my bowel program in bed. It works pretty good actually. Maybe once or twice a month I'll get that mucus/suppository residue accident during...
  9. I think I'm good now. In the picture in post #3,...

    I think I'm good now. In the picture in post #3, the pic was taken after my brother twisted the nut upwards, so at that point the hand control hit the gas after just the slightest downwards pull. But...
  10. Hi, thank you for responding! I have attached...

    Hi, thank you for responding!

    I have attached a photo with a red circle. Is this the nut thread you're talking about? I have to have my brother mess around with it because I can't do it myself, so...
  11. Need help tightening Monarch Mark 1A Right Angle Hand Control

    Hi,

    I have the right angle hand control. Push in for brake, pull down for gas. But there is too much give/leeway when pushing down for gas. When pushing down, it takes at least 3 inches before...
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    If the patients switched to just wearing diapers,...

    If the patients switched to just wearing diapers, they could say after treatment that they no longer cath or digital stimulation. Those are very ambiguous terms that can mean very different things....
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    Sticky: Aren't there at least a dozen SCI treated so far?...

    Aren't there at least a dozen SCI treated so far? Are they allowed to speak publicly about it? It might be helpful if they can come out and show their new functions via a video.
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    Thanks for your tips, i'll try it out

    Thanks for your tips, i'll try it out
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    Hi nurse, I'd love to put a foley in at night...

    Hi nurse,

    I'd love to put a foley in at night but as a c6, I need to use a catheter grip tool. So it wouldn't be sterile. Intermittent catheters have a plastic sleeve to keep it sterile. I...
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    How do you tape it to your dick. Do you tape it...

    How do you tape it to your dick. Do you tape it to the shaft or head? Which catheters do you use?
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    Leave intermittent catheter in all night?

    Does anyone leave their intermittent catheter in all night? Any tips? I can cath sterile with intermittent catheters bc they have a plastic guide whereas a foley, I'd have to touch it with my...
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    You raise excellent questions.

    You raise excellent questions.
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    Sticky: Can you elaborate? Why would you move on to a new...

    Can you elaborate? Why would you move on to a new therapy after having phase II trial results that are better than any other therapy out there. I mean long distance spinal cord regeneration in...
  20. We need human trials now. Maybe chinasci can do...

    We need human trials now. Maybe chinasci can do it?
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    Thanks guys. I'm going to opt out of reduced...

    Thanks guys. I'm going to opt out of reduced effort steering. When I drove with it it felt like I was floating on the road.
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    Do you guys have reduced effort steering?

    Do you guys have reduced effort steering?
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    C6 Van Hand Control Question

    Hi,

    For those c6 quads, what type of brake/accelerator do you use? A push/right angle or a push/pull...or some other? Thanks!
  24. Neuroprosthetics are the only possible cure for...

    Neuroprosthetics are the only possible cure for complete SCI. I'm glad they're finally testing sensory neuroprosthetics on humans.
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    Thank you for posting this. Its way better than...

    Thank you for posting this. Its way better than the paper itself. People should skip the paper and just read the supplementary data.

    This is my opinion on the paper. I make many assumptions.
    ...
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