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Type: Posts; User: drutland

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  1. Thread: RENETX Update

    by drutland
    Replies
    74
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    15,666

    Did Human clinical trials begin as expected with...

    Did Human clinical trials begin as expected with this companys new drug (Nogo receptor blocker) in 2018?
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    1,001

    Yes!!! I have a grouch bladder. The first year...

    Yes!!! I have a grouch bladder. The first year after injury I did not leak a drop, but I did start to develop sensations that felt like I needed to go or that I was going, or that I was going but I...
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    4,041

    There is a long of ying and yang going on with...

    There is a long of ying and yang going on with every bladder. There is always a certain amount of contraction or tone in all bladders controlled by both inhibitory and exitatory pathways. That is...
  4. Thread: beyond botox

    by drutland
    Replies
    6
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    3,579

    To make a long story short, after 4 referrals and...

    To make a long story short, after 4 referrals and 3 gastroenterologist I finally found someone willing to inject botox for spasticity in the anal sphincter. Believe me I wouldn't go to that much...
  5. Thread: very dry skin

    by drutland
    Replies
    7
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    3,179

    Vaseline works wonders. Step 1. Take a tepid...

    Vaseline works wonders. Step 1. Take a tepid (not hot hot) bath, 15-30 min. This hydrates the skin. Step 2. Apply very thin layer of Vaseline to dry areas. This step locks in the hydration. ...
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    Cauda Equina Syndrome L-4, L-5 for the last 15...

    Cauda Equina Syndrome L-4, L-5 for the last 15 years. I have been receiving botox for my bladder for several years. It has been very beneficial. I leak less and have less symptoms of AD. I am...
  7. Thread: beyond botox

    by drutland
    Replies
    6
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    3,579

    Thank you SCI-Nurse, I got a referral to a GI...

    Thank you SCI-Nurse, I got a referral to a GI guy but i am not sure how familiar he is with SCI. I guess it is a place to start. I have had this problem for so long with nothing to do but suffer...
  8. Thread: beyond botox

    by drutland
    Replies
    6
    Views
    3,579

    beyond botox

    I have Cauda Equina syndrome from massive disc rupture going on 15 years now. I have been using Botox in the bladder for several years with good results. Less leaking/spasm and AD. I have asked...
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    Levator Ani plus

    Levator ani is as you described spasm of the muscles around the anal area. It does not cause burning however. The burning part of the condition is more likley neuropathic in nature. Lyrica +...
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    Walking, My bowel emotion contracts also but...

    Walking,
    My bowel emotion contracts also but not quite as much as the bladder did. If you are getting a lot of bowell contraction that could be contributing to your internal heat problem. The...
  11. Replies
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    7,960

    Walkingagain. The first year after my injury I...

    Walkingagain.
    The first year after my injury I did not leak a drop. Then it started to slowly leaking which progressed to almost constant spasms. The spasms where tied in with my emotions. ...
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    Hi Walkingagain, Yes I have experienced being...

    Hi Walkingagain,
    Yes I have experienced being hot a lot. I think mine has several different causes. first off my bowell and bladder contract and spasm a lot. This generates a lot of internal heat...
  13. Replies
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    7,220

    Ok, some things I found in my journal from 2002...

    Ok, some things I found in my journal from 2002 through 2004 when the repetitive electric shock sensations where at there worse.

    Average number of attacks per week = 2
    Average...
  14. Replies
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    7,220

    Mark, I tried the Stimulator. I had no luck. ...

    Mark,
    I tried the Stimulator. I had no luck. I could feel the buzzing sensation in my legs and ankles but all the shocking pains where in my feet. I asked them to drive the leads down lower on...
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    Mark, I have nerver had any luck in finding...

    Mark,
    I have nerver had any luck in finding studies on this branch of neuropathic pain, just to rare. Unlike MetronCguy I definitley feel they are neuropathic. As I said they fall under a...
  16. Replies
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    I forgot to mention. the tramadol does not have...

    I forgot to mention. the tramadol does not have to build up in your system. you should know in an hour or maybe an hour and a half if you have eaten recently if it is going to work for you or not. ...
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    Mark I will read through my journal tonight and...

    Mark
    I will read through my journal tonight and get back with you tommorrow. It has been a while since I stoped keeping records.
    Tramadol is considered a non opiate pain releiver. It is not...
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    Loancoaster, One reason you don't see anybody...

    Loancoaster,
    One reason you don't see anybody discussing these repetitive shocking pains is they are rare, even among other neuropathic pain sufferers. My SCI is Cauda Equina Syndrome. I was a...
  19. Replies
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    lonecoaster, I would rather not poop for a week...

    lonecoaster,
    I would rather not poop for a week than go through these kinds of attacks. My family nick named them "the zingers"
    You can always offset narcotics with stool softners/fiber. If...
  20. Replies
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    darlagee, I have the exact type of repetetive...

    darlagee,
    I have the exact type of repetetive electric shocks in one spot (lancinating pain) that you experience. This is one of the few types of neuropathic pain that will respond to narcotics. ...
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