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Type: Posts; User: ChuckFoss

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    Thanks for the input mrb. I've used sip-n-puff...

    Thanks for the input mrb. I've used sip-n-puff for 36 years, I guess I'll stick with it. You mentioned you use a ventilator. Have you looked into diaphragm pacemakers (phrenic nerve stimulators)? I'm...
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    Do you use a sip-puff wheelchair?

    I'm looking into getting a new chair, but I want to make the best decision possible. I've always used a rear-wheel drive, but front-wheel drive really intrigues me. I used a Permobil FW drive for a...
  3. Thirty Years of Freedom with an Avery Breathing Pacemaker

    http://us.mg4.mail.yahoo.com/ya/download?mid=1%5f31650211%5fANENw0MAAAFkT5lZnwbqPHwuVCE&pid=2&fid=Inbox&inline=1&appid=YahooMailNeo






    Thirty Years of Freedom with an Avery Breathing...
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    Just to throw in my 2 cents worth....I had the...

    Just to throw in my 2 cents worth....I had the phrenic nerve stimulator implanted in 1981 at Yale-New Haven hospital in Connecticut and have been loving it since day one. More info on the phrenic...
  5. Hey mcwhlman, I'm an Avery veteran also....

    Hey mcwhlman, I'm an Avery veteran also. Celebrated my 30th year of pacing back in January.
    Did you have your surgery at Yale?
  6. Thread: Gelnique?

    by ChuckFoss
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    gelnique

    So, how did it go? I know you posted this a few years ago....hopefully you're still using it. My doc is suggesting it.
    Thanks.
    Chuck
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    I'm a C2-C3 and live with my loving wife in our...

    I'm a C2-C3 and live with my loving wife in our own home. We hire/manage 3-4 part-time PCAs who assist with my morning/evening routine, driving etc.
    Don't give up - every day holds new potential!
  8. Hi - the device mentioned is a takeoff from the...

    Hi - the device mentioned is a takeoff from the original developed at Yale University Hospital with Avery Biomedical. http://www.averybiomedical.com/index.html
    I had Avery's pacer implanted in 1981...
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    Dr. Young, thank you for explaining (once again)...

    Dr. Young, thank you for explaining (once again) the details involved with the SCINetUSA clinical trials. Your patience and drive to help us understand and to get folks involved is extraordinary! ...
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    Funding for our clinical trials

    It has probably already been discussed, but in case not, would it be possible to use a portion of the funds that have been donated via JustADollarPlease to pay a professional fund raising...
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    That's good to hear!

    That's good to hear!
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    Power chair CLICKING noise

    Hey - It's time for me to get a new power chair and I would LOVE to get one that doesn't make a LOUD CLICK every time it engages. Currently, I have an Invacare Arrow, but I'm open to other...
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    Robert, I've had an SP for 20+ years. You're...

    Robert, I've had an SP for 20+ years. You're right, the seatbelt goes right over the stoma and I keep it real tight. Aside from a little discomfort now and then, it really hasn't caused any problems....
  14. See a doc as soon as you can. Sitting on a...

    See a doc as soon as you can. Sitting on a pressure sore, no matter what type of cushion, will only make it worse, and they break down A LOT faster than they heal.
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    I'm 6'2 and could never see much when in a full...

    I'm 6'2 and could never see much when in a full size van. My last full size was a Ford with a raised roof and a lowered floor (4 inches). I still couldn't see all I wanted, mainly because I sat...
  16. Thread: God

    by ChuckFoss
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    I've been a C2 quad (unable to breath on my own)...

    I've been a C2 quad (unable to breath on my own) for 28 years. I see my injury as a blessing from God. Before getting shot, I didn't have a relationship with Jesus and probably never would. Now, I...
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    Sticky: Jim, if NASCINet has been renamed to SCINetUSA,...

    Jim, if NASCINet has been renamed to SCINetUSA, shouldn't the NASCINet.org website be renamed to SCINetUSA.org? Or would that cause too many broken links (Page Not Found)? If so, a duplicate site...
  18. Thanks for the thorough explanation Dr. Young. I...

    Thanks for the thorough explanation Dr. Young. I admit, being a C3 quad with phrenic nerve stimulators, I was a bit bummed when I first read what the qualifications for the study were. But now, I...
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    Sticky: Yes, I think it is very important to have an info...

    Yes, I think it is very important to have an info drop-down to help assure the folks who are "on the fence" about donating to feel convinced that their money is going to a worthwhile cause. I like...
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    Sticky: Hi Jim, I've been away from CareCure for a while,...

    Hi Jim, I've been away from CareCure for a while, so I'm just now reading about SCINetUSA and the fund raising efforts. This is GREAT news. I've been following the progress of ChineSCINet and know...
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    Poll: Maine has a GREAT CIL! Alpha One is a highly...

    Maine has a GREAT CIL! Alpha One is a highly respected organization that advocates for disability rights and provides several programs geared toward greater independence. http://www.alpha-one.org/
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    Stem Cell Summit

    2008 World Stem Cell Summit

    THE SINGLE MOST IMPORTANT AND COMPREHENSIVE STEM CELL MEETING TO DATE

    Early Registration Ends Monday, September 8th - Register Today

    When:
    Sept 22-23, 2008 ...
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    Hi KLD, actually, it's not an Olympic trach...

    Hi KLD, actually, it's not an Olympic trach button, but it is similar. I found the Olympic version stuck out too far and the company wasn't willing to modify the design. The button I have was custom...
  24. Hi - I know this post is old, but did you ever...

    Hi - I know this post is old, but did you ever look into phrenic nerve stimulators? I'm a C2-C3 and I've been using them since 1981. I would be happy to answer any questions about phrenic nerve...
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    Hi - I know this post is old, but did you ever...

    Hi - I know this post is old, but did you ever look into phrenic nerve stimulators? I'm a C2-C3 and I've been using them since 1981. I would be happy to answer any questions about phrenic nerve...
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