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  1. Picture

    Whoops, forgot to attach a picture. FYI, the reason the whole leg is glistening like that is my CNA had just put some apple cider vinegar/water on the sunburn. Only one small area is constantly...
  2. PLEASE help with severe blistering, oozing sunburn!

    Hello everyone,
    I was hoping you could help with suggestions for a severe sunburn I got on both of my legs last weekend. It didn't hurt at first but then Wednesday both legs began to hurt quite...
  3. Thanks for the reply Tim. I did try the fentanyl...

    Thanks for the reply Tim. I did try the fentanyl patch but unfortunately, it messed with my breathing. My doctor then put me on Actiq for a little over a year before switching to Fentora. How long...
  4. Anyone take Fentora for noncancer related pain? Can it still be prescribed off label?

    Hello everyone,
    Just wondering if anyone in the group takes Fentora for noncancer related pain? Last time I took it was 2013 when my doctor was able to write off label prescriptions for it but then...
  5. Backrest recommendations for new Permobil M300

    Hello everyone,
    I may be getting a new Permobil M300 power chair soon and I'm looking for recommendations on what type of backrest to get. I have pretty severe scoliosis and need a backrest that can...
  6. Flowonix Prometra pumps vs. Medtronics

    Hello everyone,
    I have to get my intrathecal pump replaced within the next few months as its battery will soon expire. When I last met with my PM Dr., she strongly suggested I have one of the...
  7. Hello, I had my first intrathecal pump implanted...

    Hello,
    I had my first intrathecal pump implanted around 2006, currently have baclofen (59.08 ?g daily) and hydromorphone (4.028 ?g daily) in the pump. For years I was taking 30 mg oxycodone for...
  8. All-inclusive Resort Can't Guarantee Accessible Room, Anyone Else Have That problem?

    Hi all,
    I tried to reserve a room at the Luxury Bahia Principe Runaway Bay in Jamaica last week. I used the resorts website to reserve the room and selected a wheelchair accessible room at the time....
  9. Thank you Jim & ckf. ckf, I'll take you up on...

    Thank you Jim & ckf. ckf, I'll take you up on that, any names/info are greatly appreciated!
  10. Thanks & any recommendations on CT & NYC area neurosurgeons?

    Thank you all for your replies. Dave yes, it does get worse when I'm lying flat in my bed. Turning to my right side alleviate things a little but I still do get spasms and bouts of sweating. I only...
  11. Great Razor for Anyone with Limited Dexterity or Anyone Looking for a Better Razor!

    Hello Everyone,
    For anyone out there that's looking for a different/better razor, you should definitely try the Defender Dual Head razor. I bought one to replace the Schick Extreme 3 razors that...
  12. Anyone here ever try one of these, dual head razor with a ring handle?

    I just saw an ad for this on Facebook, looks like it might work well for someone with limited dexterity. It's a razor with two shave heads and instead of a straight handle, it's got a large ring....
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    Disabled Daredevils Video

    Hi All,
    Thought y'all might find this video interesting, about a group of disabled people in the UK doing all kinds of activities like skydiving, bungee jumping, etc. Enjoy!
    ...
  14. Pain After Foley Cathing, Urethral Damage?

    Hi All,
    I'm able to urinate voluntarily but its difficult so I occasionally use a Foley catheter, when going out for appts, etc. I understand Foley cathing can lead to urethral tears and I think I...
  15. Hotels in Newport, Rhode Island

    Hi All,
    I may be going on a small trip w/family to Newport, RI in Aug. and was hoping to get some WC friendly hotel recommendations, any info is greatly appreciated. Thanks!
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    Damn, wish I saw this post back when tman 1st...

    Damn, wish I saw this post back when tman 1st posted it, I was in the same position wanting to chat w/others re the race. I just came across the post when looking here for travel info to DC. Anyway,...
  17. Mattress and Mattress Pad Suggestions

    Hello Everyone,
    I'm in desperate need of a new mattress as my back pain has become unbearable, keeping me awake all hours of the night. The pain is caused by scoliosis. I also have a lot of pain on...
  18. How Much Oxycodone Do You Take Daily?

    Hello Everyone,
    My pain has gotten a lot worse lately and I?m hoping my pain management doctor will increase oxycodone daily dosage. Years ago she prescribed three 30 mg oxycodone a day but even...
  19. Hey Brent, I've had my M300 for about a year and...

    Hey Brent,
    I've had my M300 for about a year and find it to be a very rugged chair. I go out in public quite a bit and put my chairs through a lot. My M300 has power tilt/recline, power elevating...
  20. Batteries for Permlobil at Costco?

    Hi All.
    I need replacement batteries for my M 300 and wondering if they can be bought at Costco? Someone recommended MK as seen here...
  21. Please Help w/Blood Blister Slow To Heal

    Hello everyone,
    I'm having a problem with a blood blister on my right foot that's taking a long time to heal. My aide first noticed it a few weeks ago when I started experiencing pain on the bottom...
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    Sorry to hear you're going through this, I've had...

    Sorry to hear you're going through this, I've had $$ and pain medication stolen by CNA's over the years but nothing as bad this. Do you have security cameras? I don't mean to frighten you but you...
  23. Las Vegas & Grand Canyon experiences

    Hello everyone,
    I'd like to share my experiences from my 11/26-11/30 trip to Las Vegas and Grand Canyon. First off, thanks to those who posted info regarding Vegas and the Grand Canyon, it really...
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    I think she did the Grand Canyon Escape. It also...

    I think she did the Grand Canyon Escape. It also includes a limousine pickup from your hotel to the helicopter but we'd already rented a minivan so we drove instead.
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    Hello, I went to Las Vegas with my close...

    Hello,
    I went to Las Vegas with my close friend/physical therapist from 11/26-11/30. She surprised me with a helicopter ride from McCarran airport to the Grand Canyon and back. She booked it through...
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